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- Ylva Hård af Segerstad
Ylva Hård af Segerstad
Professor
Institutionen för tillämpad IT, avd KLIK-
From Archives to Emotions: XR and Art for Exploring Death and Grief in Cultural Heritage
Institutions
Gabriella Di Feola, Ylva Hård af Segerstad
International Conference Death, Dying and Disposal (DDD17). 27-30 August 2025, Utrecht, Netherlands - 2025 -
Drawing Bridges”: Sketching Out Ways to Extend Digital Death Methodologies in Human-Computer Interaction and Computer
Science
Denise Lengyel, Gabriella Di Feola, Ylva Hård af Segerstad
International Conference Death, Dying and Disposal (DDD17). 27-30 August 2025, Utrecht, Netherlands. - 2025 -
Grief Squatting and Wreaking Havok in a Digital Safe-Haven for Bereaved
Parents
Ylva Hård af Segerstad
International Conference Death, Dying and Disposal (DDD17). 27-30 August 2025, Utrecht, Netherlands. - 2025 -
Understanding the needs for support and coping strategies in grief following the loss of a significant other: insights from a cross-sectional survey in
Sweden
Inger Benkel, Johanna Skoglund, Daniel Enstedt, Ylva Hård af Segerstad, Joakim Öhlén, Stina Nyblom
Palliative Care and Social Practice - 2024 -
AoIR Ethics: Ethics & Literacies for AI Usage in the Research
Process
Zimmer Michael, Ylva Hård af Segerstad, Kelly Quinn, Heidi A, McKee
Association of Internet Researchers Conference, 30 October - 2 November 2024 • Sheffield, UK - 2024 -
AoIR Ethics 2: Where Do We Go From
Here?
Zimmer Michael, Ylva Hård af Segerstad, Kelly Quinn, Heidi A. McKee
Association of Internet Researchers Conference, 30 October - 2 November 2024 • Sheffield, UK - 2024 -
Towards a Nuanced Understanding of Grief in Contemporary
Sweden
Ylva Hård af Segerstad, Daniel Enstedt, Inger Benkel, Stina Nyblom, Johanna Skoglund, Joakim Öhlén
Global Conference on Person-Centred Care. Knowledge(s) and Innovations for Health in Changing Societies. 13-16 May 2024, Gothenburg, Sweden - 2024 -
Patient-Centered Co-Creation: Exploring Methods and Experiences in Research and Innovation for Young Adult Cancer
Care
Ylva Hård af Segerstad, Siri Kautsky, Maria Olsson, Stefan Nilsson
Global Conference on Person-Centred Care. Knowledge(s) and Innovations for Health in Changing Societies. 13-16 May 2024, Gothenburg, Sweden - 2024 -
Co-creation of a digital platform for peer support between adolescent and young adult cancer
patients
Maria Olsson, Ylva Hård af Segerstad, Stefan Nilsson
The Société Internationale d’Oncologie Pédiatrique/International Society of Paediatric Oncology (SIOP) 2023. Ottawa, Canada. 11-14 October 2023 - 2023 -
On grief in contemporary
Sweden
Johanna Skoglund, Inger Benkel, Daniel Enstedt, Stina Nyblom, Ylva Hård af Segerstad, Joakim Öhlén
The 16th International Conference of Death, Dying and Disposal (DDD16): Learning from Suffering and Dying. New Languages from Sciences to the Humanities. 7-9 September 2023. Padua, Italy. - 2023 -
AoIR Ethics 2: Platform & Pragmatic
Challenges
Michael Zimmer, Ylva Hård af Segerstad, Erin McInerney, Nidhi Nellore, Anja Bechmann, Lynge Møller, Jessica Walter
The 24th Annual Conference of the Association of Internet Researchers, Philadelphia, PA, USA. 18-21 Oct 2023 - 2023 -
AoIR Ethics 1: Emergent
Challenges
Michael Zimmer, Ylva Hård af Segerstad, David Myles, Martin Blais, Sarah Ann Gilbert, Kate Miltner, Tim Highfield, Huichuan Xi
The 24th Annual Conference of the Association of Internet Researchers, Philadelphia, PA, USA. 18-21 Oct 2023 - 2023 -
Expressions of Grief and Needs for Support in Contemporary
Sweden
Johanna Skoglund, Inger Benkel, Daniel Enstedt, Stina Nyblom, Ylva Hård af Segerstad, Joakim Öhlén
The 18th World Congress of the European Association for Palliative Care (EAPC). Rotterdam, the Netherlands. June 15-17, 2023. - 2023 -
“It is doing the dishes, watching Netflix, reading a book - grief is all things reimagined”. Weaving death and grief into the fabric of life on the Red Hand
Files
Ylva Hård af Segerstad
The 16th International Conference of Death, Dying and Disposal (DDD16): Learning from Suffering and Dying. New Languages from Sciences to the Humanities. 7-9 September 2023. Padua, Italy - 2023 -
Sorgens uttryck i
Sverige
Johanna Skoglund, Inger Benkel, Daniel Enstedt, Stina Nyblom, Ylva Hård af Segerstad, Joakim Öhlén
Den 8:e nationella konferensen i palliativ vård. Framtidens palliativa vård. 2-4 October 2023. Malmö, Sweden - 2023 -
Sharing Vulnerability: Intimate Conversations on Love and Loss on The Red Hand
Files
Ylva Hård af Segerstad, Dorthe Christensen Refslund
Death Online Research Symposium (DORS#6), Northumbria University, Newcastle Upon Tyne, UK. May 31st – June 2nd 2023 - 2023 -
Complexities of Managing a Mobile Phone Ban in the Digitalized Schools’
Classroom
Anita Grigic Magusson, Torbjörn Ott, Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
Computers in the Schools - 2023 -
Visualizing the Invisible-The Needs and Wishes of Childhood Cancer Survivors for Digitally Mediated Emotional Peer
Support.
Stefan Nilsson, Ylva Hård af Segerstad, Maria Olsson
Current oncology - 2022 -
Future Ethics: Reflecting on AoIR Ethics Guidelines 3.0 and Considering the Next Big
Challenges
Michael Zimmer, Ylva Hård af Segerstad, Annette Markham, Heidi McKee, Corinne Cath-Speth
The 23rd Annual Conference of the Association of Internet Researchers. Dublin, Ireland. 2-5 November 2022 - 2022 -
A Sort of Permanence: Digital Remains and Posthuman Encounters with
Death
Ylva Hård af Segerstad, Jo Bell, Daphna Yeshua-Katz
Conjunctions Transdisciplinary Journal of Cultural Participation - 2022 -
Navigating the ethical grey zone - improvising best practice when routines and protocol for management of research data are
missing
Ylva Hård af Segerstad, Stefan Nilsson, Maria Olsson
AoIR Selected Papers of Internet Research, 2021 - 2021 -
Worrying About Death: An Initial Analysis of Young Adult Cancer Patients'
Needs.
Stefan Nilsson, Ylva Hård af Segerstad, Maria Olsson
Journal of adolescent and young adult oncology - 2021 -
The Effects of Multiple-Exposure Textual Enhancement on Child L2 Learners' Development in Derivational Morphology: A Multi-Site
Study
A. Revesz, Leona Bunting, A. Florea, R. Gilabert, Ylva Hård af Segerstad, I. P. Mihu, C. Parry, L. Benton, A. Vasalou
Tesol Quarterly - 2021 -
AoIR Ethics: Practices and
Roadmaps
Michael Zimmer, Ylva Hård af Segerstad
AoIR Selected Papers of Internet Research, 2021 - 2021 -
Two different methodologies for implementing an adaptive learning game - experiences from the
field
Anita Grigic Magusson, Leona Bunting, Ylva Hård af Segerstad
14th annual International Conference of Education, Research and Innovation (ICERI) - 2021 -
Needs and wishes for online peer support for AYAs during and after cancer
treatment
Maria Olsson, Siri Kautsky, Isak Eliasson, Stefan Nilsson, Ylva Hård af Segerstad
The 4th Global Adolescent and Young Adult Cancer Congress - 2021 -
Visualize the invisible – Needs and wishes for emotional support in survivors of childhood
cancer
Stefan Nilsson, Ylva Hård af Segerstad, Maria Olsson
The Société Internationale d’Oncologie Pédiatrique/International Society of Paediatric Oncology (SIOP). Virtual congress 2021. - 2021 -
A Posthumanist Approach to Continuing Bonds: On the Ephemerality and Obsolescence of Digital
Remains
Ylva Hård af Segerstad, Jo Bell, Daphna Yeshua-Katz
5th International Symposium of the Death Online Research Network (#DORS5) - 2021 -
Swedish teachers' expectations and appropriation of digital personalised learning technologies in the English
classroom
Leona Bunting, Anita Grigic Magusson, Ylva Hård af Segerstad
EUROCALL2021 - 2021 -
AoIR Ethics: Platform
Challenges
Michael Zimmer, Ylva Hård af Segerstad
AoIR Selected Papers of Internet Research, 2021 - 2021 -
USING PERSONALISED LEARNING APPLICATIONS IN THE ENGLISH CLASSROOM: TEACHERS’
EXPERIENCES
Leona Johansson Bunting, Anita Grigic Magusson, Ylva Hård af Segerstad
EDULEARN21 Proceedings - 2021 -
Swedish teachers’ views on the use of personalised learning technologies for teaching children reading in the English
classroom
Leona Bunting, Ylva Hård af Segerstad, Wolmet Barendregt
International Journal of Child-Computer Interaction - 2021 -
Designed to die: on the ephemerality and obsolescence of digital
remains
Ylva Hård af Segerstad, Jo Bell, Daphna Yeshua-Katz
The 21th Annual Conference of the Association of Internet Researchers. Virtual Event: AoIR - 2020 -
Catch 22: The Paradox of Social Media Affordances and Stigmatized Online Support
Groups
Daphna Yeshua-Katz, Ylva Hård af Segerstad
Social Media + Society - 2020 -
On the Complexities of Studying Sensitive Communities as a
Researcher-Participant
Ylva Hård af Segerstad
AoIR 2020: The 21th Annual Conference of the Association of Internet Researchers. Virtual Event: AoIR - 2020 -
THEORETICAL AND PRACTICAL RESEARCH ETHICS: THREE
CASES
Charles Ess, aline shakti franzke, Tabea Bork-Hüffer, Niklas Gudowsky-Blatakes, Ylva Hård af Segerstad, Katja Kaufmann, Martin Rutzinger, Marjo Rauhala, Bastiaan Vanacker
AoIR Selected Papers of Internet Research, 2020 - 2020 -
Taboo or not taboo: (in)visibilities of death, dying and
bereavement
Ylva Hård af Segerstad, Jo Bell, Korina Giaxoglou, Stacey Pitsillides, Daphna Yeshua-Katz, Kathleen Cumiskey, Larissa Hjorth
AoIR Selected Papers of Internet Research, 2020 - 2020 -
The effects of textual enhancement on development in L2 derivational morphology: A multi-site longitudinal
study
Andrea Revesz, Mina Vasalou, Adrian Florea, Roger Gilabert, Leona Bunting, Ylva Hård af Segerstad, Ioan P Mihu, Cliff Parry, Laura Benton
2020 conference of the American Association for Applied Linguistics (AAAL) - 2020 -
On the complexities of studying sensitive communities as a
researcher-participant
Ylva Hård af Segerstad
CHI workshop on Sensitive Research, Practice and Design in HCI. 5 May 2019, Glasgow, Scotland, UK - 2019 -
Case Sensitive: Studying Vulnerable Individuals and Closed Communities Online in The Post-Api
Age
Ylva Hård af Segerstad
1st AoIR Flashpoint symposium, 24 July 2019, Urbino, Italy - 2019 -
Locked out: the paradox of social media affordances and stigmatized online support
groups
Daphna Yeshua-Katz, Ylva Hård af Segerstad
1st AoIR Flashpoint symposium, 24 July 2019, Urbino, Italy - 2019 -
Locked out of online social support: Boundary work in stigmatized
communities
Daphna Yeshua-Katz, Ylva Hård af Segerstad
The 69th Annual International Communication Association Conference - 2019 -
Everything old is new again: The ethics of digital inquiry and its
design
Charles Ess, Ylva Hård af Segerstad
Designs for Experimentation and Inquiry. Approaching Learning and Knowing in Digital Transformation. Åsa Mäkitalo, Todd E. Nicewonger, Mark Elam (red.) - 2019 -
"It must not disturb, it’s as simple as that": Students’ voices on mobile phones in the infrastructure for learning in Swedish upper secondary
school
Torbjörn Ott, Anita Grigic Magusson, Alexandra Weilenmann, Ylva Hård af Segerstad
Education and Information Technologies - 2018 -
’The Listening Eyes’ - The Role of Moderators in Keeping Digital Safe-Havens
Safe
Ylva Hård af Segerstad
AoIR 2018: The 19th Annual Conference of the Association of Internet Researchers. Montréal, Canada, October 10-13, 2018 - 2018 -
Where Does Ethical Responsibility End? On Researcher Obligations After a Project Has
Ended
Ylva Hård af Segerstad
The 19th Annual Conference of the Association of Internet Researchers. Montréal, Canada, October 10-13, 2018. - 2018 -
’High Quality Emergency Response, That’s What It Is’. Mobile Phones and Social Media as Tools for Coping with
Trauma
Ylva Hård af Segerstad
68th Annual ICA conference, “Voices”. Prague, Czech Republic, 24-28 May 2018 - 2018 -
Digital safe-havens: Boundary work in stigmatized communities
online
Ylva Hård af Segerstad, Daphna Yeshua-Katz
7th European Communication Conference (ECREA), Lugano, Switzerland, 31 October - 3 November 2018 - 2018 -
Addressing the elephant in the room: Social media and the needs of adolescents and young adults with cancer to talk about
death
Ylva Hård af Segerstad, Stefan Nilsson, Peter Sand
The Fourth International Death Online Research Symposium, 15-17 August, 2018, Hull University, Hull, UK. - 2018 -
Bereaved parents’ online grief communities: de-tabooing practices or
grief-ghettos?
Dorthe Refslund Christensen, Ylva Hård af Segerstad, Dick Kasperowski, Kjetil Sandvik
Journal of Broadcasting & Electronic Media - 2017 -
Studying closed communities on-line: digital methods and ethical considerations beyond informed consent and
pseudonymity
Ylva Hård af Segerstad, Dick Kasperowski, Christopher Kullenberg, Christine Howes
Internet research ethics for the social age : new challenges, cases, and contexts / edited by Michael Zimmer and Katharina Kinder-Kurlanda. - 2017 -
Ethical Challenges of Studying Closed and Sensitive Communities Online: The Case of Bereaved
Parents
Ylva Hård af Segerstad
Internet Research 18.0: Networked Publics, The Eighteenth International Conference of the Association of Internet Researcher, Tartu, Estonia, 19-21 October 2017. - 2017 -
Emerging Norms: Negotiating the Expression of Grief in Online Peer Grief Support
Communities
Ylva Hård af Segerstad
3rd International Death Online Research Symposium, March 6-8 2017 at Aarhus University, Denmark - 2017 -
Sociala medier ger nya möjligheter för sörjande föräldrar att bearbeta
sorgen
Ylva Hård af Segerstad
Palliativ Vård – Tidskriften för palliativ vård i Sverige - 2017 -
TECHNOLOGY OF CHOICE: CHALLENGES AND OPPORTUNITIES OF MOBILE PHONES IN
SCHOOL
Anita Grigic Magusson, Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
EDULEARN17 Proceedings - 2017 -
“Safe havens”. Online peer grief support and emotion regulation in coping with the loss of a close
relative
Katrin Döveling, Ylva Hård af Segerstad, Dick Kasperowski
6th European Communication Conference (ECREA) - 2016 -
Studying closed communities online: Digital methods and ethical considerations beyond informed consent and
pseudonymity
Ylva Hård af Segerstad, Dick Kasperowski
Internet Research 17.0: Internet Rules!, The Seventeenth International Conference of the Association of Internet Researcher Berlin, Germany, 5-8 October, 2016 - 2016 -
Continuing bonds and enfranchised grief in online communities. Internet
rules!
Katrin Döveling, Ylva Hård af Segerstad, Dick Kasperowski
Internet Research 17.0: Internet Rules!, The Seventeenth International Conference of the Association of Internet Researchers - 2016 -
A community for grieving: affordances of social media for support of bereaved
parents
Ylva Hård af Segerstad, Dick Kasperowski
New Review of Hypermedia and Multimedia - 2015 -
INTERNET RESEARCH ETHICS: NEW CONTEXTS, NEW CHALLENGES – NEW
(RE)SOLUTIONS?
Charles Ess, Yukari Seko, Katrin Tiidenberg, Mary Gray, Camilla Granholm, Ylva Hård af Segerstad, Dick Kasperowski
AoIR Selected Papers of Internet Research - 2015 -
Bereaved parents’ online grief communities: de-tabooing practices or
grief-ghettos?
Ylva Hård af Segerstad, Dick Kasperowski, Kjetil Sandvik, Dorthe Refslund Christensen
The Second International Death Online Research Symposium, 17-18 August, 2015, Kingston University, London, UK. - 2015 -
Communication across platforms: Switching between talk and text in mobile phone
communication
Ylva Hård af Segerstad, Alexandra Weilenmann, Katerina Cerna
12th ICA Mobile Pre-Conference, May 20-21, 2015, San Juan, Puerto Rico, USA. - 2015 -
Learning to Cope With the the Death of a Child: Grieving Through Social
Media
Ylva Hård af Segerstad, Dick Kasperowski
DIGITAL EXISTENCE: Memory, Meaning, Vulnerability, 26-28 October, 2015, Sigtuna Foundation, Sweden - 2015 -
Opportunities and Challenges of Studying Closed Communities Online: Digital Methods and Ethical
Considerations
Ylva Hård af Segerstad, Dick Kasperowski
Internet Research 16.0: Digital Imaginaries, The Sixteenth International Conference of the Association of Internet Researchers, Phoenix, Arizona, USA, 21-24 October, 2015. - 2015 -
A Place to Grieve: Online Social Networks as Resources for Coping with the Loss of a
Child
Ylva Hård af Segerstad, Dick Kasperowski
The First International Death Online Research Symposium, April 9th-10th, 2014, University of Durham, UK - 2014 -
Coping with Death and Grief Through
Technology
Ylva Hård af Segerstad, Mathias Klang
Internet Research 14.0: Resistance and Appropriation, The Fourteenth International Conference of the Association of Internet Researchers - 2013 -
The Depths of Shallow
Networks
Ylva Hård af Segerstad, Mathias Klang
AoIR Selected Papers of Internet Research, 3 - 2013 -
Methodological Challenges for Studying Cross-Platform
Conversations
Ylva Hård af Segerstad, Alexandra Weilenmann
AoIR Selected Papers of Internet Research - 2013 -
Methodological Challenges for Studying Cross-Platform
Conversations
Ylva Hård af Segerstad, Alexandra Weilenmann
Internet Research 14.0: Resistance and Appropriation, The Fourteenth International Conference of the Association of Internet Researchers - 2013 -
Trust and reliance: Ethical and Methodological Challenges of Studying Sensitive Topics Online. An insider’s
dilemma
Ylva Hård af Segerstad
Internet Research 14.0: Resistance and Appropriation, The Fourteenth International Conference of the Association of Internet Researchers - 2013 -
Grieving with
Facebook
Ylva Hård af Segerstad, Mathias Klang
Internet Research 13.0: Technologies, Association of Internet Researchers - 2012 -
Cross-cultural patterns in mobile-phone use: public space and reachability in Sweden, the USA and
Japan
Ylva Hård af Segerstad, Naomi S. Baron
New Media & Society - 2010 -
The role of digital text creation in the writing of school
children
Sylvana Sofkova Hashemi, Ylva Hård af Segerstad
The second international DREAM conference: Digital Content Creation: Creativity, Competence, Critique, 18-20 September 2008, University of Southern Denmark, Odense, Denmark - 2008 -
Learning to Write in the Information Age: A Case Study of Schoolchildren's Writing in
Sweden.
Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
Writing and Digital Media - 2006 -
Language in SMS - a socio-linguistic
view
Ylva Hård af Segerstad
The Inside Text. Social, Cultural and Design Perspectives on SMS - 2005 -
Language Use in Swedish Mobile Text
Messages
Ylva Hård af Segerstad
Mobile Communications. Re-negotiation of the Social Sphere - 2005 -
Kreativt och välanpassat språkbruk i nya
medier
Ylva Hård af Segerstad
Språkbruk - 2005 -
Språkteknologi och posthumanism i ny
seminarieserie
Staffan Larsson, Jakob Wenzer, Jonas Ingvarsson, Ylva Hård af Segerstad
ForHum - 2005 -
Skrivandet, nya media och skrivstöd hos
grundskoleelever
Sylvana Sofkova Hashemi, Ylva Hård af Segerstad
Tidskrift för lärarutbildning och forskning. Inst. för svenska och samhällsvetenskapliga ämnen, Umeå universitet. - 2005 -
Barn, datorer och
språk
Ylva Hård af Segerstad
Tala med barnen om. Litteraturvägledning från Bibliotekstjänst. - 2005 -
Förändring och flexibilitet i barns och ungdomars texter i
IT-samhället
Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
ForHum, Faculty of Arts, University of Gothenburg - 2004 -
Rapport från fronten: Att lära sig skriva i
IT-samhället
Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
SLING 2004 - Andra Svenska Lingvistikkonferensen, 14-16 april 2004, Göteborgs universitet. - 2004 -
Exploring the Writing of Children and Adolescents in the Information
Society
Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
EARLI SIG Writing 9th International Conference of the EARLI - Special Interest Group on Writing, 20-22 2004, Geneve, Switzerland. - 2004 -
Att lära sig skriva i
IT-samhället
Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
Texter om svenska med didaktisk inriktning. Proceedings från Andra nationella konferensen i svenska med didaktisk inriktning. - 2004 -
Towards a Better System for Text Prediction in Mobile
Phones
Ylva Hård af Segerstad
HumanIT 2003 - 2003 -
Skriftspråk i förändring möter förlegade
skrivstöd.
Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
Humanistdag-boken nr.16 - 2003 -
Skrift i
IT-samhället
Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
SLING 2003 - Första Svenska Lingvistikkonferensen, 27-28 mars 2003, Uppsala universitet. - 2003 -
Skrift i
IT-samhället
Ylva Hård af Segerstad, Sylvana Sofkova Hashemi
Första Svenska Lingvistikkonferensen - SLING 2003 - 2003 -
Use and adaptation of written language to the conditions of computer-mediated
communication
-
Språket i SMS - en translingvistisk
dragqueen?
Ylva Hård af Segerstad
Gränser - Humanistdagboken 2003 - 2003 -
Effects of mobile text messaging on the Swedish written
language
Ylva Hård af Segerstad
Proceedings from CATaC'02 - 2002 -
Instant messaging with
WebWho
Ylva Hård af Segerstad, Peter Ljungstrand
International Journal of Human Computer Studies - 2002 -
Instant messaging with
WebWho
Ylva Hård af Segerstad, Peter Ljungstrand
International Journal of Human-Computer Studies - 2002 -
Use and Adaptation of Written Language to the Conditions of Computer-Mediated
Communication
-
Konsonantskrift och
smilisar
Ylva Hård af Segerstad
Språkvård - 2002 -
Effects of mobile text messaging on the Swedish written
language
Ylva Hård af Segerstad
Proceedings from CATaC'02 - 2002 -
Instant Messaging and Awareness of Presence in
WebWho
Ylva Hård af Segerstad
Mobilize! Digital World Research Centre - 2001 -
Swedish Chat
Rooms
Ylva Hård af Segerstad
M/C Online - A Journal of Media and Culture - 2000 -
Awareness of Presence, Instant Messaging and
WebWho
Peter Ljungstrand, Ylva Hård af Segerstad
ACM SlGGROUP Bulletin - 2000 -
An Analysis of WebWho: How Does Awareness of Presence Affect Written
Messages?
Peter Ljungstrand, Ylva Hård af Segerstad
Proceedings from Awareness and the World Wide Webb Workshop at Computer Supported Cooperative Work - 2000 -
Electronic Letters to the City Council - Factors Influencing the Composition of Email
Messages
Ylva Hård af Segerstad
Human IT - 2000