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Joakim Öhlen
Professor/ Nurse
Care in Long-term ConditionsAbout Joakim Öhlen
Joakim Öhlén, PhD in Healthcare Pedagogics, RN, is Professor of Nursing and former Centre Director at the University of Gothenburg Center for Person-Centered Care – GPCC. He has a united employment as Senior Consultant Nurse at Sahlgrenska University Hospital and works there at the Palliative Care Center. He has previously held the position of Ersta Diakonia Professor in Palliative Care at Ersta Sköndal Bräcke University in Stockholm (currently Marie Cederschiöld University).
Research Joakim conduct research in palliative care and person-centered care. He is the Centre Director and conducts research at the GPCC. He leads a research program on the implementation of palliative care that aims at knowledge development that contributes to equal and health-promoting palliative care and the facilitation of home as place of care at the end of life and dying. Special interests concern issues of person-centered communication and support for close relatives. Experiences from postgraduate education levels range from doctoral student supervision and course leadership in postgraduate courses to the structure and development of postgraduate education programmes. He is a member of the department's Postgraduate Education Committee and worked at Ersta Sköndal Bräcke University with the development, application and start of postgraduate education in the subject of palliative care in the field of the Person in the Welfare Society. He has served as external expert reviwers, chaired an organization committee for the 24th International Philosophy of Nursing Society (IPONS) Conference “Personhood: Philosophies, Critiques and Applications in Health Care” hold in 2021. He is member of the editorial boards for the journals Nursing Inquiry, Qualitative Health Research and Global Qualitative Nursing Research.
Research group Joakim leads together with Stefan Nilsson and Anneli Ozanne the department's Research Group on care for people with long-term conditions: paediatric care, neurological care and palliative care. He has extensive experience of research in nursing and palliative care.
Teaching / Education Joakim has been appointed as an Excellent Teacher at the University of Gothenburg and has extensive experience of teaching in nursing and palliative care, basic, advanced and postgraduate level, including supervision of students' degree projects and assignments for education.
He is Scientific advisor in the Steering Committee for the research school SHIFT CARE, which is a collaboaration between the Institute of Health and Care Sciences and the universities Borås, Skövde and West. Funding is received from the Swedish Research Council with SEK 37 000 500 (PI Öhlén).
He is a scientific advisor in palliative care at the Swedish Association for Nurses and has had assignments as a chair for the subject of nursing at the Sahlgrenska Academy. He participates in the editorial team for the volumes “The Foundations of Nursing” (Studentlitteratur, third edition 2019). He is a Member of the Executive Committee for the International Philosophy of Nursing Society (IPONS).
Keywords Family members; Phenomenology; Hermeneutics; Complex interventions; Narrative; Nursing; Palliative care; Person-centred Care; Grief and bereavement
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AI-based tool for healthcare professional training in person-centred
conversations
Malin Bengtsson, Jesper Fransson, Stina Nyblom, Ylva Hård af Segerstad, Ramona Schenell, Jakob Wenzer, Joakim Öhlen, Emma Forsgren
Poster på European Association for Palliative Care EAPC, 13-16. maj, 2026 Prag, Tjeckien - 2026 -
AI-based tool for healthcare professional training in person-centred
conversations
Malin Bengtsson, Jesper Fransson, Stina Nyblom, Ylva Hård af Segerstad, Ramona Schenell, Jakob Wenzer, Joakim Öhlen, Emma Forsgren
Poster på 2nd Global Conference on Person-Centred Care, GCPCC, 4-7 maj, 2026, Göteborg - 2026 -
Support interventions for families facing parental life-threatening illness - A scoping
review
Nina Malmström, Anneli Ozanne, Stefan Nilsson, Joakim Öhlen, Birgitta Jakobsson Larsson
Palliative Supportive Care - 2026 -
Regional cancer care leads' and patient representatives' perspectives on national governance and organisation of palliative cancer
care
Cecilia Larsdotter, Anna OSullivan, Stina Nyblom, Anneli Ozanne, Carl Johan Furst, Joakim Öhlen
BMC HEALTH SERVICES RESEARCH - 2026 -
Ord spelar roll - hur pratar
du?
Anette Alvariza, Carina Lundh Hagelin, Cecilia Larsdotter, Ida Goliath, Jane Österlind, Joakim Öhlen, Malin Lövgren
Palliativ vård - 2026 -
A patient-reported core outcome set for person-centred care
[PCC133]
Lena Rosenlund, Lina Emmesjö, Sara Wallström, Emmelie Barenfeld, Joakim Öhlen, Jana Bergholtz, Carl-Johan Orre, Hanna Gyllensten
The second Global Conference on Person-Centred Care: Bridging Practice, Organisation and Governance - Abstract book - 2026 -
Person-Centred Palliative Home Care From a Patient and Family Carer Perspective - A Qualitative Interpretive Meta
Synthesis
Lotta Pham, Malin Bengtsson, Stina Nyblom, Joakim Öhlen, Jeanette Kallstrand
GLOBAL QUALITATIVE NURSING RESEARCH - 2026 -
Early Integration of Palliative Care in Hospitals: How Can Palliative Care Consultation Teams Drive Practice
Change?
Susanna Böling, My Engström, Johan Berlin, Joakim Öhlen
Global Qualitative Nursing Research - 2026 -
AI-baserat verktyg för träning i personcentrerade samtal inom palliativ vård – utveckling och test av
användbarhet
Malin Bengtsson, Jesper Fransson, Stina Nyblom, Ylva Hård af Segerstad, Ramona Schenell, Joakim Öhlen, Emma Forsgren
Poster på 10:e Nationella konferensen i Palliativ vård, 18-19 november, 2025, Stockholm - 2025 -
AI-based Tool for Training in Person-Centred Communication in Palliative Care – Development and
Usability
Malin Bengtsson, Jesper Fransson, Stina Nyblom, Ylva Hård af Segerstad, Ramona Schenell, Joakim Öhlen, Emma Forsgren
Poster på The 14th International Seminar of the European Palliative Care Research Centre PRC, 16-8 september, 2025, Oslo, Norge - 2025 -
Person-centred care as an evolving field of research: a scoping
review
Emma Forsgren, Caroline Feldthusen, Sara Wallström, Lovisa Thunström, Lars Kullman, Richard Sawatzky, Joakim Öhlén
Frontiers in Health Services - 2025 -
Person-centred care for migrants: a narrative review of healthcare
literature
Cathy Son, Emma Forsgren, Joakim Öhlen, Richard Sawatzky
Frontiers in Health Services - 2025 -
Navigating Complexity: Spiritual Care Discourses Among Swedish Palliative Care
Professionals
Emma Lundberg, Anneli Ozanne, Liselott (Lisen) Dellenborg, Joakim Öhlén, Daniel Enstedt
Journal of religion and health - 2025 -
Violent suicide methods across life stages - a national population-based register
study
Henrik Imberg, Maja M Olsson, Joakim Öhlen, Cecilia Larsdotter, Margda Waern, Christopher Holmberg
Frontiers in Psychiatry - 2025 -
Livets
slutskede
Stefan Nilsson, Joakim Öhlen
L. Marmstål Hammar, S.Nilsson & J. Öhlén (Red.), Omvårdnadens grunder: perspektiv och förhållningssätt (4:e omarb. uppl., s. 109-128) - 2025 -
Omvårdnad i livets
slut
Anette Alvariza, Maria Norinder, Joakim Öhlen, Birgit H Rasmussen
S. Almerud, M Engström, A-K Edberg & H Wijk (Red.), Omvårdnadens grunder: hälsa och ohälsa (4:e omarb. uppl., s. 455-474). - 2025 -
Omvårdnadens grunder: perspektiv och
förhållningssätt
Lena Marmstål Hammar, Stefan Nilsson, Joakim Öhlen
2025 -
Förutsättningar för jämlik personcentrerad palliativ
vård
Joakim Öhlen, Stina Nyblom, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Hanna Gyllensten, Carl Johan Fürst, Larsdotter Cecilia
2025 -
Personcentrerade
samtal
Joakim Öhlen, Febe Friberg
B. Fossum (red.), Kommunikation: samtal och bemötande i vården (4:e omarb.uppl.) - 2025 -
Person
Joakim Öhlen, Febe Friberg
L. Marmstål Hammar, S.Nilsson & Öhlén J. (Red.), Omvårdnadens grunder: perspektiv och förhållningssätt (4:e omarb. uppl.)pl - 2025 -
Tidiga samtal krävs för personer med kognitiv
sjukdom
Joakim Öhlen
Palliativ vård - 2025 -
Ny samtalsmodell – enkelt tilltal döljer
brister
Joakim Öhlen
Palliativ vård - 2025 -
Learning from the implementation of person-centred care: a meta-synthesis of research related to the Gothenburg
framework
Emma Forsgren, Caroline Feldthusen, Sara Wallström, Ida Björkman, Jana Bergholtz, Febe Friberg, Joakim Öhlen
Frontiers in Health Services - 2025 -
Disparities in end-of-life care and place of death in people with malignant brain tumors-A Swedish registry
study
Anneli Ozanne, Joakim Öhlén, Stina Nyblom, Asgeir Store Jakola, Anja Smits, Cecilia Larsdotter
NEURO-ONCOLOGY PRACTICE - 2025 -
Transformed Parenthood in the Face of ALS: A Profound Struggle for Both Ill Parents and
Co-parents
Nina Malmström, Joakim Öhlén, Stefan Nilsson, Ingela Nygren, Peter M. Andersen, Birgitta Jakobsson Larsson, Anneli Ozanne
Global Qualitative Nursing Research - 2025 -
Influence of palliative care policy on place of death for people with different cancer types: a nationwide' register
study
Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Stefan Nilsson, Hanna Gyllensten, O'Sullivan Anna, Carl Johan Fürst, Larsdotter Cecilia
PLOS ONE - 2025 -
Core outcomes for the evaluation of new healthcare programmes - a modified Delphi
study
Benjamin P Harvey, Emmelie Barenfeld, Joakim Öhlén, Jana Bergholtz, Carl Johan Orre, Tomas Lindroth, Hanna Gyllensten
BMC HEALTH SERVICES RESEARCH - 2025 -
Did a digital quality of life (QOL) assessment and practice support system in home health care improve the QOL of older adults living with life-limiting conditions and of their family caregivers? A mixed-methods pragmatic randomized controlled
trial.
Richard Sawatzky, Kara Schick-Makaroff, Pamela A Ratner, Jae-Yung Kwon, David G T Whitehurst, Joakim Öhlén, Alies Maybee, Kelli Stajduhar, Lisa Zetes-Zanatta, S Robin Cohen
PLOS ONE - 2025 -
The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral
Sclerosis
Stefan Nilsson, Nina Malmström, Ingela Nygren, Joakim Öhlén, Birgitta Jakobsson Larsson, Anneli Ozanne
International Journal of Adolescence and Youth - 2025 -
Validity and reliability of the Swedish version of the Visual CARE Measure for assessing children's perceptions of nurses'
empathy.
Angelica Wiljén, John Chaplin, Stefan Nilsson, Katarina Karlsson, Joakim Öhlén, Anneli Schwarz
European Journal of Pediatrics - 2025 -
Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register
study
Maja M Olsson, Christopher Holmberg, Cecilia Larsdotter, Stina Nyblom, Joakim Öhlén
BJPsych Open - 2025 -
Patient perspectives on conversations with healthcare professionals about life in the context of serious illness and palliative
care
Malin Bengtsson, Stina Nyblom, Ramona Schenell, Lena von Bahr, Margareta Haag, Joakim Öhlen
Muntlig presentation på 8th Public Health Palliative Care International Conference, 22-25 oktober, 2024, Bern Schweiz - 2024 -
Patient perspectives on conversations with healthcare professionals about life in the context of serious illness and palliative
care
Malin Bengtsson, Stina Nyblom, Ramona Schenell, Lena von Bahr, Margareta Haag, Joakim Öhlen
Muntlig presentation på Nordic Conference in Nursing Research, 2-4 oktober, 2024, Stockholm - 2024 -
Patient perspectives on conversations with healthcare professionals about life in the context of serious illness and palliative
care
Malin Bengtsson, Stina Nyblom, Ramona Schenell, Lena von Bahr, Daniel Enstedt, Margareta Haag, Joakim Öhlen
Muntlig presentation på Global Conference on Person-Centred Care GCPCC, 13-16 maj, 2024, Göteborg - 2024 -
Current reviews on personcentred
care
Emma Forsgren, Caroline Feldthusen, Sara Wallström, Lovisa Thunström, Lars Kullman, Richard Sawatzky, Joakim Öhlén
Towards state of the science in person-centred care. Wolf, A., Forsgren, E., Björkman, I., Edvardsson, D., & Öhlén, J. (Eds.) - 2024 -
Hur får närstående yttra sig? – ny checklista stärker
forskningen
Anette Alvariza, Joakim Öhlen
Palliativ vård - 2024 -
Towards State of the Science in Person-Centred
Care
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Place of death among children from 0 to 17 years of age: A population-based study from
Sweden
Stefan Nilsson, Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Margaretha Stenmarker, Cecilia Larsdotter
Acta Paediatrica, International Journal of Paediatrics - 2024 -
Förnimmelser av en närstående efter personens
död
Joakim Öhlén
Palliativ vård - 2024 -
Palliative care consultation in the last week of life and associated factors: a cross-sectional general population
study.
Susanna Böling, Hanna Gyllensten, My Engström, Emma Lundberg, Johan Berlin, Joakim Öhlén
Palliative care and social practice - 2024 -
Effectiveness of integrated person-centered interventions for older people's care: Review of Swedish experiences and experts'
perspective.
Mariam Kirvalidze, Anne-Marie Boström, Ann Liljas, Megan Doheny, Anne Hendry, Brendan McCormack, Laura Fratiglioni, Sulin Ali, Zahra Ebrahimi, Sölve Elmståhl, Maria Eriksdotter, Pascal Gläske, Lena-Karin Gustafsson, Åsa Hedberg Rundgren, Helena Hvitfeldt, Carin Lennartsson, Lena Marmstål Hammar, Gunnar H Nilsson, Peter Nilsson, Joakim Öhlén, Anna Sandgren, Annika Söderman, Karl Swedberg, Nicoline Vackerberg, Davide Liborio Vetrano, Helle Wijk, Janne Agerholm, Amaia Calderón-Larrañaga
Journal of Internal Medicine - 2024 -
Palliative care in policy documents for adults with cancer and non-cancer diseases with potential palliative care needs: a document
analysis
Anna O'Sullivan, Linnea Carling, Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Ragnhild Hedman, Carl-Johan Fürst, Cecilia Larsdotter
Palliative Care & Social Practice - 2024 -
Understanding the needs for support and coping strategies in grief following the loss of a significant other: insights from a cross-sectional survey in
Sweden
Inger Benkel, Johanna Skoglund, Daniel Enstedt, Ylva Hård af Segerstad, Joakim Öhlén, Stina Nyblom
Palliative Care and Social Practice - 2024 -
Hur får närstående yttra sig? – ny checklista stärker
forskningen
Anette Alvariza, Joakim Öhlén
Palliativ vård - 2024 -
Towards State of the Science in Person-Centred
Care
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Registry study of cardiovascular death in Sweden 2013-2019: Home as place of death and specialized palliative care are the preserve of a
minority
Stina Nyblom, Joakim Öhlén, Cecilia Larsdotter, Anneli Ozanne, Carl Johan Furst, Ragnhild Hedman
INTERNATIONAL JOURNAL OF CARDIOLOGY CARDIOVASCULAR RISK AND PREVENTION - 2024 -
Adolescents' challenging and grief-filled transitions when living with a parent with ALS: A qualitative interpretive
study
Nina Malmström, Joakim Öhlén, Birgitta Jakobsson Larsson, Stefan Nilsson, Ingela Nygren, Peter M. Andersen, Anneli Ozanne
SOCIAL SCIENCE & MEDICINE - 2024 -
Place of care and death preferences among recently bereaved family members: a cross-sectional
survey.
Anna O'Sullivan, Cecilia Larsdotter, Richard Sawatzky, Anette Alvariza, Henrik Imberg, Joachim Cohen, Joakim Öhlén
BMJ Supportive & Palliative Care - 2024 -
Trends in the place of death in Sweden from 2013 to 2019-disclosing prerequisites for palliative
care
Cecilia Larsdotter, Stina Nyblom, Hanna Gyllensten, Carl-Johan Furst, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Joakim Öhlén
PALLIATIVE CARE & SOCIAL PRACTICE - 2024 -
Deconstructing spiritual care: Discursive underpinnings
within palliative care
research
Emma Lundberg, Joakim Öhlén, Liselott (Lisen) Dellenborg, Anneli Ozanne, Daniel Enstedt
Nursing Inquiry - 2024
More publications
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