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Joakim Öhlen
Professor/ Nurse
Care in Long-term ConditionsAbout Joakim Öhlen
Joakim Öhlén, PhD in Healthcare Pedagogics, RN, is Professor of Nursing and former Centre Director at the University of Gothenburg Center for Person-Centered Care – GPCC. He has a united employment as Senior Consultant Nurse at Sahlgrenska University Hospital and works there at the Palliative Care Center. He has previously held the position of Ersta Diakonia Professor in Palliative Care at Ersta Sköndal Bräcke University in Stockholm (currently Marie Cederschiöld University).
Research Joakim conduct research in palliative care and person-centered care. He is the Centre Director and conducts research at the GPCC. He leads a research program on the implementation of palliative care that aims at knowledge development that contributes to equal and health-promoting palliative care and the facilitation of home as place of care at the end of life and dying. Special interests concern issues of person-centered communication and support for close relatives. Experiences from postgraduate education levels range from doctoral student supervision and course leadership in postgraduate courses to the structure and development of postgraduate education programmes. He is a member of the department's Postgraduate Education Committee and worked at Ersta Sköndal Bräcke University with the development, application and start of postgraduate education in the subject of palliative care in the field of the Person in the Welfare Society. He has served as external expert reviwers, chaired an organization committee for the 24th International Philosophy of Nursing Society (IPONS) Conference “Personhood: Philosophies, Critiques and Applications in Health Care” hold in 2021. He is member of the editorial boards for the journals Nursing Inquiry, Qualitative Health Research and Global Qualitative Nursing Research.
Research group Joakim leads together with Stefan Nilsson and Anneli Ozanne the department's Research Group on care for people with long-term conditions: paediatric care, neurological care and palliative care. He has extensive experience of research in nursing and palliative care.
Teaching / Education Joakim has been appointed as an Excellent Teacher at the University of Gothenburg and has extensive experience of teaching in nursing and palliative care, basic, advanced and postgraduate level, including supervision of students' degree projects and assignments for education.
He is Scientific advisor in the Steering Committee for the research school SHIFT CARE, which is a collaboaration between the Institute of Health and Care Sciences and the universities Borås, Skövde and West. Funding is received from the Swedish Research Council with SEK 37 000 500 (PI Öhlén).
He is a scientific advisor in palliative care at the Swedish Association for Nurses and has had assignments as a chair for the subject of nursing at the Sahlgrenska Academy. He participates in the editorial team for the volumes “The Foundations of Nursing” (Studentlitteratur, third edition 2019). He is a Member of the Executive Committee for the International Philosophy of Nursing Society (IPONS).
Keywords Family members; Phenomenology; Hermeneutics; Complex interventions; Narrative; Nursing; Palliative care; Person-centred Care; Grief and bereavement
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Influence of palliative care policy on place of death for people with different cancer types: a nationwide' register
study
Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Stefan Nilsson, Hanna Gyllensten, O'Sullivan Anna, Carl Johan Fürst, Larsdotter Cecilia
PLOS ONE - 2025 -
Core outcomes for the evaluation of new healthcare programmes - a modified Delphi
study
Benjamin P Harvey, Emmelie Barenfeld, Joakim Öhlén, Jana Bergholtz, Carl Johan Orre, Tomas Lindroth, Hanna Gyllensten
BMC HEALTH SERVICES RESEARCH - 2025 -
Did a digital quality of life (QOL) assessment and practice support system in home health care improve the QOL of older adults living with life-limiting conditions and of their family caregivers? A mixed-methods pragmatic randomized controlled
trial.
Richard Sawatzky, Kara Schick-Makaroff, Pamela A Ratner, Jae-Yung Kwon, David G T Whitehurst, Joakim Öhlén, Alies Maybee, Kelli Stajduhar, Lisa Zetes-Zanatta, S Robin Cohen
PLOS ONE - 2025 -
Person-centred care as an evolving field of research: a scoping
review
Emma Forsgren, Caroline Feldthusen, Sara Wallström, Lovisa Thunström, Lars Kullman, Richard Sawatzky, Joakim Öhlén
Frontiers in Health Services - 2025 -
The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral
Sclerosis
Stefan Nilsson, Nina Malmström, Ingela Nygren, Joakim Öhlén, Birgitta Jakobsson Larsson, Anneli Ozanne
International Journal of Adolescence and Youth - 2025 -
Validity and reliability of the Swedish version of the Visual CARE Measure for assessing children's perceptions of nurses'
empathy.
Angelica Wiljén, John Chaplin, Stefan Nilsson, Katarina Karlsson, Joakim Öhlén, Anneli Schwarz
European Journal of Pediatrics - 2025 -
Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register
study
Maja M Olsson, Christopher Holmberg, Cecilia Larsdotter, Stina Nyblom, Joakim Öhlén
BJPsych Open - 2025 -
Disparities in end-of-life care and place of death in people with malignant brain tumors-A Swedish registry
study
Anneli Ozanne, Joakim Öhlén, Stina Nyblom, Asgeir Store Jakola, Anja Smits, Cecilia Larsdotter
NEURO-ONCOLOGY PRACTICE - 2024 -
Förnimmelser av en närstående efter personens
död
Joakim Öhlén
Palliativ vård - 2024 -
Palliative care consultation in the last week of life and associated factors: a cross-sectional general population
study.
Susanna Böling, Hanna Gyllensten, My Engström, Emma Lundberg, Johan Berlin, Joakim Öhlén
Palliative care and social practice - 2024 -
Effectiveness of integrated person-centered interventions for older people's care: Review of Swedish experiences and experts'
perspective.
Mariam Kirvalidze, Anne-Marie Boström, Ann Liljas, Megan Doheny, Anne Hendry, Brendan McCormack, Laura Fratiglioni, Sulin Ali, Zahra Ebrahimi, Sölve Elmståhl, Maria Eriksdotter, Pascal Gläske, Lena-Karin Gustafsson, Åsa Hedberg Rundgren, Helena Hvitfeldt, Carin Lennartsson, Lena Marmstål Hammar, Gunnar H Nilsson, Peter Nilsson, Joakim Öhlén, Anna Sandgren, Annika Söderman, Karl Swedberg, Nicoline Vackerberg, Davide Liborio Vetrano, Helle Wijk, Janne Agerholm, Amaia Calderón-Larrañaga
Journal of Internal Medicine - 2024 -
Palliative care in policy documents for adults with cancer and non-cancer diseases with potential palliative care needs: a document
analysis
Anna O'Sullivan, Linnea Carling, Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Ragnhild Hedman, Carl-Johan Fürst, Cecilia Larsdotter
Palliative Care & Social Practice - 2024 -
Understanding the needs for support and coping strategies in grief following the loss of a significant other: insights from a cross-sectional survey in
Sweden
Inger Benkel, Johanna Skoglund, Daniel Enstedt, Ylva Hård af Segerstad, Joakim Öhlén, Stina Nyblom
Palliative Care and Social Practice - 2024 -
Hur får närstående yttra sig? – ny checklista stärker
forskningen
Anette Alvariza, Joakim Öhlén
Palliativ vård - 2024 -
Towards State of the Science in Person-Centred
Care
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Current reviews on personcentred
care
Emma Forsgren, Caroline Feldthusen, Sara Wallström, Lovisa Thunström, Lars Kullman, Richard Sawatzky, Joakim Öhlén
Towards state of the science in person-centred care. Wolf, A., Forsgren, E., Björkman, I., Edvardsson, D., & Öhlén, J. (Eds.) - 2024 -
Registry study of cardiovascular death in Sweden 2013-2019: Home as place of death and specialized palliative care are the preserve of a
minority
Stina Nyblom, Joakim Öhlén, Cecilia Larsdotter, Anneli Ozanne, Carl Johan Furst, Ragnhild Hedman
INTERNATIONAL JOURNAL OF CARDIOLOGY CARDIOVASCULAR RISK AND PREVENTION - 2024 -
Navigating Complexity: Spiritual Care Discourses Among Swedish Palliative Care
Professionals
Emma Lundberg, Anneli Ozanne, Liselott (Lisen) Dellenborg, Joakim Öhlén, Daniel Enstedt
Journal of religion and health - 2024 -
Adolescents' challenging and grief-filled transitions when living with a parent with ALS: A qualitative interpretive
study
Nina Malmström, Joakim Öhlén, Birgitta Jakobsson Larsson, Stefan Nilsson, Ingela Nygren, Peter M. Andersen, Anneli Ozanne
SOCIAL SCIENCE & MEDICINE - 2024 -
Place of care and death preferences among recently bereaved family members: a cross-sectional
survey.
Anna O'Sullivan, Cecilia Larsdotter, Richard Sawatzky, Anette Alvariza, Henrik Imberg, Joachim Cohen, Joakim Öhlén
BMJ Supportive & Palliative Care - 2024 -
Trends in the place of death in Sweden from 2013 to 2019-disclosing prerequisites for palliative
care
Cecilia Larsdotter, Stina Nyblom, Hanna Gyllensten, Carl-Johan Furst, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Joakim Öhlén
PALLIATIVE CARE & SOCIAL PRACTICE - 2024 -
Deconstructing spiritual care: Discursive underpinnings
within palliative care
research
Emma Lundberg, Joakim Öhlén, Liselott (Lisen) Dellenborg, Anneli Ozanne, Daniel Enstedt
Nursing Inquiry - 2024 -
Towards a Nuanced Understanding of Grief in Contemporary
Sweden
Ylva Hård af Segerstad, Daniel Enstedt, Inger Benkel, Stina Nyblom, Johanna Skoglund, Joakim Öhlén
Global Conference on Person-Centred Care. Knowledge(s) and Innovations for Health in Changing Societies. 13-16 May 2024, Gothenburg, Sweden - 2024 -
Livshjälp, dödshjälp och palliativ vård i livets
slut
Joakim Öhlén, Anna O'Sullivan, Birgit Rasmussen
Livshjälp, dödshjälp och palliativ vård - 2024 -
On grief in contemporary
Sweden
Johanna Skoglund, Inger Benkel, Daniel Enstedt, Stina Nyblom, Ylva Hård af Segerstad, Joakim Öhlén
The 16th International Conference of Death, Dying and Disposal (DDD16): Learning from Suffering and Dying. New Languages from Sciences to the Humanities. 7-9 September 2023. Padua, Italy. - 2023 -
Person-centred conversations in nursing and health: A theoretical analysis based on perspectives on
communication.
Joakim Öhlén, Febe Friberg
Nursing Philosophy - 2023 -
Expressions of Grief and Needs for Support in Contemporary
Sweden
Johanna Skoglund, Inger Benkel, Daniel Enstedt, Stina Nyblom, Ylva Hård af Segerstad, Joakim Öhlén
The 18th World Congress of the European Association for Palliative Care (EAPC). Rotterdam, the Netherlands. June 15-17, 2023. - 2023 -
Sorgens uttryck i
Sverige
Johanna Skoglund, Inger Benkel, Daniel Enstedt, Stina Nyblom, Ylva Hård af Segerstad, Joakim Öhlén
Den 8:e nationella konferensen i palliativ vård. Framtidens palliativa vård. 2-4 October 2023. Malmö, Sweden - 2023 -
Living with a parent with ALS-adolescents' need for professional support from the adolescents' and the parents'
perspectives
Nina Malmstroem, B. J. Larsson, Stefan Nilsson, Joakim Öhlén, I. Nygren, P. M. Andersen, Anneli Ozanne
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - 2023 -
Place of death among foreign-born individuals: a national population-based register
study.
Emma Lundberg, Anneli Ozanne, Cecilia Larsdotter, Susanna Böling, Liselott (Lisen) Dellenborg, Daniel Enstedt, Joakim Öhlén
Palliative care and social practice - 2023 -
Attitudes towards death and dying among intensive care professionals: A cross-sectional design evaluating culture-related differential item functioning of the frommelt attitudes toward care of the dying
instrument.
Hanan Hamdan Alshehri, Axel Wolf, Joakim Öhlén, Richard Sawatzky, Sepideh Olausson
Heliyon - 2023 -
Empirical Phenomenological Inquiry: Guidance in Choosing Between Different
Methodologies.
Joakim Öhlén, Febe Friberg
Global Qualitative Nursing Research - 2023 -
The use of text-mining software to facilitate screening of literature on centredness in health
care.
Emma Forsgren, Sara Wallström, Caroline Feldthusen, Niklas Zechner, Richard Sawatzky, Joakim Öhlén
Systematic Reviews - 2023 -
Strategies and checklist for designing and conducting palliative care research with family carers: EAPC international expert elicitation
study.
P L Hudson, C Gardiner, A Alvariza, J Nicholas Dionne-Odom, Joakim Öhlén, E Carduff, R Harding, E Witkamp, S Payne
Palliative Medicine - 2023 -
Predictors of preparedness for recovery following colorectal cancer surgery: a latent class trajectory
analysis.
Richard Sawatzky, Cecilia Larsdotter, Eva Carlsson, Monica Pettersson, Elisabeth Kenne Sarenmalm, Frida Smith, Jonas Nygren, Lara Russell, Joakim Öhlén
Acta Oncologica - 2023 -
Centredness in health care: A systematic overview of
reviews
Caroline Feldthusen, Emma Forsgren, Sara Wallström, Viktor Andersson, Noah Löfqvist, Richard Sawatzky, Joakim Öhlén, Eva Jakobsson Ung
Health Expectations - 2022 -
Place of death among foreign-born individuals- a national population-based register
study
Emma Lundberg, Anneli Ozanne, Susanna Böling, Liselott (Lisen) Dellenborg, Daniel Enstedt, Cecilia Larsdotter , Joakim Öhlén
7:e nationella konferensen i palliativ vård, Göteborg 5-7 september 2022 - 2022 -
Sorg efter
dödsfall
Annika Olsson, Inger Benkel, Skoglund Johanna, Carl Bäckersten, Charlotta Öhrling, Joakim Öhlén, Stina Nyblom, Daniel Enstedt
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
Faktorer av betydelse för palliative consult sista veckan i
livet
Susanna Böling, Hanna Gyllensten, My Engström, Johan Berlin, Joakim Öhlén
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
En dubbel börda - att leva med livshotande sjukdom under
COVID-19-pandemin
Stina Nyblom, Inger Benkel, Linnea Carling Elofsson, Elisabet Löfdahl, Ulla Molander, Joakim Öhlén
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
Strategier för implementering av allmän palliativ vård: en sammanställning av
internationell
forskning
Susanna Böling, Joakim Öhlén, Margareta Brännström, Ingela Henoch, Eva Hessman, Stefan Nilsson, Anneli Ozanne
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
Person-centred conversations: a theoretical analysis based on perspectives on
communicat-ion
Joakim Öhlén, Febe Friberg
The 25th International Philosophy of Nursing Conference, Irvine CA, USA, August 17-19 - 2022 -
Being a child of a parent diagnosed with ALS - from the child’s
perspective
Nina Malmström, Birgitta Jakobsson Larsson, Stefan Nilsson, Joakim Öhlén, Ingela Nygren, Anneli Olsson Ozanne
The 7th Public Health Palliative Care International Conference, 20-23 September 2022, Bruges, Belgium - 2022 -
Strategies for implementation of a palliative approach: a scoping
review
Joakim Öhlén, Susanna Böling, Hanan Hamdan Alshehri , Margareta Brännström, Ingela Henoch, Eva Hessman, Stefan Nilsson, Anneli Olsson Ozanne
The 7th Public Health Palliative Care International Conference, 20-23 September 2022, Bruges, Belgium - 2022 -
Experiences among Swedish patients in specialized palliative home care and their significant others during the Covid-19
pandemic
Stina Nyblom, Inger Benkel, Linnea Carling Elofsson, Elisabet Löfdahl, Ulla Molander, Joakim Öhlén
The 7th Public Health Palliative Care International Conference, 20-23 September 2022, Bruges, Belgium - 2022 -
Healthcare Professionals’ Perspective on Palliative Care in Intensive Care Settings: An Interpretive Descriptive
Study
Hanan Hamdan Alshehri , Axel Wolf, Joakim Öhlén, Sepideh Olausson
Global Qualitative Nursing Research - 2022 -
Plats för död hos utlandsfödda boende I Sverige – en
registerstudie
Emma Lundberg, Joakim Öhlén, Anneli Ozanne
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
Erfarenheter av föräldraskapet när en förälder har diagnosen
ALS
Anneli Ozanne, Nina Malmström, Joakim Öhlén, Birgitta Jakobsson Larsson
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
Relating person-centredness to quality-of-life assessments and patient-reported outcomes in healthcare: A critical theoretical
discussion
Viktor Andersson, Richard Sawatzky, Joakim Öhlén
Nursing Philosophy - 2022 -
Personhood: Philosophies, applications and critiques in
healthcare
Joakim Öhlén, Ida Björkman, Elin Siira, Marit Kirkevold
Nursing Philosophy - 2022
More publications
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