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Stefan Nilsson
Professor/ Nurse
Care in Long-term ConditionsAbout Stefan Nilsson
Stefan Nilsson is a professor of nursing and a registered nurse who specialises in paediatric care. He has a PhD in nursing. He is a senior lecturer and researcher at the Institute of Health and Care Sciences, University of Gothenburg and the University of Gothenburg Centre for Person-Centred Care (GPCC).
His research focuses on the participation of children and young people in health care and especially the participation of children and young people with long-term illness and disability. His research also investigates children and young people in the role of relatives and examines the design and evaluation of support systems for children and young people with pain and stress. He is the principal investigator for two projects (HOPE and PicPecc) that develop and evaluate complex interventions.
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The Electronic Faces Thermometer Scale (eFTS)-Construct Validity for Pain Assessment in Pediatric Postoperative Care in
Sweden
Angelica Höök, Mia Hylen, Maria Bjork, Stefan Nilsson, Jinbing Bai, Henrik Berlin, Helena Hansson, Gudrun Kristjansdottir, Rikard Roxner, Pernilla Stenstrom, Charlotte Castor
PEDIATRIC ANESTHESIA - 2025 -
An Area-Level Study on Paediatric Burn Injuries and Their Association With Parental
Education.
Gabriela Valladares Solano, Emma Kos, Mattias Wennergren, Ann-Sofie Frisk Cavefors, Johanna Räntfors, Stefan Nilsson
Public health challenges - 2025 -
Screening tools used by paediatric healthcare providers to identify child maltreatment by parents or caregivers: A systematic
review
Josefine Ejnell, Helena Wigert, Katarina Patriksson, Stefan Nilsson
BMJ Open - 2025 -
Co-designing a paediatric person-centred care training programme: Perspectives of
paediatric health care
practitioners
Ariné Kuyler, Angelica Höök, Emma Forsgren, Stefan Nilsson, Mary Clasquin-Johnson, Ensa Johnson
International Council of Nurses, conference abstract - 2025 -
Using a co-design approach to adapt a paediatric person-centred care training programme: Perspectives of paediatric healthcare
practitioners.
Ariné Kuyler, Angelica Höök+, Emma Forsgren, Stefan Nilsson, Mary G Clasquin-Johnson, Ensa Johnson
Journal of pediatric nursing - 2025 -
Transformed Parenthood in the Face of ALS: A Profound Struggle for Both Ill Parents and
Co-parents
Nina Malmström, Joakim Öhlén, Stefan Nilsson, Ingela Nygren, Peter M. Andersen, Birgitta Jakobsson Larsson, Anneli Ozanne
Global Qualitative Nursing Research - 2025 -
Is this the road to health?-the person in precision
health
Stefan Nilsson, Helena Hansson, Philip Moons, Aron Onerup, Markus Saarijärvi, Magnus Sabel, Ewa-Lena Bratt
EUROPEAN JOURNAL OF CARDIOVASCULAR NURSING - 2025 -
Influence of palliative care policy on place of death for people with different cancer types: a nationwide' register
study
Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Stefan Nilsson, Hanna Gyllensten, O'Sullivan Anna, Carl Johan Fürst, Larsdotter Cecilia
PLOS ONE - 2025 -
Assessment of Brazilian children's anxiety during the second year of the COVID-19 pandemic through cross-sectional interviews at
schools
Patricia Aparecida Francelino Crepalde, Marla Andreia Garcia de Avila, Michelle Cristine de Oliveira Minharro, Meire Cristina Novelli Castro, Tatiane Roberta Fernandes Teixeira, Pedro Tadao Hamamoto Filho, Stefan Nilsson
FRONTIERS IN PUBLIC HEALTH - 2025 -
Nurses' experiences of providing digital and in-person healthcare support to children living with complex chronic
conditions
Margaretha Jenholt Nolbris, Johanna Ström, Wiberg, Diana Swolin-Eide, Stefan Nilsson, Malin Berghammer
Journal of Pediatric Nursing - 2025 -
The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral
Sclerosis
Stefan Nilsson, Nina Malmström, Ingela Nygren, Joakim Öhlén, Birgitta Jakobsson Larsson, Anneli Ozanne
International Journal of Adolescence and Youth - 2025 -
Validity and reliability of the Swedish version of the Visual CARE Measure for assessing children's perceptions of nurses'
empathy.
Angelica Wiljén, John Chaplin, Stefan Nilsson, Katarina Karlsson, Joakim Öhlén, Anneli Schwarz
European Journal of Pediatrics - 2025 -
Place of death among children from 0 to 17 years of age: A population-based study from
Sweden
Stefan Nilsson, Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Margaretha Stenmarker, Cecilia Larsdotter
Acta Paediatrica, International Journal of Paediatrics - 2024 -
Swedish translation of the iSUPPORT rights-based standards to support paediatric patients having a clinical
procedure.
A-C Rullander, L Bray, L Darcy, M Edwinson Månsson, K Karlsson, Stefan Nilsson, M Forsner
Acta Paediatrica - 2024 -
Meals are more than nutrition for children with a malignant or non-malignant disorder with a gastrostomy tube: A qualitative
study.
Ulrika Mårtensson, Margaretha Jenholt Nolbris, Karin Mellgren, Helle Wijk, Stefan Nilsson
European journal of oncology nursing : the official journal of European Oncology Nursing Society - 2024 -
Dimensions of clinical leadership among pre-registration nursing students: A cross-sectional study between two
countries.
Sue Baron, Keren Grinberg, Joana Pereira Sousa, Hugo Neves, Gerardina Harnett, Monica Bianchi, Marie-Louise Luiking, Stefan Nilsson, Kate Frazer, Kirsten Jack, Janet Scammell, Sigalit Warshawski
Nurse education in practice - 2024 -
Effectiveness of tattoo cream on children’s pain and fear during venipuncture procedure: a randomized controlled
trial
Sherzad Khudeida Suleman, Nizer Yahya, Stefan Nilsson, Karin Enskär
Acta Biomedica - 2024 -
Comparative efficacy of pharmacological and non-pharmacological interventions for mitigating pain and anxiety associated with venipuncture: a randomised controlled
trial.
Sherzad Khudeida Suleman, Nizer Yahya, Stefan Nilsson, Karin Enskär
BMJ Paediatrics Open - 2024 -
Positive effects of tactile massage for adolescents with Attention Deficit/Hyperactivity Disorder (ADHD) - A small scale
study.
Anna-Carin Robertz, Carl-Johan Törnhage, Stefan Nilsson, Viola Nyman, Anne-Katrin Kantzer
Complementary Therapies in Clinical Practice - 2024 -
Comparing the use of colored Trace Images in Kids' Books with passive distractions to decrease pain and fear during cannulation in children: A randomized clinical
trial
Sherzad Khudeida Suleman, Nizar BakirYahya, Stefan Nilsson, Karin Enskar
EUROPEAN JOURNAL OF INTEGRATIVE MEDICINE - 2024 -
Anxiety among children a year after the onset of the COVID-19 pandemic: a Brazilian cross-sectional online
survey
Marla Andreia Garcia de Avila, Tainara de Jesus Amorin, Pedro Tadao Hamamoto Filho, Graziela Maria Ferraz de Almeida, Patricia Olaya-Contreras, Malin Berghammer, Margaretha Jenholt Nolbris, Stefan Nilsson
FRONTIERS IN PUBLIC HEALTH - 2024 -
Adolescents' challenging and grief-filled transitions when living with a parent with ALS: A qualitative interpretive
study
Nina Malmström, Joakim Öhlén, Birgitta Jakobsson Larsson, Stefan Nilsson, Ingela Nygren, Peter M. Andersen, Anneli Ozanne
SOCIAL SCIENCE & MEDICINE - 2024 -
Trends in the place of death in Sweden from 2013 to 2019-disclosing prerequisites for palliative
care
Cecilia Larsdotter, Stina Nyblom, Hanna Gyllensten, Carl-Johan Furst, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Joakim Öhlén
PALLIATIVE CARE & SOCIAL PRACTICE - 2024 -
Content validity of the electronic faces thermometer scale for pain in children: is a picture worth more than a thousand
words?
Angelica Höök+, Charlotte Castor, Maria Björk, Emma Forsgren, Anders Muszta, Stefan Nilsson
Frontiers in pain research (Lausanne, Switzerland) - 2024 -
Developing and validating a 2D digital version of the Brazilian Children's anxiety
questionnaire.
Valquiria Moreira Lacerda Martins, Juliana Bastoni da Silva, Janaina Chinaque Francisco, Gabriela Rossi Dos Santos, Gabriely Silva Dos Santos, Stefan Nilsson, Marla Andreia Garcia de Avila
Journal of Pediatric Nursing : Nursing Care of Children and Families - 2024 -
Patient-Centered Co-Creation: Exploring Methods and Experiences in Research and Innovation for Young Adult Cancer
Care
Ylva Hård af Segerstad, Siri Kautsky, Maria Olsson, Stefan Nilsson
Global Conference on Person-Centred Care. Knowledge(s) and Innovations for Health in Changing Societies. 13-16 May 2024, Gothenburg, Sweden - 2024 -
Comparison of trace image colors for kids-book with two active distractions in reducing pain and fear of children during the venipuncture
procedure.
Sherzad Khudeida Suleman, Nizer Bakir Yahya, Stefan Nilsson, Karin Enskär
European journal of pediatrics - 2024 -
Psychometric evaluation of the electronic faces thermometer scale for pain assessment in children 8-17 years old: A study
protocol.
C Castor, M Björk, J Bai, H Berlin, G Kristjansdottir, O Kristjansdottir, H Hansson, Angelica Höök, P Stenström, Stefan Nilsson
Paediatric and Neonatal Pain - 2023 -
Living with a parent with ALS-adolescents' need for professional support from the adolescents' and the parents'
perspectives
Nina Malmström, B. J. Larsson, Stefan Nilsson, Joakim Öhlén, I. Nygren, P. M. Andersen, Anneli Ozanne
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - 2023 -
Co-creation of a digital platform for peer support between adolescent and young adult cancer
patients
Maria Olsson, Ylva Hård af Segerstad, Stefan Nilsson
The Société Internationale d’Oncologie Pédiatrique/International Society of Paediatric Oncology (SIOP) 2023. Ottawa, Canada. 11-14 October 2023 - 2023 -
Pain and discomfort in children with gastrostomy tubes - In the context of hematopoietic stem cell
transplantation.
Ulrika Mårtensson, Stefan Nilsson, Margaretha Jenholt Nolbris, Helle Wijk, Karin Mellgren
Journal of pediatric nursing - 2023 -
Adolescents' experiences of Help Overcoming Pain Early—A school based person-centred intervention for adolescents with chronic
pain
Ulrika Wallbing, Stefan Nilsson, Helena Wigert, Mari Lundberg
Paediatric and Neonatal Pain - 2023 -
Special issue on “Children's and adolescents' rights to participate in their pain
management”
Juan Bornman, Stefan Nilsson
Paediatric and Neonatal Pain - 2023 -
A systematic review and meta-analysis of the effect of art-based psychological distraction on school-aged children's pain and anxiety during painful
procedures
Sherzad Suleman, Margareta Halek, Karin Enskaer, Akram Atrushi, Stefan Nilsson
PIELEGNIARSTWO XXI WIEKU-NURSING IN THE 21 CENTURY - 2023 -
Parental Access to Healthcare following Paediatric Surgery-The Precarious Role of Parents as Providers of Care in the
Home.
Stefan Nilsson, Mia Hylén, Inger Kristensson-Hallström, Gudrún Kristjánsdóttir, Pernilla Stenström, Runar Vilhjálmsson
Children (Basel, Switzerland) - 2023 -
Developing rights-based standards for children having tests, treatments, examinations and interventions: using a collaborative, multi-phased, multi-method and multi-stakeholder approach to build
consensus.
Lucy Bray, Bernie Carter, Joann Kiernan, Ed Horowicz, Katie Dixon, James Ridley, Carol Robinson, Anna Simmons, Jennie Craske, Stephanie Sinha, Liza Morton, Begonya Nafria, Maria Forsner, Anna-Clara Rullander, Stefan Nilsson, Laura Darcy, Katarina Karlsson, Cath Hubbuck, Maria Brenner, Sian Spencer-Little, Kath Evans, Andrew Rowland, Carol Hilliard, Jennifer Preston, Piet L Leroy, Damian Roland, Lisa Booth, Jean Davies, Holly Saron, Marie Edwinson Mansson, Ann Cox, Karen Ford, Steven Campbell, Julie Blamires, Annette Dickinson, Michael Neufeld, Blake Peck, Marla de Avila, Veronica Feeg, Henny Suzana Mediani, Maha Atout, Maureen D Majamanda, Natasha North, Christine Chambers, Fanny Robichaud
European journal of pediatrics - 2023 -
Children's and adolescent's narratives about pain and negative experiences in diabetes
treatment.
Johanna Göthesson, Linnéa Håkansson, Anna Lindholm Olinder, Lena Hanberger, Evalotte Mörelius, Stefan Nilsson, Maria Forsner
Journal for specialists in pediatric nursing : JSPN - 2023 -
Pediatric Nurses' Person-Centered Approach to Nausea Management in Children With
Cancer.
Maria Nogéus, Stefan Nilsson, Maria Björk
Journal of pediatric hematology/oncology nursing - 2023 -
Help overcoming pain early, a brief person-centred intervention for adolescents with chronic pain in a school setting, may improve symptoms of
insomnia
Ulrika Wallbing, Stefan Nilsson, Mari Lundberg, Helena Wigert, Mike K. Kemani
Frontiers in Pain Research - 2023 -
Being a child of a parent diagnosed with ALS - from the child’s
perspective
Nina Malmström, Birgitta Jakobsson Larsson, Stefan Nilsson, Joakim Öhlén, Ingela Nygren, Anneli Olsson Ozanne
The 7th Public Health Palliative Care International Conference, 20-23 September 2022, Bruges, Belgium - 2022 -
Visualizing the Invisible-The Needs and Wishes of Childhood Cancer Survivors for Digitally Mediated Emotional Peer
Support.
Stefan Nilsson, Ylva Hård af Segerstad, Maria Olsson
Current oncology - 2022 -
How children in Sweden accessed and perceived information during the first phase of the Covid-19
pandemic.
Lise-Lott Rydström, Charlotte Ångström-Brännström, Lucy Blake, Lucy Brayl, Bernie Carter, Maria Forsner, Janet Matsson, Stefan Nilsson, Margaretha Jenholt Nolbris, Jennifer Kirton, Inger Kull, Joanne Protheroe, Anna-Clara Rullander, Holly Saron, Anna Lindholm Olinder
Scandinavian journal of public health - 2022 -
Strategier för implementering av allmän palliativ vård: en sammanställning av
internationell
forskning
Susanna Böling, Joakim Öhlén, Margareta Brännström, Ingela Henoch, Eva Hessman, Stefan Nilsson, Anneli Ozanne
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
Strategies for implementation of a palliative approach: a scoping
review
Joakim Öhlén, Susanna Böling, Hanan Hamdan Alshehri, Margareta Brännström, Ingela Henoch, Eva Hessman, Stefan Nilsson, Anneli Olsson Ozanne
The 7th Public Health Palliative Care International Conference, 20-23 September 2022, Bruges, Belgium - 2022 -
Using Communication Tools to Explore Young Siblings' Experiences of Having a Brother or Sister with Pediatric Palliative Care
Needs
U. Kreicbergs, Stefan Nilsson, Margaretha Jenholt Nolbris, M. Lovgren
Children-Basel - 2022 -
Clinical leadership in nursing students: A concept
analysis.
Kirsten Jack, Monica Bianchi, Rosa Dilar Pereira Costa, Keren Grinberg, Gerardina Harnett, Marie-Louise Luiking, Stefan Nilsson, Janet Mary Elizabeth Scammell
Nurse education today - 2022 -
'Do you feel well or unwell?' A study on children's experience of estimating their nausea using the digital tool
PicPecc.
Linda Esplana, Malin Olsson, Stefan Nilsson
Journal of child health care : for professionals working with children in the hospital and community - 2022 -
Access to health care perceived by parents caring for their child at home supported by eHealth-a directed approach introducing
aperture.
Mia Hylén, Stefan Nilsson, Inger Kristensson-Hallström, Gudrún Kristjánsdóttir, Pernilla Stenström, Rúnar Vilhjálmsson
BMC health services research - 2022 -
Young children’s voices in an unlocked Sweden during
the COVID-19
pandemic
Margaretha Jenholt Nolbris, Susanne Ragnarsson, Anna-Lena Brorsson, Marla Garcia de Avila, Maria Forsner, Inger Kull, Anna Lindholm Olinder, Janet Mattsson, Stefan Nilsson, Anna-Clara Rullander, Lise-Lott Rydström, Patricia Olaya-Contreras, Malin Berghammer
Scandinavian Journal of Public Health - 2022 -
The Development of an mHealth Tool for Children With Long-term Illness to Enable Person-Centered Communication: User-Centered Design
Approach.
Angelica Wiljén, John Chaplin, Vanessa Crine, William Jobe, Ensa Johnson, Katarina Karlsson, Tomas Lindroth, Anneli Schwarz, Margaretha Stenmarker, Gunilla Thunberg, Joakim Öhlén, Stefan Nilsson
JMIR pediatrics and parenting - 2022
More publications
We have limited the number of publications on this page. Visit GUP (The Publication Database for Gothenburg University) to find more publications.