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Anneli Ozanne
Professor/ Nurse
Care in Long-term ConditionsAbout Anneli Ozanne
Anneli Ozanne holds a PhD in Neurology and is Professor of Nursing with a focus on neurological care and palliative care. She has more than 25 years of experience in clinical nursing within neurological care and holds a joint appointment as Senior University Hospital Nurse at the Department of Neurological Care, Sahlgrenska University Hospital.
Research
Anneli’s research focuses on care in various neurological conditions as well as palliative care. A particular emphasis is placed on care and support for families where a person is living with ALS, a brain tumour or epilepsy. Her research is interdisciplinary and is grounded in the health of patients and significant others, their need for support and care throughout the entire course of illness.
A central perspective is person-centred and close to home care, with collaboration between different healthcare providers. The research projects aim to develop and implement support interventions that contribute to equitable and health-promoting care, with the family in focus throughout the disease trajectory.
Anneli is one of the research leaders in the research group Care for people with long-term conditions: paediatric care, neurological care and palliative care at the Department of Health and Care Sciences, University of Gothenburg.
Research groups and networks
- Care for people with long-term conditions: paediatric care, neurological care, and palliative care
- Clinical brain tumour research
- Epilepsy research group
- Talk for Life – Conversations in Palliative Care (Christina Melin Johansson's research group)
- EANO (European Association for Neuro-Oncology), member of scientific committee
- EAPC (European Association for Palliative Care), member of Task Force för Rehabilitation in Palliative Care
- EAPC, member of reference group of Neurology and Palliative Care
- BRAINWEST – Broad Research Alliance in Interdisciplinary Neuroscience, West Sweden
Teaching
Anneli is programme coordinator for the specialist nursing programme in neurological care. She teaches at undergraduate, postgraduate and doctoral levels, with a particular focus on neurological care, palliative care and qualitative research methods.
Clinical practice
Anneli holds a joint appointment as Senior University Hospital Nurse at the Department of Neurological Care, Sahlgrenska University Hospital. She has more than 25 years of experience in neurological nursing and has worked in both outpatient and inpatient care.
She is a member of R&D Gothenburg and Southern Bohuslän and R&D Neurological Care at Sahlgrenska University Hospital, a board member of ISNF and of the Familjen Bursie Foundation.
Keywords
Nursing; neurology; ALS; epilepsy; brain tumours; palliative care; family members; children as next of kin; content analysis; hermeneutics; phenomenological hermeneutics; complex interventions
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Surgical biopsy techniques in neurosurgery: A four-year population-based study of frameless and frame-based
procedures
Hanna Barchéus, Alba Corell, Malin Blomstrand, Thomas Olsson, Helena Carén, Anneli Ozanne, Asgeir Jakola, Anja Smits, Johan Ljungqvist
Interdisciplinary Neurosurgery Advanced Techniques and Case Management - 2026 -
Förutsättningar för jämlik personcentrerad palliativ
vård
Joakim Öhlen, Stina Nyblom, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Hanna Gyllensten, Carl Johan Fürst, Larsdotter Cecilia
2025 -
Navigating Complexity: Spiritual Care Discourses Among Swedish Palliative Care
Professionals
Emma Lundberg, Anneli Ozanne, Liselott (Lisen) Dellenborg, Joakim Öhlén, Daniel Enstedt
Journal of religion and health - 2025 -
Clinical and demographic predictors of high epilepsy care utilization: mode of interaction, professionals involved, and reasons for
contact
Anna Hjorth, Saman Hosseini Ashtiani, André Idegård, Anneli Ozanne, Johan Zelano
SEIZURE-EUROPEAN JOURNAL OF EPILEPSY - 2025 -
Disparities in end-of-life care and place of death in people with malignant brain tumors-A Swedish registry
study
Anneli Ozanne, Joakim Öhlén, Stina Nyblom, Asgeir Store Jakola, Anja Smits, Cecilia Larsdotter
NEURO-ONCOLOGY PRACTICE - 2025 -
Transformed Parenthood in the Face of ALS: A Profound Struggle for Both Ill Parents and
Co-parents
Nina Malmström, Joakim Öhlén, Stefan Nilsson, Ingela Nygren, Peter M. Andersen, Birgitta Jakobsson Larsson, Anneli Ozanne
Global Qualitative Nursing Research - 2025 -
Influence of palliative care policy on place of death for people with different cancer types: a nationwide' register
study
Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Stefan Nilsson, Hanna Gyllensten, O'Sullivan Anna, Carl Johan Fürst, Larsdotter Cecilia
PLOS ONE - 2025 -
Development of a support intervention model for epilepsy care in outpatient
clinics
Anna Hjorth, Klara Andersson, Ewa-Lena Bratt, Kristina Malmgren, Anna Edelvik Tranberg, Johan Zelano, Anneli Ozanne
EPILEPSY & BEHAVIOR - 2025 -
Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory
study
Annica Lagerin, Christina Melin-Johansson, Bodil Holmberg, Tove Godskesen, Elin Hjorth, Lena Junehag, Carina Lundh Hagelin, Anneli Ozanne, Johan Sundelof, Camilla Udo
BMC PALLIATIVE CARE - 2025 -
The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral
Sclerosis
Stefan Nilsson, Nina Malmström, Ingela Nygren, Joakim Öhlén, Birgitta Jakobsson Larsson, Anneli Ozanne
International Journal of Adolescence and Youth - 2025 -
Place of death among children from 0 to 17 years of age: A population-based study from
Sweden
Stefan Nilsson, Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Margaretha Stenmarker, Cecilia Larsdotter
Acta Paediatrica, International Journal of Paediatrics - 2024 -
Palliative care in policy documents for adults with cancer and non-cancer diseases with potential palliative care needs: a document
analysis
Anna O'Sullivan, Linnea Carling, Joakim Öhlén, Stina Nyblom, Anneli Ozanne, Ragnhild Hedman, Carl-Johan Fürst, Cecilia Larsdotter
Palliative Care & Social Practice - 2024 -
Registry study of cardiovascular death in Sweden 2013-2019: Home as place of death and specialized palliative care are the preserve of a
minority
Stina Nyblom, Joakim Öhlén, Cecilia Larsdotter, Anneli Ozanne, Carl Johan Furst, Ragnhild Hedman
INTERNATIONAL JOURNAL OF CARDIOLOGY CARDIOVASCULAR RISK AND PREVENTION - 2024 -
Living with glioblastoma - the need for integrated support based on experiences of chaos, loss of autonomy, and isolation in both patients and their
relatives
Pernilla Ståhl, Ingela Henoch, Bertil Rydenhag, Anja Smits, Anneli Ozanne
SUPPORTIVE CARE IN CANCER - 2024 -
Adolescents' challenging and grief-filled transitions when living with a parent with ALS: A qualitative interpretive
study
Nina Malmström, Joakim Öhlén, Birgitta Jakobsson Larsson, Stefan Nilsson, Ingela Nygren, Peter M. Andersen, Anneli Ozanne
SOCIAL SCIENCE & MEDICINE - 2024 -
Clinical experiences and learning curves from robot-assisted neurosurgical biopsies with Stealth
Autoguide™
Johan Ljungqvist, Hanna Barcheus, Fatima Abbas, Anneli Ozanne, Daniel Nilsson, Alba Corell
NEURO-ONCOLOGY ADVANCES - 2024 -
Global health status and fatigue score in isocitrate dehydrogenase-mutant diffuse glioma grades 2 and 3: A longitudinal population-based study from surgery to 12-month
follow-up
Tomás Gomez Vecchio, Isabelle Rydén, Anneli Ozanne, Malin Blomstrand, Louise Carstam, Anja Smits, Asgeir Store Jakola
NEURO-ONCOLOGY PRACTICE - 2024 -
Trends in the place of death in Sweden from 2013 to 2019-disclosing prerequisites for palliative
care
Cecilia Larsdotter, Stina Nyblom, Hanna Gyllensten, Carl-Johan Furst, Anneli Ozanne, Ragnhild Hedman, Stefan Nilsson, Joakim Öhlén
PALLIATIVE CARE & SOCIAL PRACTICE - 2024 -
Partly unequal receipt of healthcare in last month of life in amyotrophic lateral sclerosis: a retrospective cohort study of the Stockholm
region
Peter Strang, Torbjörn Schultz, Anneli Ozanne
Upsala Journal of Medical Sciences - 2024 -
Deconstructing spiritual care: Discursive underpinnings
within palliative care
research
Emma Lundberg, Joakim Öhlén, Liselott (Lisen) Dellenborg, Anneli Ozanne, Daniel Enstedt
Nursing Inquiry - 2024 -
Living with a parent with ALS-adolescents' need for professional support from the adolescents' and the parents'
perspectives
Nina Malmström, B. J. Larsson, Stefan Nilsson, Joakim Öhlén, I. Nygren, P. M. Andersen, Anneli Ozanne
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration - 2023 -
Place of death among foreign-born individuals: a national population-based register
study.
Emma Lundberg, Anneli Ozanne, Cecilia Larsdotter, Susanna Böling, Liselott (Lisen) Dellenborg, Daniel Enstedt, Joakim Öhlén
Palliative care and social practice - 2023 -
Patients’ long-term perspectives on gains and losses after temporal lobe resection for
epilepsy
Eli B. Kyte, Annette Holth Skogan, Asne Bjøråsen Baklid, Kristina Malmgren, Anneli Olsson Ozanne, Kristin A. Alfstad
Epilepsy and Behavior - 2023 -
Erfarenheter av föräldraskapet när en förälder har diagnosen
ALS
Anneli Ozanne, Nina Malmström, Joakim Öhlén, Birgitta Jakobsson Larsson
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
Being a child of a parent diagnosed with ALS - from the child’s
perspective
Nina Malmström, Birgitta Jakobsson Larsson, Stefan Nilsson, Joakim Öhlén, Ingela Nygren, Anneli Olsson Ozanne
The 7th Public Health Palliative Care International Conference, 20-23 September 2022, Bruges, Belgium - 2022 -
Place of death among foreign-born individuals- a national population-based register
study
Emma Lundberg, Anneli Ozanne, Susanna Böling, Liselott (Lisen) Dellenborg, Daniel Enstedt, Cecilia Larsdotter, Joakim Öhlén
7:e nationella konferensen i palliativ vård, Göteborg 5-7 september 2022 - 2022 -
Strategier för implementering av allmän palliativ vård: en sammanställning av
internationell
forskning
Susanna Böling, Joakim Öhlén, Margareta Brännström, Ingela Henoch, Eva Hessman, Stefan Nilsson, Anneli Ozanne
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
Strategies for implementation of a palliative approach: a scoping
review
Joakim Öhlén, Susanna Böling, Hanan Hamdan Alshehri, Margareta Brännström, Ingela Henoch, Eva Hessman, Stefan Nilsson, Anneli Olsson Ozanne
The 7th Public Health Palliative Care International Conference, 20-23 September 2022, Bruges, Belgium - 2022 -
Plats för död hos utlandsfödda boende I Sverige – en
registerstudie
Emma Lundberg, Joakim Öhlén, Anneli Ozanne
7:e Nationella konferensen i palliativ vård, 5-7 september 2022, Göteborg - 2022 -
Quality of life in patients with glioblastoma and their
relatives.
Pernilla Ståhl, Ingela Henoch, Anja Smits, Bertil Rydenhag, Anneli Ozanne
Acta neurologica Scandinavica - 2022 -
Quality of life among relatives of patients with amyotrophic lateral sclerosis: A prospective and longitudinal
study
B. J. Larsson, Anneli Ozanne, K. Nordin, I. Nygren
Palliative and Supportive Care - 2022 -
Strategies for knowledge translation of a palliative approach outside specialized palliative care services: a scoping
review.
Joakim Öhlén, Susanna Böling, Hanan Hamdan Alshehri, Margareta Brännström, Ingela Henoch, Eva Hessman, Stefan Nilsson, Anneli Ozanne
BMC Palliative Care - 2022 -
Impact of an education program to facilitate nurses' discussions of existential issues in neurological
care.
Anneli Ozanne, Ingela Henoch, Joakim Öhlén, B Jakobsson Larsson, C Melin-Johansson
Palliative & supportive care - 2022 -
Perceived stigma in adults with epilepsy in Sweden and associations with country of birth, socioeconomic status, and mental
health
Klara Andersson, Anneli Ozanne, Johan Zelano, Kristina Malmgren, John Chaplin
Epilepsy & Behavior - 2022 -
Multiple stigma among first-generation immigrants with epilepsy in
Sweden
Klara Andersson, Susann Strang, Johan Zelano, John Chaplin, Kristina Malmgren, Anneli Ozanne
Epilepsy and Behavior - 2021 -
Experiences of emotional and psychosocial functioning after frontal lobe resection for
epilepsy
U. H. Graneheim, Sofia Ljunggren, Stefan Winblad, Kristina Malmgren, Anneli Ozanne
Epilepsy & Behavior - 2021 -
Shared decision-making in neurosurgery: a scoping
review.
Alba Corell, Annie Guo, Tomás Gomez Vecchio, Anneli Ozanne, Asgeir Store Jakola
Acta neurochirurgica - 2021 -
Health-related quality of life and emotional well-being connected to glioblastoma; a longitudinal follow-up of patients and
relatives
Pernilla Ståhl, Ingela Henoch, Anja Smits, Bertil Rydenhag, Anneli Ozanne
Neuro-Oncology - 2021 -
Health-related Quality of Life and Emotional Well-being Connected to Glioblastoma; A Longitudinal Follow-up Study Involving the Patients’
Relatives
Pernilla Ståhl, Ingela Henoch, Anja Smits, Bertil Rydenhag, Anneli Ozanne
Abstracts from the 17th World Congress of the EAPC 2021. Palliative Medicine. 2021;35(1_suppl):1-243. doi:10.1177/02692163211035909 - 2021 -
Valproic acid and socioeconomic associations in Swedish women with epilepsy
2010-2015
Klara Andersson, Anneli Ozanne, Kristian Bolin, T. Tomson, Johan Zelano
Acta Neurologica Scandinavica - 2021 -
Strategies for knowledge translation of a palliative approach outside specialized palliative care services: a scoping
review
Joakim Öhlén, Hanan Hamdan Alshehri, Margareta Brännström, Susanna Böling, Ingela Henoch, Eva Hessman, Stefan Nilsson, Anneli Ozanne
17th World Congress of the European Association for Palliative Care (EAPC) Online, Oc-tober 6-8 - 2021 -
Socioeconomic outcome and access to care in adults with epilepsy in Sweden: A nationwide cohort
study.
Klara Andersson, Anneli Ozanne, Anna Edelvik Tranberg, John Chaplin, Kristian Bolin, Kristina Malmgren, Johan Zelano
Seizure - 2020 -
Struggling for a Dignified Life: The Meaning of Self-Determination in Palliative Phase in Residential
Care
Ramona Schenell, Susann Strang, Ingela Henoch, Anneli Olsson Ozanne
International journal for human caring - 2020 -
Residents' and family members' perceptions of care quality and self-determination in palliative phase in residential
care.
Ramona Schenell, Anneli Ozanne, Susann Strang, Ingela Henoch
Palliative & supportive care - 2020 -
To make and execute decisions throughout life: A person-centred model that facilitates self-determination in residential care, developed through participatory
research
Ramona Schenell, Anneli Ozanne, Susann Strang, Ingela Henoch
Applied Nursing Research - 2020 -
Health-related quality of life and emotional well-being in patients with glioblastoma and their
relatives.
Pernilla Ståhl, Boglarka Fekete, Ingela Henoch, Anja Smits, Asgeir Store Jakola, Bertil Rydenhag, Anneli Ozanne
Journal of neuro-oncology - 2020 -
Struggling for a Dignified Life: The Meaning of Self-determination in Residential
Care
Ramona Schenell, Ingela Henoch, Susann Strang, Anneli Ozanne
International Journal for Human Caring - 2020 -
Symptom relief during last week of life in neurological
diseases
Anneli Ozanne, Richard Sawatzky, C. Hakanson, A. Alvariza, C. J. Furst, K. Arestedt, Joakim Öhlén
Brain and Behavior - 2019 -
Balancing between maintaining and overriding the self: Staff experiences of residents' self-determination in the palliative
phases
Ramona Schenell, Anneli Ozanne, Susann Strang, Ingela Henoch
International Journal of Older People Nursing - 2019 -
The Gothenburg population-based glioblastoma research database: Methodological aspects and potential
impact
Boglarka Fekete, Katja Werlenius, Helena Carén, Anneli Ozanne, Lars Rosengren, Henrik Zetterberg, Magnus Tisell, Anja Smits, Fredrik Pontén, Cecilia Lindskog, Thomas Olsson Bontell, Asgeir Store Jakola, Bertil Rydenhag
Neurology and Neurosurgery - 2019
More publications
We have limited the number of publications on this page. Visit GUP (The Publication Database for Gothenburg University) to find more publications.