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John Chaplin
Affiliated to Research
Department of PediatricsAbout John Chaplin
John Chaplin is an Associate Professor and Health Psychologist working in the Sahlgrenska Academy at the University of Gothenburg, and the Swedish Assoc. Local Authorities and Regions. He received his training at Warwick, Cranfield and City of London Universities. He has extensive experience in the development and assessment of patient reported outcome measurement (PROM) for child and adult health.
He has worked on a multinational basis and has worked with the European Union on issues of quality-of-life in children in the DISABKIDS and Kidscreen projects and led a European group investigating the empowerment of children and families in relation to participation in clinical trials following the EU Paediatric Regulation. He has worked with different medical conditions and was made an Ambassador for Epilepsy by the International Society Against Epilepsy. He has supervised post-graduate students to PhD level in Sweden, China and Germany.
He is currently leading two projects, one at the centre for Person Centred Care in Gothenburg concerning the development of a toolbox of instruments to aid health-care staff evaluate their health-care provision according to the principles of a person centred care approach. The second project is the translation and implementation of a patient reported outcome system (PROM) for implementation into the Swedish healthcare system and health care registries. This involves contact with projects throughout Sweden concerning validation and implementation of the system.
He lectures on the Global and Public Health at Gothenburg University on statistics and health research and supervises medical and public health students at the Sahgrenska Academy. He has been a member of the International Society of Quality of Life (ISOQOL) for many years and is the current chair of the Child-Special Interest Group. He is the PROMIS National Coordinator (PNC) for Sweden, chairman of the International PROMIS National Coordinators’ committee and was elected to the PROMIS Health Organisation steering committee in 2019. He is also a member of the ICHOM Overall Adult and Paediatric Health Steering Committees.
John Chaplin has published 74 articles on quality of life measurement in peer-reviewed journals, published a book on patient empowerment in clinical trials and contributed several chapters on quality of life issues to other publications. He is also an assistant editor of the International Journal of Environmental Research and Public Health and has contributed to advisory boards and scientific committees.
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"The big win was that we actually cooked"- a qualitative interview study about the parental experience of Family Meals on Prescription for children living with
obesity
Terese Torstensson, Gerd Almqvist-Tangen, Shawnee Waters, Jenny Kindblom, Josefine Roswall, John Chaplin, Lovisa Sjögren
JOURNAL OF HEALTH POPULATION AND NUTRITION - 2025 -
Principles of good practice for translation of electronic clinical outcome
assessments
Huda Shalhoub, M. Turner, A. Bradley-Gilbride, S. Eremenco, H. Muehlan, E. Parks-Vernizzi, B. Arnold, D. Kulis, C. Anfray, John Chaplin, J. P. Repo
JOURNAL OF PATIENT-REPORTED OUTCOMES - 2025 -
Psychometric properties and post-hoc CAT analysis of the pediatric PROMIS® item banks anxiety and depressive symptoms in a combined Swedish Child and Adolescent Psychiatry and School
sample
Ida Blomqvist, John Chaplin, Eva Henje, Inga Dennhag
QUALITY OF LIFE RESEARCH - 2025 -
Validity and reliability of the Swedish version of the Visual CARE Measure for assessing children's perceptions of nurses'
empathy.
Angelica Wiljén, John Chaplin, Stefan Nilsson, Katarina Karlsson, Joakim Öhlén, Anneli Schwarz
European Journal of Pediatrics - 2025 -
Comparable Real-World Patient-Reported Outcomes Data Across Health Conditions, Settings, and Countries: The PROMIS International
Collaboration
Caroline B. Terwee, Sara Ahmed, Rehab Alhasani, Jordi Alonso, Susan J. Bartlett, John Chaplin, Juhee Cho, Heeseung Choi, Helena Correia, Fabio Efficace, Felix Fischer, Wojciech Glinkowski, Danbee Kang, Rebecca Mercieca-Bebber, Istvan Mucsi, Takeko Oishi, Ay-Woan Pan, Leo D. Roorda, Matthias Rose, Benjamin D. Schalet, Sein Schmidt, Melissa Tinsley, Jose M. Valderas, Gemma Vilagut, Changrong Yuan, David Cella
NEJM CATALYST INNOVATIONS IN CARE DELIVERY - 2024 -
Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Infants, Children, and Adolescents with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus
Recommendations
James W. Mitchell, Frieda Sossi, Isabel Miller, Paula Blancarte Jaber, Zofia Das-Gupta, Luz Sousa Fialho, Action Amos, Joan K. Austin, Scott Badzik, Gus Baker, Bruria Ben Zeev, Jeffrey Bolton, John Chaplin, J. Helen Cross, Derrick Chan, Christian A. Gericke, Aatif M. Husain, Lorraine Lally, Sharon Mbugua, Cassidy Megan, Tomás Mesa, Lilia Nuñez, Tim J. von Oertzen, Emilio Perucca, Angie Pullen, Gabriel M. Ronen, Martha Sajatovic, Mamta B. Singh, Jo M. Wilmshurst, Leonie Wollscheid, Anne T. Berg
Epilepsia - 2024 -
Weight Stigma in Latin America, Asia, the Middle East, and Africa: A Scoping
Review
Laura Ann Eggerichs, Oliver W. A. Wilson, John Chaplin, Ximena Ramos Salas
OBESITY FACTS - 2024 -
Development of an International Standard Set of Outcomes and Measurement Methods for Routine Practice for Adults with Epilepsy: The International Consortium for Health Outcomes Measurement Consensus
Recommendations
James W. Mitchell, Frieda Sossi, Isabel Miller, Paula Blancarte Jaber, Zofia Das-Gupta, Luz Sousa Fialho, Action Amos, Joan K. Austin, Scott Badzik, Gus Baker, Bruria Ben Zeev, Jeffrey Bolton, John Chaplin, J. Helen Cross, Derrick Chan, Christian A. Gericke, Aatif M. Husain, Lorraine Lally, Sharon Mbugua, Cassidy Megan, Tomas Mesa, Lilia Nunez, Tim J. von Oertzen, Emilio Perucca, Angie Pullen, Gabriel M. Ronen, Martha Sajatovic, Mamta B. Singh, Jo M. Wilmshurst, Leonie Wollscheid, Anne T. Berg
EPILEPSIA - 2024 -
Exploring the limitations of language interpretation: A qualitative study on clinicians’ experiences at French Office of Immigration and
Integration
Carter Brown, Guillaume Roucoux, Svetlane Dimi, Saleh Fahmi, Raj Banou Jeevan, Olivier Chassany, John Chaplin, Martin Duracinsky
PLOS Global Public Health - 2023 -
Method considerations and study protocol for a Nordic multi-centre prospective study on outcomes in rare paediatric epilepsy surgery
subgroups
Jesper Reinholdson, Kristina Malmgren, John Chaplin, Ingrid Olsson, Tove Hallböök
Acta Paediatrica - 2023 -
Evaluating Clinician Expectations of mHealth Solutions to Increase Rapid-Screening for HIV and Hepatitis in Migrant Populations in France: Qualitative
Study
C. Brown, G. Roucoux, S. Dimi, S. Fahmi, R. B. Jeevan, O. Chassany, John Chaplin, M. Duracinsky
JMIR Human Factors - 2023 -
Portuguese translation, cultural adaptation, and validation of the Person-Centred Practice Inventory - Staff
(PCPI-S)
F. Ventura, P. Costa, John Chaplin, I. Domingues, R. J. Ferreira, B. McCormack, P. Parreira, L. B. Sousa
Ciencia & Saude Coletiva - 2023 -
Fostering Patient-Clinician Communication to Promote Rapid HIV, Hepatitis B Virus, and Hepatitis C Virus Diagnostic Testing: Conceptual Development of a Multilingual
App
Carter Brown, Guillaume Roucoux, Olivia Rousset-Torrente, Saleh Ali, Lisa Yombo-Kokule, John Chaplin, Olivier Chassany, Martin Duracinsky
JMIR Formative Research - 2023 -
Validation of the Swedish version of PROMIS-29v2 and FACIT-Dyspnea Index in patients with systemic
sclerosis
D. M. Wuttge, John Chaplin, G. Sandqvist
Disability and Rehabilitation - 2023 -
The Development of an mHealth Tool for Children With Long-term Illness to Enable Person-Centered Communication: User-Centered Design
Approach.
Angelica Wiljén, John Chaplin, Vanessa Crine, William Jobe, Ensa Johnson, Katarina Karlsson, Tomas Lindroth, Anneli Schwarz, Margaretha Stenmarker, Gunilla Thunberg, Joakim Öhlén, Stefan Nilsson
JMIR pediatrics and parenting - 2022 -
Perceived stigma in adults with epilepsy in Sweden and associations with country of birth, socioeconomic status, and mental
health
Klara Andersson, Anneli Ozanne, Johan Zelano, Kristina Malmgren, John Chaplin
Epilepsy & Behavior - 2022 -
Features of childhood growth, lifestyle and environment associated with a cardiometabolic risk score in young
adults.
Staffan Mårild, Agneta Sjöberg, Kerstin Albertsson-Wikland, John Chaplin, Lauren Lissner, Jovanna Dahlgren
Obesity facts - 2022 -
A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in
Adults
J. Gangannagaripalli, A. Albagli, S. N. Myers, S. Whittaker, A. Joseph, A. Clarke, L. Matkin, J. Alonso, I. Byock, M. van den Berg, C. Canfield, John Chaplin, J. Dapueto, M. P. D. Fleck, C. Sidey-Gibbons, J. Hazelzet, R. Hess, K. Immonen, S. Joyner, C. Katz, C. Kerrigan, C. Lam, J. Lunn, F. McKenzie, A. Roeves, C. Stowell, T. Switaj, M. Tinsley, E. Zimlichman, J. M. Valderas
Patient-Patient Centered Outcomes Research - 2022 -
Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional
study.
Stefanie Witt, Michaela Dellenmark-Blom, Susanne Kuckuck, Jens Dingemann, Kate Abrahamsson, Carmen Dingemann, John Chaplin, Benno Ure, Monika Bullinger, Vladimir Gatzinsky, Linus Jönsson, Julia Hannah Quitmann
Orphanet journal of rare diseases - 2021 -
Evaluating pictorial support in person-centred care for children (PicPecc): a protocol for a crossover design
study.
Stefan Nilsson, Angelica Wiljén, Jonas Bergquist, John Chaplin, Ensa Johnson, Katarina Karlsson, Tomas Lindroth, Anneli Schwarz, Margaretha Stenmarker, Gunilla Thunberg, Linda Esplana, Eva Frid, Malin Haglind, Angelica Höök, Joakim Wille, Joakim Öhlén
BMJ open - 2021 -
Multiple stigma among first-generation immigrants with epilepsy in
Sweden
Klara Andersson, Susann Strang, Johan Zelano, John Chaplin, Kristina Malmgren, Anneli Ozanne
Epilepsy and Behavior - 2021 -
Development of an international standard set of patient-centred outcome measures for overall paediatric health: a consensus
process
Beatrix Algurén, Jessily P Ramirez, Matthew Salt, Nick Sillett, Stacie N Myers, Albie Alvarez-Cote, Nancy J Butcher, Luiz F Caneo, Jaime A Cespedes, John Chaplin, Kee Chong Ng, Juan J Garcia-Garcia, Jan A Hazelzet, Anne F Klassen, Aida Luiza R Turquetto, Emma J Mew, Michael Morris, Martin Offringa, Matthew O'Meara, James M Papp, Carlos Rodrigo, Timothy L Switaj, Catalina Valencia Mayer, Kathy J Jenkins
Archives of Disease in Childhood - 2021 -
Stakeholder engagement in the design and conduct of pragmatic randomized
trials
T. W. Concannon, K. Stem, John Chaplin, C. J. Girman
Pragmatic Randomized Clinical Trials. Using Primary Data Collection & Electronic Health Records. Cynthia J. Girman and Mary Elizabeth Ritchey (red.) - 2021 -
Psychometrics of three Swedish physical pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)(R): pain interference, fatigue, and physical
activity
F. C. Rindestig, M. Wiberg, John Chaplin, E. Henje, I. Dennhag
Journal of Patient-Reported Outcomes - 2021 -
Swedish translation and cross-cultural adaptation of eight pediatric item banks from the Patient-Reported Outcomes Measurement Information System
(PROMIS)(R)
I. Blomqvist, John Chaplin, E. Nilsson, E. Henje, I. Dennhag
Journal of Patient-Reported Outcomes - 2021 -
Socioeconomic outcome and access to care in adults with epilepsy in Sweden: A nationwide cohort
study.
Klara Andersson, Anneli Ozanne, Anna Edelvik Tranberg, John Chaplin, Kristian Bolin, Kristina Malmgren, Johan Zelano
Seizure - 2020 -
Health-related quality-of-life among patients with premature ovarian insufficiency: a systematic review and
meta-analysis
X. T. Li, P.Y. Li, Y. Liu, H. S. Yang, L. Y. He, Y. G. Fang, J. Liu, B. Y. Liu, John Chaplin
Quality of Life Research - 2020 -
Registered reports and paediatric
research
John Chaplin, H. Muehlan, R. Arbuckle
Quality of Life Research - 2020 -
Microbial invasion of the amniotic cavity is associated with impaired cognitive and motor function at school age in preterm
children.
Anna Thorell, Maria Hallingström, Henrik Hagberg, Ing-Marie Fyhr, Panos Tsiartas, Ingrid Olsson, John Chaplin, Carina Mallard, Bo Jacobsson, Karin Sävman
Pediatric research - 2020 -
Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish
Cohort.
Sofie Flieder, Michaela Dellenmark-Blom, Stefanie Witt, Carmen Dingemann, Julia H Quitmann, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Barbara Gómez Dammeier, Monika Bullinger, Benno M Ure, Kate Abrahamsson, Jens Dingemann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2019 -
Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group
study.
Stefanie Witt, Maria Dellenmark-Blom, Sofie Flieder, Jens Dingemann, Kate Abrahamsson, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Benno Ure, Carmen Dingemann, Monika Bullinger, Rachel Sommer, Julia Hannah Quitmann
Child: care, health and development - 2019 -
The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific
approach
Michaela Dellenmark-Blom, John Chaplin, J. H. Quitmann, L. Jönsson, V. Gatzinsky, J. Dingemann, Kate Abrahamsson
Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus - 2019 -
Health literacy in a complex digital media landscape: Pediatric obesity patients’ experiences with online weight, food, and health
information
Christopher Holmberg, Christina Berg, Jovanna Dahlgren, Lauren Lissner, John Chaplin
Health Informatics Journal - 2019 -
A population-based and case-controlled study of children and adolescents with narcolepsy: Health-related quality of life, adaptive behavior and parental
stress
Attila Szakacs, John Chaplin, P. Tideman, Ulf Strömberg, J. Nilsson, Tove Hallböök, Niklas Darin
European Journal of Paediatric Neurology - 2019 -
PROMIS - så kan vi dokumentera individens behov på ett tillförlitligt sätt i
journalsystem
Beatrix Algurén, John Chaplin
Vitalis - Nordens ledande eHälsomöte - 2019 -
The Esophageal-Atresia-Quality-of-life Questionnaires: Feasibility, Validity and Reliability in Sweden and
Germany.
Michaela Dellenmark-Blom, Jens Dingemann, Stefanie Witt, Julia H Quitmann, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Monika Bullinger, Sofie Flieder, Benno M Ure, Carmen Dingemann, Kate Abrahamsson
Journal of pediatric gastroenterology and nutrition - 2018 -
Empowering aspects for healthy food and physical activity habits: adolescents' experiences of a school-based intervention in a disadvantaged urban
community.
Christopher Holmberg, Christel Larsson, Peter Korp, Eva-Carin M Lindgren, Linus Jonsson, Andreas Fröberg, John Chaplin, Christina Berg
International Journal of Qualitative Studies on Health and Well-being - 2018 -
Self-presentation in digital media among adolescent patients with obesity: Striving for integrity, risk-reduction, and social
recognition
Christopher Holmberg, Christina Berg, Thomas Hillman, Lauren Lissner, John Chaplin
Digital Health - 2018 -
What intervention aspects do adolescents perceive as most influential? Exploring participants’ experiences of a health promoting intervention focusing on food and physical activity, set in a multicultural and low socioeconomic area in
Sweden
Christopher Holmberg, Christel Larsson, Peter Korp, Eva-Carin M Lindgren, Linus Jonsson, Andreas Fröberg, John Chaplin, Christina Berg
ISBNPA, International Society of Behavioral Nutrition and Physical Activity, annual meeting in Hong Kong - 2018 -
Using social media in the clinical setting: Experiences of visual self-presentation among adolescent patients with
obesity
Christopher Holmberg, Christina Berg, Thomas Hillman, Lauren Lissner, John Chaplin
Obesity Facts - 2018 -
The development of a health-related quality-of-life instrument for young people with narcolepsy:
NARQoL-21
John Chaplin, Attila Szakacs, Tove Hallböök, Niklas Darin
Health and Quality of Life Outcomes - 2017 -
Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal
atresia.
Michaela Dellenmark-Blom, Kate Abrahamsson, J H Quitmann, R Sommer, S Witt, J Dingemann, S Flieder, Linus Jönsson, V Gatzinsky, M Bullinger, B M Ure, C Dingemann, John Chaplin
Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus - 2017 -
Declining Well-Being in Young Swedes Born in 1990 Versus
1974
Ebba Brann, John Chaplin, Monica Leu Agelii, Agneta Sjöberg, Aimon Niklasson, Kerstin Albertsson-Wikland, Lauren Lissner
The Journal of adolescent health : official publication of the Society for Adolescent Medicine - 2017 -
Experiencing health-related quality of life in paediatric short stature - a cross-cultural analysis of statements from patients and
parents
R. Sommer, M. Bullinger, John Chaplin, J. K. Do, M. Power, A. Pleil, J. Quitmann
Clinical Psychology and Psychotherapy - 2017 -
Health literacy in a multimodal online digital media landscape: From the perspective of pediatric patients with
obesity
Christopher Holmberg, Christina Berg, Jovanna Dahlgren, Lauren Lissner, John Chaplin
Annual meeting 2017 - International Society of Behavioral Nutrition and Physical Activity (ISBNPA) - 2017 -
How adolescent patients enrolled in an outpatient pediatric obesity clinic experience online weight-, food-, and health
information
Christopher Holmberg, Christina Berg, Jovanna Dahlgren, Lauren Lissner, John Chaplin
Obesity Facts, Vol. 10, Suppl. 1 - 2017 -
Health-related quality of life experiences among children and adolescents born with esophageal atresia: Development of a condition-specific questionnaire for pediatric
patients.
Michaela Dellenmark-Blom, John Chaplin, Vladimir Gatzinsky, Linus Jönsson, Helena Wigert, Jeanette Apell, Ulla Sillén, Kate Abrahamsson
Journal of pediatric surgery - 2016 -
Hur och vad för mat presenterar ungdomar i sociala medier? En studie av
Instagram
Christopher Holmberg, Thomas Hillman, John Chaplin, Christina Berg
Dietistaktuellt - 2016 -
Adolescents' presentation of food in social media: an explorative
study
Christopher Holmberg, John Chaplin, Thomas Hillman, Christina Berg
Appetite - 2016 -
Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent
perspective
Michaela Dellenmark-Blom, John Chaplin, Linus Jönsson, Vladimir Gatzinsky, J. H. Quitmann, Kate Abrahamsson
Child Care Health and Development - 2016
More publications
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