2025
Barchéus H, Corell A, Blomstrand M, Olsson Bontell T, Carén H, Ozanne A, Jakola A S, Smits A, Ljungqvist J. Surgical biopsy techniques in neurosurgery: A four-year population-based study of frameless and frame-based procedures. Interdisciplinary Neurosurgery: Advanced Techniques and Case Management. Accepted 20251213.
Carstam, L., Vecchio, T. G., Lyczak, M., Aberg, H., Jakola, A. S., Jennische, E., Lange, S., & Gatzinsky, K. (2025). Antisecretory factor for treatment of peritumoral edema in glioblastoma patients. Acta Neurochir (Wien), 167(1), 64. doi:10.1007/s00701-025-06481-z
Crepalde PAF, Garcia de Avila MA, Minharro MCO, Castro MCN, Teixeira TRF, Hamamoto Filho PT, Nilsson S. Assessment of Brazilian children’s anxiety during the second year of the COVID-19 pandemic through cross-sectional interviews at schools. Front. Public Health. 2025:13:1522105.
Ejnell Bjursell J, Wigert H, Patriksson K, Nilsson S. Screening tools used by paediatric healthcare providers to identify child maltreatment by parents or caregivers: a systematic review. BMJ Open. 2025 Aug 4;15(8):e101721.
Forsgren E, Feldthusen C, Wallström S, Björkman I, Bergholtz J, Friberg F & Öhlén J. (2025). Learning from the implementation of person-centred care: a meta-synthesis of research related to the Gothenburg framework. Frontiers in Health Services, 5, 1589502.
Forsgren E, Feldthusen C, Wallström S, Thunström L, Kullman L, Sawatzky R, & Öhlén J. (2025) Person-centred care as an evolving field of research: A scoping review. Frontiers in Health Services, 5, 1534178.
Harvey BP, Barenfeld E, Öhlén J, Bergholtz J, Orre CJ, Lindroth T & Gyllensten H. (2025). Core outcomes for the evaluation of new healthcare programmes–a modified Delphi study. BMC Health Services Research, 25, 758.
Hjorth A, Ashtiani S H, Idegård A, Ozanne A, Zelano J. Clinical and demographic predictors of high epilepsy care utilization: mode of interaction, professionals involved, and reasons for contact. Seizure. Accepted 2025 Oct.
Hjorth A, Andersson K, Bratt E-L, Malmgren K, Tranberg Edelvik A, Zelano J, Ozanne A. Development of a support intervention model for epilepsy care in outpatient clinics. Epilepsy & Behav. 2025; 24;171:110485. doi: 10.1016/j.yebeh.2025.110485
Höök A, Hylén M, Björk M, Nilsson S, Bai J, Berlin H, Hansson H, Kristjánsdóttir G, Roxner R, Stenström P, Castor C. The Electronic Faces Thermometer Scale (eFTS)-Construct Validity for Pain Assessment in Pediatric Postoperative Care in Sweden. Paediatr Anaesth. 2025 Dec;35(12):1029-1036. doi: 10.1111/pan.70056.
Imberg, H., Olsson, M. M., Öhlén, J., Larsdotter, C., Waern, M., & Holmberg, C. Violent suicide methods across life stages-a national population-based register study. Frontiers in Psychiatry, 16, 1715801.
Jenholt Nolbris M, Ström J, Wiberg J, Nilsson S, Swolin-Eide D, Berghammer M. Nurses' experiences of providing digital and in-person healthcare support to children living with complex chronic conditions, J Pediatr Nurs, 2025 Mar 8:82:102-108.
Jensdottir, M., Solheim, O., Corell, A., de Dios, E., Dunas, T., Fletcher-Sandersjoo, A., Gulati, S., Holmgren, K., Latini, F., Mahesparan, R., Milos, P., Neimantaite, A., Redebrandt, H. N., Pedersen, L. K., Sjoberg, R. L., Sjogren, B., Tomasevic, G., Tveiten, O. V., Vecchio, T. G., Zetterling, M., Bartek, J., Jr., & Jakola, A. S. (2025). Patient selection and outcome in low-grade glioma surgery. Front Oncol, 15, 1703756. doi:10.3389/fonc.2025.1703756
Kuyler A, Höök A, Forsgren E, Nilsson S, Clasquin-Johnson MG, Johnson E. Using a co- design approach to adapt a paediatric person-centred care training programme: Perspectives of paediatric healthcare practitioners. J Pediatr Nurs. 2025 Jul 24;85:112-120.
Lagerin A, Melin-Johansson C, Holmberg B, Godskesen T, Hjorth E, Junehag L, Lundh Hagelin C, Ozanne A, Sundelöf J, Udo C. Interdisciplinary strategies for establishing a trusting relation as a pre-requisite for existential conversations in palliative care: a grounded theory study. BMC Palliat Care. 2025;19;24(1):47, 1-11. https://doi.org/10.1186/s12904-025-01681-x
Latini, F., Fahlstrom, M., Neimantaite, A., Gomez Vecchio, T., Corell, A., Solheim, O., Gulati, S., Milos, P., Sjogren, B., Kjelsberg Pedersen, L., Lipatnikova, A., Holmgren, K., Sjoberg, R. L., Nittby Redebrandt, H., Tomasevic, G., Mahesparan, R., Vesterli Tveiten, O., Thurin, E., Jensdottir, M., Bartek, J., Zetterling, M., & Jakola, A. S. (2025). Unravelling differences and hallmarks in suspected diffuse low-grade gliomas: a multicentre database study. Brain Commun, 7(5), fcaf368. doi:10.1093/braincomms/fcaf368
Malmström N, Öhlén J, Nilsson S, Nygren I, Andersen P M, Jakobsson Larsson B & Ozanne A. (2025). Transformed Parenthood in the Face of ALS: A Profound Struggle for Both Ill Parents and Co-parents. Global Qualitative Nursing Research, 12, 23333936251348143.
Neimantaite, A., Gomez Vecchio, T., Ryden, I., Harba, D., Jakola, A. S., & Smits, A. (2025). Mental fatigue and cognitive functioning in patients presenting with non-enhancing gliomas. Acta Neurochir (Wien), 167(1), 63. doi:10.1007/s00701-025-06434-6
Neimantaite, A., Carstam, L., Gomez Vecchio, T., Haggstrom, I., Dunas, T., Latini, F., Zetterling, M., Blomstrand, M., Bartek, J., Jensdottir, M., Thurin, E., Smits, A., & Jakola, A. S. (2025). Survival prediction with radiomics for patients with IDH mutated lower-grade glioma. J Neurooncol, 173(3), 505-514. doi:10.1007/s11060-025-05006-z
Nilsson S, Hansson H, Moons P, Onerup A, Saarijärvi M, Sabel M, Bratt EL. Is this the road to health? - the person in precision health. Eur J Cardiovasc Nurs. 2025 Sep 5;24(6):988-995.
Nilsson S, Malmström N, Nygren I, Öhlén J, Jakobsson Larsson B & Ozanne A. (2025). The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis. International Journal of Adolescence and Youth, 30(1), 2454991.
Olsson, M. M., Holmberg, C., Larsdotter, C., Nyblom, S., & Öhlén, J. (2025). Place of death and healthcare utilisation at the end of life among individuals with mental and behavioural disorders as underlying cause of death: population-level multiple-register study. BJPsych Open, 11(1), e14.
Ozanne A, Öhlén J, Nyblom S, Jakola AS, Smits A & Larsdotter C. (2025). Disparities in end-of-life care and place of death in people with malignant brain tumors—A Swedish registry study. Neuro-Oncology Practice, 12(3), 511-519.
Rullander A-C, Bray L, Darcy L, Edwinson Månsson M, Karlsson K, Nilsson S, Forsner M. Swedish translation of the iSUPPORT rights-based standards to support paediatric patients having a clinical procedure. Acta Paediatr. 2025;114(2), 445–447.
Sawatzky R, Schick-Makaroff K, Ratner PA, Kwon JY, Whitehurst DG, Öhlén J, Maybee A, Stajduhar K, Zettes-Zanatta L & Cohen SR. (2025). Did a digital quality of life (QOL) assessment and practice support system in home health care improve the QOL of older adults living with life-limiting conditions and of their family caregivers? A mixed-methods pragmatic randomized controlled trial. PLoS One, 20(5), e0320306.
Sernbo E, Weber M, Öhrling C & Nyblom S. (26 Jul 2025). Demystifying dying in end-of-life-care: A phenomenological perspective, Death Studies, DOI: 10.1080/07481187.2025.2537971
Solano GV, Kos E, Wennergren M, Cavefors AF, Räntfors J, Nilsson S. An Area-Level Study on Paediatric Burn Injuries and Their Association With Parental Education. Public Health Chall. 2025 Sep 2;4(3):e70113.
Son C, Forsgren E, Öhlén J & Sawatzky R. (2025). Person-centred care for migrants: A narrative review of health care literature. Frontiers in Health Services, 5, 1573813.
Wiljén A, Chaplin J, Nilsson S, Karlsson K, Öhlén J & Schwarz A. (2025). Validity and reliability of the Swedish version of the Visual CARE Measure for assessing children’s perceptions of nurses’ empathy. European Journal of Pediatrics, 184(2), 145.
Öhlén J, Nyblom S, Ozanne A, Nilsson S, Gyllensten H, Fürst CJ & Larsdotter C. (2025). Influence of palliative care policy on place of death for people with different cancer types: a nationwide’register study. PloS One, 20(3), e0320086.
Reports
Öhlén J, Nyblom S, Ozanne A, Hedman R, Nilsson S, Gyllensten H, Fürst CJ & Larsdotter C. (2025) Förutsättningar för jämlik personcentrerad palliativ vård(Acta Universitatis Gothoburgensis, Gothenburg Series in Person-Centred Care, 7). Centrum för personcentrerad vård vid Göteborgs universitet. https://gupea.ub.gu.se/handle/2077/90107
Book chapters
Öhlén, J. & Friberg, F. (2025). Person. I: L. Marmstål Hammar m.fl. (Red.), Omvårdnadens grunder: perspektiv och förhållningssätt (4:e omarb. uppl., s. 185-200). Studentlitteratur.
Öhlén, J. & Friberg, F. (2025). Personcentrerade samtal. I: B. Fossum (red.), Kommunikation: samtal och bemötande i vården (4:e uppl., s. 143-170). Studentlitteratur.
Öhrling C & Sernbo E. (2025) Om kommunikation, kropp och allt det som talar. I: J.Lundälv & E.Seernbo (red), Ohälsa som socialt problem. Socionomers arbete med hälsa och ohälsa (s. 169-194). Studentlitteratur.
Nationella tidskrifter
Bergholtz J, Filipsson Nyström H, Nilsson S, Carlström E, Öhlén J & Wolf A. (2025) Personcentrerad vård handlar om strävan efter partnerskap. Dagens Medicin (19), 23.
Öhlén J. (2025) Ny samtalsmodell – enkelt tilltal döljer brister. Palliativ vård (1), 36-37.
Öhlén J. (2025) Tidiga samtal krävs för personer med kognitiv sjukdom. Palliativ vård (4), 36-37.
2024
Sorg efter förlust av närstående: Utveckling av stödformer för ökat välbefinnande och trygghet Benkel I, Skoglund J, Enstedt D, Hård af Segerstad Y, Öhlén J, & Nyblom S. (2024). Understanding the needs for support and coping strategies in grief following the loss of a significant other: insights from a cross-sectional survey in Sweden. Palliative Care and Social Practice, 18, 26323524241275699.
Religiös litteracitet och möten inom palliativ vård Lundberg E, Ozanne A, Dellenborg L, Öhlén J & Ensted D. (2024). Navigating Complexity: Spiritual Care Discourses Among Swedish Palliative Care Professionals. Journal of Religion and Health, 1-25.
Lundberg E, Öhlén J, Dellenborg L, Ozanne A & Enstedt D. (2024). Deconstructing spiritual care: Discursive underpinnings within palliative care research. Nursing Inquiry, e12622.
Lundberg, E. (2024) ‘Religious literacy and person-centred care’, in Culture, Spirituality and Religious Literacy in Healthcare. 1st edn. Routledge, pp. 145–160. Available at: https://doi.org/10.4324/9781003450573-11.
Familjestöd vid ALS Malmström N, Öhlén J, Larsson B J, Nilsson S, Nygren I, Andersen P M & Ozanne A. (2024). Adolescents’ challenging and grief-filled transitions when living with a parent with ALS: A qualitative interpretive study. Social Science & Medicine, 117063.
Teoretisk utveckling av personcentrerad vård: Systematisk genomgång och analys av vetenskaplig litteratur Wolf A, Forsgren E, Björkman I, Edvardsson D & Öhlén J (Eds). (2024). Towards State of the Science in Person-Centred Care. University of Gothenburg Centre for Person-Centred Care. https://gupea.ub.gu.se/handle/2077/83906
Kirvalidze M, Boström AM, Liljas A, Doheny M, Hendry A, McCormack B, Fratiglioni L, Ali S, Ebrahimi Z, Elmståhl S, Eriksdotter M, Gläske P, Gustafsson LK, Rundgren ÅH, Hvitfeldt H, Lennartsson C, Hammar LM, Nilsson GH, Nilsson P, Öhlén J, Sandgren A, Söderman A, Swedberg K, Vackerberg N, Vetrano DL, Wijk H, Agerholm J, Calderón-Larrañaga A. (2024). Effectiveness of integrated person‐centered interventions for older people's care: Review of Swedish experiences and experts’ perspective. Journal of Internal Medicine, 295(6), 804-824.
Implementering av palliativ vård på sjukhus: Palliativa konsultteam Böling S, Gyllensten H, Engström M, Lundberg E, Berlin J & Öhlén J. (2024). Palliative care consultation in the last week of life and associated factors: a scross-sectional general population study, Palliative Care and Social Practice, 18, 26323524241293818.
Stödintervention för personer med malign hjärntumör och deras närstående Ståhl P, Henoch I, Rydenhag B, Smits A, Ozanne A. (2024) Living with glioblastoma – the need for integrated support based on experiences of chaos, loss of autonomy and isolation in both patients and their relatives. Supportive Care in Cancer, 32, 599
Verbal och icke-verbal kommunikation i samtal Öhrling, C., Sernbo, E., Benkel, I., Molander, U., & Nyblom, S. “They must have seen it, you know.” Body talk, extension talk, and action talk: A qualitative study on how palliative care patients and their significant others express experiencing these nonverbal cues. PloS One. 2024;19(4): https://doi.org/10.1371/journal.pone.0299112
Samtal om existentiella frågor Bäckersten C, Nyblom S, Molander U and Benkel I. To talk or not to talk about existential questions – An interview study with elderly persons and patients with fatal disease. American Journal of Hospice and Palliative Medicine. 2024;0(0). OnlineFirst. https://doi.org/10.1177/10499091241276862
Bäckersten C, Molander U, Benkel I and Nyblom S. “It doesn’t always have to be an expert”: Professionals’ perceptions of practical aspects of the existential dimension of care for people approaching death. OMEGA - Journal of Death and Dying. 2024. OnlineFirst. https://doi.org/10.1177/00302228241272637
Vård i livets slutskede: plats för död över tid samt främjande av palliativt förhållningssätt genom konsultationer med specialister i palliativ vård och policy för palliativ vård Larsdotter, C., Nyblom, S., Gyllensten, H., Fürst, C.J., Ozanne, A., Hedman, R., Nilsson, S., & Öhlén, J. (2024). Trends in the place of death in Sweden from 2013 to 2019 - disclosing prerequisites for palliative care. Palliative care and social practice, 18, 26323524241238232. https://doi.org/10.1177/26323524241238232
Nilsson, S., Öhlén, J., Nyblom, S., Ozanne, A., Stenmarker, M., & Larsdotter, C. (2024). Place of death among children from 0 to 17 years of age: A population-based study from Sweden. Acta paediatrica (Oslo, Norway : 1992), 113(9), 2155–2163. https://doi.org/10.1111/apa.17308
Nyblom, S., Öhlén, J., Larsdotter, C., Ozanne, A., Fürst, C. J., & Hedman, R. (2024). Registry study of cardiovascular death in Sweden 2013-2019: Home as place of death and specialized palliative care are the preserve of a minority. International journal of cardiology. Cardiovascular risk and prevention, 23, 200328. https://doi.org/10.1016/j.ijcrp.2024.200328
Ozanne A, Öhlén J, Nyblom S, Jakola A S, Smits A, Larsdotter C. (2024) Disparities in end-of-life care and place of death in people with malignant brain tumors – a Swedish registry study. Neuro-Oncology Practice, npae113. https://doi.org/10.1093/nop/npae113
O'Sullivan, A., Carling, L., Öhlén, J., Nyblom, S., Ozanne, A., Hedman, R., Fürst, C. J., & Larsdotter, C. (2024). Palliative care in policy documents for adults with cancer and non-cancer diseases with potential palliative care needs: a document analysis. Palliative care and social practice, 18, 26323524241296145. https://doi.org/10.1177/26323524241296145
O'Sullivan, A., Larsdotter, C., Sawatzky, R., Alvariza, A., Imberg, H., Cohen, J., & Öhlén, J. (2024). Place of care and death preferences among recently bereaved family members: a cross-sectional survey. BMJ supportive & palliative care, 14(e3), e004697. Advance online publication. https://doi.org/10.1136/spcare-2023-004697
Alvariza A & Öhlén J. (2024) Hur får närstående yttra sig? – ny checklista stärker forskningen. Palliativ vård (4), 27-30.
Baron S, Grinberg K, Sousa JP, Neves H, Harnett G, Bianchi M, Luiking M.-L, Nilsson S, Frazer K, Jack K, Scammell J, Warshawski S. Dimensions of clinical leadership among pre-registration nursing students: A cross-sectional study between two countries. Nurse Education in Practice. 2024;79:104092.
Ljungquist J, Barchéus H, Abbas F, Ozanne A, Nilsson D, Corell A. Clinical experiences and learning curves from robot-assisted neurosurgical biopsies with Stealth AutoguideTM. Neuro-Oncology Advances. 2024: 14:6(1): vdae079.
Garcia de Avila MA, de Jesus Amorin T, Hamamoto Filho PT, de Almeida GMF, Olaya-Contreras P, Berghammer M, Jenholt Nolbris M, Nilsson S. Anxiety among children a year after the onset of the COVID-19 pandemic: a Brazilian cross-sectional online survey. Front. Public Health. 2024. 12:1372853.
Gómez Vecchio T, Rydén I, Ozanne A, Blomstrand M, Carstam L, Smits A, Store Jakola A. Global health status and fatigue score in IDH-mutant diffuse glioma grades 2 and 3 – A longitudinal population-based study from surgery to 12-month follow-up. Neuro-Oncology Practice 2024, 1 March. https://doi.org/10.1093/nop/npae017
Moreira Lacerda Martins V, Bastoni da Silva J, Chinaque Francisco J, Rossi Dos Santos G, Silva dos Santos G, Nilsson S. Garcia de Avila, M. Developing and validating a 2D digital version of the Brazilian Children’s Anxiety Questionnaire. J Pediatr Nurs. 2024.
Mårtensson U, Jenholt Nolbris M, Mellgren K, Wijk H, Nilsson S. Meals are more than nutrition for children with a malignant or non-malignant disorder with a gastrostomy tube: A qualitative study. Eur J Oncol Nurs. 2024 Jul 16;72:102663.
Olsson M, Eliasson I, Kautsky S, Hård af Segerstad Y, Nilsson S. Co-creation of a digital platform for peer support in a community of adolescent and young adult patients during and after cancer. Eur J Oncol Nurs. 2024 Jun:70:102589.
Robertz A-C, Kantzer A-K, Nilsson S, Törnhage C-J, Nyman V. Friendship matters—An interview study with adolescents with attention deficit hyperactivity disorder. PLOS Ment Health. 2024: 1(1): e0000023.
Robertz AC, Törnhage CJ, Nilsson S, Nyman V, Kantzer AK. Positive effects of tactile massage for adolescents with Attention Deficit/Hyperactivity Disorder (ADHD) - A small scale study. Complement Ther Clin Pract. 2024 Sep 25;57:101909.
Strang P, Schultz T, Ozanne A. Partly unequal receipt of healthcare in last month of life in amyotrophic lateral sclerosis: a retrospective cohort study of the Stockholm region. UPSALA JOURNAL OF MEDICAL SCIENCES 2024, 129, e9856 http://dx.doi.org/10.48101/ujms.v129.9856
Suleman SK, Yahya N, Nilsson S, Enskär K. Comparative efficacy of pharmacological and non-pharmacological interventions for mitigating pain and anxiety associated with venipuncture: a randomised controlled trial. BMJ Paediatr Open. 2024 Sep 9;8(1):e002881.
Suleman SK, Yahya NB, Nilsson S, Enskär K. Comparison of trace image colors for kids-book with two active distractions in reducing pain and fear of children during the venipuncture procedure. Eur J Pediatr. 2024 Jan;183(1):113-122.
Suleman, S. K., BakirYahya, N., Nilsson, S., & Enskär, K. (2024). Comparing the use of colored Trace Images in Kids' Books with passive distractions to decrease pain and fear during cannulation in children: A randomized clinical trial. European Journal of Integrative Medicine, 69, 102379. https://www.sciencedirect.com/science/article/pii/S1876382024000490
