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Care for people with long-term conditions: paediatric care, neurological care, and palliative care

Research group

Short description

The research group on care for long-term conditions includes paediatric care, neurological care, and palliative care. The research advances and strengthens knowledge about person-centred and integrated care for both patients and their relatives. The research focuses on the life situations, quality of life, healthcare and nursing, communication and support for and with the patient, family, and relatives, as well as end-of-life care, including support related to grief after a death.


The research aims to contribute to knowledge to promote well-being and quality of life for individuals who, for shorter or longer periods, live with conditions that are chronic, incurable, and/or life-limiting, as well as support for relatives. The research touches on a broad range of health conditions, such as children and adults with cancer and neurological diseases as well as multi-ill elderly and children with prolonged mental health issues.

The research is based on person-centred care and aligns with the national transition to integrated care. As a result, the research focuses on the patient and their relatives as individuals, support for self-care and informal care, enabling care at home and in home-like conditions. Moreover, the research includes processes, effects, outcomes, and consequences of care for patients, relatives, staff, and society, as well as instrument and method development.

Paediatric Care

Research on children and adolescents has a special focus on child- and person-centred care for groups with chronic health conditions and/or groups with psychosocial vulnerability. There is a direction towards intervention research as well as mapping and epidemiological studies.

Neurological Care

Research in neurological care primarily targets care and support for individuals with chronic neurological conditions and various treatments, in relation to their life situation and their children and relatives. Ongoing research includes longitudinal studies, intervention research, and epidemiological research.

Palliative Care

Research on palliative care ranges from the need for palliative care early in a patient's disease progression, alongside disease-specific care and treatment, to end-of-life care. The research touches on specialized palliative care as well as palliative care integrated within other care and service forms regardless of diagnosis. It also includes paedagogical research on palliative care. Study types range from intervention research to epidemiological and action research.

Research Group Expertise

  • Qualitative, quantitative, mixed method, and participatory action research
  • Development and evaluation of complex interventions and support forms
  • Registry-based studies
  • Process evaluation
  • Implementation research
  • Longitudinal studies
  • Qualitative method development
  • Theoretical analysis and development
  • Complex interventions


Research group leader
Professor Joakim Öhlén 
Associate professor Anneli Ozanne
Professor Stefan Nilsson 

Affiliated professor
Richard Sawatzky 

Associate professors
Inger Benkel
Ingela Henoch
Ylva Hård af Segerstad
Elisabeth Kenne-Sarenmalm

Researchers PhD
Lisen Dellenborg
Maria Olsson
Stina Nyblom
Ramona Schenell

Doctoral students
Malin Bengtsson
Susanna Böling
Angelica Höök
Emma Lundberg
Nina Malmström
Pernilla Ståhl
Angelica Wiljén

Other projects

  • Quality of healthcare during the last week of life- a register study
  • Implementation of palliative care in hospitals: Palliative care teams

  • Does education over the internet contribute to improved palliative care?

  • Attitudes of specialist nursing students to care for dying patients

  • The 6 S - implementation and evaluation of Person-centered palliative care

  • Virtual teaching (serious game) in palliative care for nursing students -Thinking and Linking, ELC (End-of-life care)

  • Survival and disability in patients, and quality of life in patients and relatives after surgery of brain tumours: The importance of surgical radicalism and the body's own reaction to the tumour. A prospective and population-based study of patients with grade IV astrocytoma

  • A training intervention for healthcare professionals to provide improved existential support to patients with progressive neurological diseases - a controlled study

  • Maintaining self-determination in the palliative care phase in special accommodation - a model for promoting person-centered palliative care for the elderly

  • Are blogs a new way of communicating in healthcare?

  • Safer care for fragile elderly people with a focus on implementing the care chain process

  • Care process program for fragile elderly people