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GPCCs research domains

You can read more about our research domains here. Further down on this page our research projects are listed according to domain affiliation. NB! A project can be affliated to more than one domain, and is in that case listed under all those, and marked with a *.

1. Theoretical and practical development of person-centred care

Domain Lead: Eva Jakobsson Ung, Professor, Registered nurse, Doctor of Philosophy, Sahlgrenska academy.
 

Background:
The premise for the development of person-centred care within the GPCC framework is that every human being is a person and should always be seen, understood, and treated as a person. Ethics and personal philosophy are used as the basis for development.

The story of and about the person and his or her life context is a central point of departure for person-centred care and usually includes both experiences of symptoms / symptoms of ill health.

Person-centredness requires partnerships that are based on mutual understanding and respect for the patient's, healthcare staff's and healthcare's resources, responsibilities and goals. The professional interpretation of the patient's narrative should be a permanent building block of the partnership, and documented in an appropriate and relevant way. The documentation aims to establish common expectations and responsibilities, and changes are decided and communicated together with the patient and often close relatives.

This research domain aims to further develop philosophical, ethical, theoretical and evidence-based foundations for person-centred care with a particular focus on patient narrative, partnership and documentation.

National and international surveys and evaluations of the evidence-based basis for person-centred care are carried out continuously.

Furthermore, the research domain contributes to dissemination of results and exchange of experiences through seminars, workshops, etc.

An overarching goal is to contribute with the knowledge base that supports the transition to person-centred care in health care and care. This includes:
• how symptoms can be experienced, expressed and interpreted
• the relationship between symptoms and organ dysfunction
• person-centred interventions
• materials such as health diaries, call support, care planning, documentation, questionnaires, assessment instruments


2. Implementation, organisation, leadership and governance of person-centred care

Domain Lead: Lars Wallin, Professor Care Sciences, Centre Director Knowledge Impementation and Patient Safety - KIPS University of Dalarna, Research Manager, Region Dalarna

Background:
In this research domain, we focus on the structural conditions for and the implementation of person-centred care, from meso- to macro-level, in Swedish and European health care. In parallel with increasing evidence of the benefits of person-centred care, we are often reminded of the difficulty of implementing new knowledge and new approaches in health care. Contextual and organisational circumstances, knowledge, attitudes and values of management and staff, and not least the effects of the strategy used to support implementation determine whether a change in care is achieved. For person-centred care, effective implementation is a key issue as the transition includes knowledge, action ethics, professional identity, organizational conditions and execution of the work. In addition, the need to achieve sustainable change.

The research domain aims to increase knowledge of effective strategies to support the implementation of person-centred care and factors that influence the process of change.

We focus our research on:
• the process of introducing person-centred care in different care contexts
• methods to support the implementation of person-centred care
• the importance of contextual factors in the implementation of person-centred care, such as leadership, culture and resources
• decision-making processes and communication within the organisation
• mechanisms for the maintenance of person-centred care over time
• identification of different ways of switching activities towards person-centred care
• dissemination of innovations and policy decisions related to person-centred care
• mapping of organisational barriers and opportunities for person-centred care
• the importance of leadership for person-centred care

3. Evaluation and measuring of person-centred care

Domain Lead: Philip Moons, Visiting Professor, Institute of health and Care Sciences, Sahlgrenska academy, Professor, Faculty of Medicine, Academic Centre for Nursing and Midwifery, Katholieke Universiteit Leuven, Belgien.

Research on person-centred care is imperative to gain a better understanding of the needs of people who seek healthcare, to explore how healthcare professionals can optimally respond to these needs and deliver quality healthcare, to help people make informed healthcare decisions, and to evaluate the effects of person-centred care based on outcomes that are important to patients and their caregivers. As interventions in person-centred care are complex, particular focus is put on the assessment of complex interventions. In this respect, the use of state-of-the-art and innovative research methods is important.

The research methods domain aims to:
• Collate and critically assess research methods applied in person-centred care research
• Appraise research priorities for methodological advancement in person-centred care research
• Identify research methods used in other research areas and fields and assess their applicability and promise for use in person-centered care research
• Develop novel research methods to guide the next generation of person-centred care research
• Promote and support person-centred research that is guided by the wants and needs of patients and caregivers
• Ensure that GPCC projects adhere to high standards and best practices in their planning, design and conduct

4. Learning and education in person-centred care

Domain Lead: Mari Lundberg, Professor, physiotherapist, Sahlgrenska Academy

One of GPCC’s main tasks is to disseminate knowledge about person-centred care. All GPCC’s activities are based on the so-called knowledge triangle, which includes research, innovation and education. These activities are continuously connected, which generates exchange and knowledge that drives development forward. During its 10 years, GPCC has developed a variety of courses, training material and practical implementation programs to support the transition to person-centred care.

The research domain for learning and education in person-centred care aims to research learning, pedagogical tools and educational initiatives to support the transition to person-centred care. All research activities are performed in partnership with relevant partners (e.g. students, co-workers, patients). 

The goal with the research activities are to:  

  • Design, develop and evaluate innovative pedagogical tools and educational activities
  • Explore and further develop the implementation of learning about person-centred care in Swedish undergraduate programs of health care professionals

Who are we                 

The researchers are Ida Björkman, Caroline Feldthusen, Irma Kjellberg Lindström, and Catarina Wallengren Gustafsson.

Research projects affiliated to each domain

With links to the projects' pages.

 

1. Theoretical and practical development of person-centred care

Effects of an Opioid Free Person-Centred Care Pathway for Patients undergoing Obesity Surgery: A Randomized Controlled Trial

Exploring documentation in a person-centred care pathway for persons with chronic health conditions

HOPE – Help Overcoming Pain Early

IHOPe - Integrating Health promotion with and for Older People-eHealth*

Medicines taking – a person-centred approach

myCode - digital tools for emotional support during and after cancer treatment on young adults’ terms

Perhit - PERson-centredness in hypertension management using information technology

Person-centred care as an evolving field of research: A mixed-methods systematic review project

Person-centred care for care providers

PicPecc – Pictorial support in person-centred care for children

PROTECT - Person-centred care at a distance*

STEPSTONES-DIAB: Transitional care models for adolescents with Type 1 diabetes

Translating Person-centred Care from Theory into Practice*

Will it nudge: A feasibility study of PCC nudging to increase uptake of PCC practice

 

2. Implementation, organisation, leadership and governance of person-centred care

Following the process of person-centered care at a medical emergency ward in a Swedish hospital – patients’ and health care professionals’ perspectives

IHOPe - Integrating Health promotion with and for Older People-eHealth*

IMPROVE - Implementation, organisation, leadership and governance of person-centred care

PROTECT - Person-centred care at a distance*

Translating Person-Centred Care from Theory into Practice*

 

3. Evaluation and measurement of person-centred care

IHOPe - Integrating Health promotion with and for Older People-eHealth*

PCPC Person-Centred Psychosis Care

Support for a Person-centred Care Toolbox

Swedes view on personcenteredness in Swedish health care

 

4. Learning and education in person-centred care

IHOPe - Integrating Health promotion with and for Older People-eHealth*