Young adult survivors of childhood cancer - through the lens of a person-centred approach

Research project
Active research
Project period
2023 - 2025
Project owner
Department of Oncology, Sahlgrenska University hospital, Gothenburg

Short description

The survival rate in childhood cancer has increased to over 80% in the Nordic countries. However, the intense cancer treatment causes complications even many years after completed treatment. Long-term follow-up (LTFU) clinics for childhood cancer survivors have the responsibility to meet the needs for the patients with possible complications or risks for future complications.
The aim of the study will be to explore how a person-centred approach could facilitate access to health care and how to balance the meeting between health-care professionals' expectations and adult childhood cancer survivors needs to achieve their quality of life. Explore how to optimize outpatient LTFU clinics’ organization to encourage young adults’ knowledge and involvement.

This project is affiliated to GPCC.


Maria Olsson, Clinical Nurse Specialist, PhD, Follow-up Clinic, Cancer rehabilitation, Onkologi, Sahlgrenska University Hospital.

Stefan Nilsson, Associate Professor of Care Science and Registered Nurse specialised in Paediatric care, Institute of Health and Care Sciences, Sahlgrenska Academy, University of Gothenburg.

Johan Berlin, Professor in business administration, Department of Social and Behavioural Studies, University West.

Margaretha Stenmarker, Institute of Clinical Sciences, Department of Paediatrics at Gothenburg University.

Marianne Jarfelt, the Institute of Clinical Sciences, Department of Oncology at Gothenburg University.