The Gothenburg Pituitary Tumour Study (The GoPT-study)
Patients with pituitary tumours have life-long consequences of their disease due to the tumour impact on pituitary function, visual and cognitive function . Treatment options include surgery, radiotherapy and medical therapy. Patients need to adhere to long-term contact with health care providers, complex treatments and associated morbidity. The aim of the this study is to evaluate if person-centred care (PCC) increases wellbeing for these patients. Our main hypothesis is that PCC will result in increased psychological well-being compared with the support given within standard of care. Secondary objectives are to evaluate whether PCC will result in better health status, less fatigue, higher satisfaction with care, higher self-efficacy and increased person-centred content in care documentation compared with standard care.