PROTECT: Person-centred care at a distance

The design is a randomized, controlled, parallel, intervention study of PCC versus traditional care alone. Patients will be recruited from primary care, in the intervention group a personal health plan will be co-created between patients and health professionals. The health plan and other communication with professionals will be performed through the EHealth platform. Follow-up will be after 3, 6, 12 and 24 months from inclusion. In addition, health-economic analyses will be performed.

Publications

Publikationer relaterade till PROTECT

1. Barenfeld E, Ekman I, Cederberg M, Fors A, Ali L, Gyllensten H. Patient and healthcare professional engagement and time use within a randomised controlled trial: investigating intervention costs associated with remote person-centred care in Sweden. BMJ Open. 2025 Oct 9;15(10):e099034. doi: 10.1136/bmjopen-2025-099034. PMID: 41067773.
2. Harvey BP, Barenfeld E, Fors A, Ekman I, Swedberg K, Gyllensten H. Economic evaluation of a person-centred care intervention with a digital platform and structured telephone support for people with chronic heart failure and/or chronic obstructive pulmonary disease: results from a randomised controlled trial in Sweden. BMJ Open. 2025 Oct 9;15(10):e093083. doi: 10.1136/bmjopen-2024-093083. PMID: 41067758.Blanck E, Pirhonen Nørmark L, Fors A, Ekman I, Ali L, Swedberg K, Gyllensten H. Self-efficacy and healthcare costs in patients with chronic heart failure or chronic obstructive pulmonary disease. ESC Heart Fail. 2024 Feb;11(1):219-228. doi: 10.1002/ehf2.14574. Epub 2023 Nov 8. PMID: 37940106; PMCID: PMC10804184.
3. Ulin K, Fors A, Ali L, Ekman I, Jansson I. Flip focus and emphasise patient resources in person-centred care over the telephone-A retrospective descriptive study. Scand J Caring Sci. 2023 Sep;37(3):797-804. doi: 10.1111/scs.13164. Epub 2023 Mar 18. PMID: 36932728.
4. Barenfeld E, Fuller JM, Wallström S, Fors A, Ali L, Ekman I. Meaningful use of a digital platform and structured telephone support to facilitate remote person-centred care - a mixed-method study on patient perspectives. BMC Health Serv Res. 2022 Apr 4;22(1):442. doi: 10.1186/s12913-022-07831-8. PMID: 35379247; PMCID: PMC8981820.
5. Ali L, Wallström S, Fors A, Barenfeld E, Fredholm E, Fu M, Goudarzi M, Gyllensten H, Lindström Kjellberg I, Swedberg K, Vanfleteren LEGW, Ekman I. Effects of Person-Centered Care Using a Digital Platform and Structured Telephone Support for People With Chronic Obstructive Pulmonary Disease and Chronic Heart Failure: Randomized Controlled Trial. J Med Internet Res. 2021 Dec 13;23(12):e26794. doi: 10.2196/26794. PMID: 34898447; PMCID: PMC8713094.
6. Blanck E, Fors A, Ali L, Brännström M, Ekman I. Informal carers in Sweden - striving for partnership. Int J Qual Stud Health Well-being. 2021 Dec;16(1):1994804. doi: 10.1080/17482631.2021.1994804. PMID: 34720063; PMCID: PMC8567876.
7. Ali L, Wallström S, Ekman I, Swedberg K, Fors A. Effects of person-centred care via telephone on self-efficacy in patients with chronic obstructive pulmonary disease: Subgroup analysis of a randomized controlled trial. Nurs Open. 2021 Mar;8(2):927-935. doi: 10.1002/nop2.701. Epub 2020 Nov 24. PMID: 33570304; PMCID: PMC7877134.
8. Barenfeld E, Ali L, Wallström S, Fors A, Ekman I. Becoming more of an insider: A grounded theory study on patients' experience of a person-centred e-health intervention. PLoS One. 2020 Nov 23;15(11):e0241801. doi: 10.1371/journal.pone.0241801. PMID: 33226986; PMCID: PMC7682879.
9. Ali L, Wallström S, Barenfeld E, Fors A, Fredholm E, Gyllensten H, Swedberg K, Ekman I. Person-centred care by a combined digital platform and structured telephone support for people with chronic obstructive pulmonary disease and/or chronic heart failure: study protocol for the PROTECT randomised controlled trial. BMJ Open. 2020 Jul 19;10(7):e036356. doi: 10.1136/bmjopen-2019-036356. PMID: 32690519; PMCID: PMC7371144.
10. Boström E, Ali L, Fors A, Ekman I, Andersson AE. Registered nurses' experiences of communication with patients when practising person-centred care over the phone: a qualitative interview study. BMC Nurs. 2020 Jun 19;19:54. doi: 10.1186/s12912-020-00448-4. PMID: 32577097; PMCID: PMC7304080.
11. Pirhonen L, Gyllensten H, Olofsson EH, Fors A, Ali L, Ekman I, Bolin K. The cost-effectiveness of person-centred care provided to patients with chronic heart failure and/or chronic obstructive pulmonary disease. Health Policy Open. 2020 May 12;1:100005. doi: 10.1016/j.hpopen.2020.100005. PMID: 37383310; PMCID: PMC10297760.
12. Wallström S, Ali L, Ekman I, Swedberg K, Fors A. Effects of a person-centred telephone support on fatigue in people with chronic heart failure: Subgroup analysis of a randomised controlled trial. Eur J Cardiovasc Nurs. 2020 Jun;19(5):393-400. doi: 10.1177/1474515119891599. Epub 2019 Nov 29. PMID: 31782661.
13. Fors A, Blanck E, Ali L, Ekberg-Jansson A, Fu M, Lindström Kjellberg I, Mäkitalo Å, Swedberg K, Taft C, Ekman I. Effects of a person-centred telephone-support in patients with chronic obstructive pulmonary disease and/or chronic heart failure - A randomized controlled trial. PLoS One. 2018 Aug 31;13(8):e0203031. doi: 10.1371/journal.pone.0203031. PMID: 30169539; PMCID: PMC6118377.
14. Ali L, Fors A, Ekman I. Need of support in people with chronic obstructive pulmonary disease. J Clin Nurs. 2018 Mar;27(5-6):e1089-e1096. doi: 10.1111/jocn.14170. Epub 2018 Feb 27. PMID: 29149463; PMCID: PMC5900916.