About The Person council for patients and relatives/carers

Name

General experience of health care etc. Reason for being in the Council

Works/has worked as and/or does

Link to personal web page, contacts or similar, if applicable

Cajsa Lindberg

I have experience of type 1 diabetes since the age of 13 in 2002, and brain cancer, pituitary failure and other cancer complications since 2016, as well as of being a relative of a mother with heart problems. I am passionate about increased patient participation and involvement, organizational development and equal access to care and medicines globally.

I work internationally with health issues, as lecturer, consultant and a number of boards and committees. Former Chair of the Swedish Diabetes Association, the Diabetes Foundation and Young Diabetes. I live in Stockholm.

e-mail: cajsa.c.lindberg@gmail.com https://www.linkedin.com/in/cajsalindberg/

Hanna Svensson

I am a rheumatic and a diabetic, a committed Lead patient, patient activist and I work towards increased patient participation. I like development and problem solving. I see the sum of health care as being self-care plus care.

I am a researcher and a civil engineer in technical physics. I sit on the program council for Vitalis, Europe's largest eHealth fair.

Blog: http://svenssonhanna.se/
Dagens Patient/Spetspatienter http://dagenspatient.ringla.nu/
Twitter: @svenssonhannase
 

Johnny Jakobsson

I have 25 years lived experience of heart disease and pain management health care, and 15 years of lived experience of diabetes care.

I have had sickness benefit until my pension. I am active in The Swedish Heart and Lung Association as regional Chair. I live in Mölndal.

N/A

Lina Dahlin

I have had asthma and allergy since childhood. I contracted Ulcerative colitis as a young adult. I also suffer from mental health problems as a consequence.

I am a Pharmacist. I have worked a lot with student influence and empowerment. I am interested in Higher Education and Health Care politics. I am a member of a patient organisation for stomach disorders for young persons, “Proud Stomachs”. I live in Gothenburg.

Twitter: @lina_dahlin

Malin Grände

I have a serious eye disability, a progressive disorder, which took a long time to have diagnosed in my childhood. It poses a challenge to me and my surrounding environment, not least health care, when it comes to seeing me as the person I am and not just the disability I have. In my work I meet people on a daily basis who have various and manifold relationships to health care, some successful, others less desirable.

I am the Operational Manager at Rare Diseases Sweden. Our top issue is ensuring that persons with rare diseases are able to access as good care as persons with more ordinary conditions. I live in Stockholm.

www.sallsyntadiagnoser.se
e-mail: malin.grande@sallsyntadiagnoser.se
 

Margareta Haag

I have more than 25 years of own patient experience of cancer. I have lymphoma and lymphedema. Am engaged in person-centered care and co-creation in care, self-care and equal fair care.

https://www.linkedin.com/in/margareta-haag-95a06213/?originalSubdomain=se

Pamela Lindgren

I was involved in a serious accident and suffered a spinal cord injury, which caused permanent functional limitations. Has extensive experience of meeting patient and caregiver as patient but also as consultant and designer in care and care.

I have a Master's degree in Fine Arts from HDK / Gothenburg University. I work as a designer and consultant in graphic, product and industrial design, as well as an industrial doctoral student at Chalmers in the Department of Design & Human Factors, Department of Industrial and Materials Science. My research is about user acceptance and adoption. I am also the originator of and involved in non-profit projects RECYCLE ME with the aim of disseminating knowledge and information about organ donation.

Pamela Lindgren Design Studio http://pamelalindgren.com/
Chalmers https://www.chalmers.se/sv/personal/Sidor/pamelal.aspx
RECYCLE ME https://www.recycleme.life/

Peter Nordqvist

I have had a daughter who was born with congenital heart disease in 1988, who lived until 2014. I have been working at a charity for children with this condition since 1990. I am very engaged in issues of medical disabilities.

I was previously engaged in the governing board of a charity for children with congential heart disease, for which I am now employed as Director General. I have mainly worked in health care and schools. I am an Honorary Doctor at Sahlgrenska Academy. I live in Gothenburg, and work in Stockholm and Gothenburg.

www.hjartebarnsfonden.se

Rolf Åström

My experience includes care and nursing as a relative. I have been my mother's support for ten years in terms of care and nursing. She passed away in March 2020 at the age of 91. Many practical things needed to be solved but I also dealt with the loneliness she felt. I believe that information and communication are fundamental.

I am employed at Region Värmland with the task of coordinating eHealth issues. I am active in The Relatives’ Organisation in Karlstad and Värmland. Formerly employed by the County Council in Värmland with responsibility for eHealth and also Inera. I live in Karlstad.

e-mail: rolf.astroom@ownit.nu

Susanne Jonasson

It took 10 years of ill health before I finally was diagnosed with pituitary adenoma in 1990. I am a Co-researcher in a GPCC project at Sahlgrenska University Hospital.

I have employed as Assistant Nurse in Gothenburg Child Birth Care since 1979. I have a degree in journalism. I now work at Sahlgrenska University Hospital’s IT department.

N/A

Susanne Tell

I have 20 years of own experience of psychiatry, as well as many years of experience from the non-profit sector regarding various issues related to the psychiatric field.

I work as a coordinator for Hjärnkoll in Västmanland, which works to increase knowledge and break the stigma surrounding mental illness. I am also active as a lecturer and author mainly linked to suicide prevention. I live in Fjugesta, Örebro County.

e-mail: susanne.m.tell@gmail.com