Adolescents with asthma/allergy and organ transplant recipients are planned to be included in a randomized controlled trial to evaluate the digital version of the transfer program (Digi-STEPSTONES) compared to standard care.
The results from the Digi-STEPSTONES intervention group will be compared with data from the previously completed projects (1) STEPSTONES Congenital Heart Defects and (2) STEPSTONES Diabetes.
We are also planning further studies aimed at adapting the Digi-STEPSTONES program to young people who also have cognitive disabilities and therefore qualitative studies will also be conducted with young people with various cognitive disabilities and their parents.
The study will provide scientific support for whether the transition program in digital form is effective and feasible. Young people with various long-term conditions will be included, which gives a higher generalizability of the study results than a disease-specific approach. This project will also evaluate how transition programs can be made more inclusive and adapted to people with cognitive functional variations.
The project is carried out in collaboration with several wards within the Sahlgrenska University Hospital in Gothenburg. The project started in autumn 2021.
Digi-Stepstones Project Manager: Philip Moons
Project coordinator: Mariela Acuna Mora
Within the research group: Ewa-Lena Bratt, Carina Sparud Lundin, Markus Saarijärvi
Outside the research group: Emma Goksör Allergy, Lung and Cystic Fibrosis Clinic, Drottning Silvias Children's Hospital, Annette Lennerling Transplantation Center, Sahlgrenska University Hospital, Ewa Ternesten-Hasseus Allergy Clinic, Sahlgrenska University Hospital, Tomas Lindroth Department of Applied IT, Department of Informatics, University of Gothenburg