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Adole7C- long-term conditions

Research project

Short description

The overall aim is to map and study patient and hospital related causes that lead to interruptions in the medical follow-up of young people with long-term conditions (organ transplant recipients, asthma/allergy, ADHD, congenital heart disease and young people with type 1 diabetes) as well as to investigate the consequences of such interruption, including medical expenses.

The project is carried out in collaboration with several units within the Sahlgrenska University Hospital in Gothenburg. The project is in the planning stage

Researchers in the project: 

Project manager: Ewa-Lena Bratt

Other partners:

Hanna Gyllensten, Carina Sparud Lundin, Philip Moons

Annette Lennerling Transplantation Center, Sahlgrenska University Hospital, Ewa Ternesten-Hasseus Allergy Clinic, Sahlgrenska University Hospital, Karin Mehlin Child and Adolescent Psychiatry, Sahlgrenska University Hospital in Gothenburg.

Work plan: 

The project specifically intends to study and identify:

1. The proportion of young people with long-term conditions who have interruptions in medical follow-up

2. Patient- and hospital-related factors of importance for interruptions in the medical follow-up

3. The consequences of interruptions in medical follow-up in terms of mortality, morbidity and social functioning

4. The consequences of interruptions in the medical follow-up in terms of healthcare consumption and related costs

Impact

The results from Adole7C have the potential to identify patient- and hospital-related factors associated with interruptions in medical follow-up. By identifying such factors, it is possible for the healthcare staff to identify adolescents and young adults who are at risk of interruption in care.

Furthermore, preventive measures related to the individual as well as the hospital organizational level can also be developed. This can lead to the follow-up of this group of patients being optimized, which will likely lead to better health and quality of life in this group.