Beyond Covid? Using Patient Knowledge to Improve the Care and Management of Long Covid Sufferers
This qualitative social science study addresses how individuals suffering from Long Covid in Sweden develop knowledge about their condition through their own and other sufferers' experiences about the condition. The study responds to a need for research that collects and makes use of the experiences and knowledge of sufferers in order to make possible improvements in their care and management. This research need has been identified from the observation that Long Covid was initially made visible by sufferers through their sharing and mobilising of experiences and knowledge online whereas the healthcare system simultaneously have struggled with diagnostics and treatment. To utilise the accumulated knowledge among sufferers this study not only aims to identify knowledge about sufferers but also from them.