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Changes in prenatal diagnostics of Down Syndrome – an examination of Swedish regional decision making

Research project
Active research
Project period
2020 - 2021
Project owner
Department of Business Administration, School of Business, Economics and Law

Financier
Sävstaholms forskningsstiftelse

Short description

The project is of importance for stakeholders within the Down Syndrome community, e.g., NGOs, parents and individuals with Down Syndrome. It is also relevant for a more general discussion on the societal value of diversity and openness. Prenatal diagnostics have become much debated recently with the introduction of the simple NIPT- test, an ordinary maternal blood test that gives information of the fetus’s entire genome. The possibility to screen for everything calls into question why Down Syndrome, a relatively mild condition, could be the focus of screening.

Stål, H.I, (2019) Affordances of innovations – Towards an institutional understanding of material properties. Full paper. 35th European Group of Organization Studies (EGOs) 2019 Colloquium, Edinburgh, July.

Stål, H.I, (2019) Institutional maintenance when meanings remain contested – prenatal testing for Down Syndrome. Full paper. 35th European Group of Organization Studies (EGOs) 2019 Colloquium, Edinburgh, July.

Stål, H.I, (2019) Haunted by past motives – maintaining a controversial practice. Short paper. 15th New Institutional Workshop. Uppsala University, Uppsala, Sweden.

Stål, H.I., (2018) Justification of a controversial practice – the eradication of Down’s syndrome. Short paper. 14th New Institutional Workshop. Bocconi University, Milan, Italy.