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Michaela Dellenmark Blom
Adjunct Senior Lecturer
Department of Pediatric Surgery-
Parents' experiences of condition management in children born with esophageal atresia-tracheoesophageal fistula during their early
childhood
Michaela Dellenmark Blom, Lianne Cole, Rosella Micalizzi, John Bennett, Kaylee Woods, Lauren Cardoni, Leah Frain, Abdimajid Mohamed, Jessica Yasuda, Peter Ngo, Anke Widenmann, Graham Slater, Benjamin Zendejas
Orphanet Journal of Rare Diseases - 2026 -
Regenerative Response 35 Days After Esophageal Replacement in a Porcine Model; Technical Difficulties and Attempts to Achieve Optimal Tissue
Remodeling
Anders Sandin, Linus Jönsson, Eva Jennische, Michaela Dellenmark-Blom, Lars-Göran Friberg, Vladimir Gatzinsky, O. Holmqvist, Kate Abrahamsson
Artificial Organs - 2025 -
Addressing psychosocial vulnerability in rare diseases: a call to action from a European expert consensus
study
Rosanne M. Smits, Aukje Aerts, Teodor Angelov, Marissa Bentele, Ivo de Blaauw, Michaela Dellenmark Blom, Saskia F. A. Duijts, Krister Fjermestad, Monica Franscini, Caterina Grano, Sigrid Hendriks, Laura Inhestern, Thomas Kenny, Charlotte von der Lippe, Loes Oomen, Jan Peter Rake, Andre B. Rietman, Iris A. L. M. van Rooij, Chris M. Verhaak, Nicoline B. M. Voet, Holly Walton, Wendy van Zelst-Stams, Linda Kwakkenbos
ORPHANET JOURNAL OF RARE DISEASES - 2025 -
Experiences of symptom burden among young children born with esophageal atresia–tracheoesophageal fistula: a US focus group
study
Michaela Dellenmark Blom, John Bennett, Rosella Micalizzi, Lianne Cole, Kaylee Woods, Lauren Cardoni, Leah Frain, Abdimajid Mohamed, Jessica Yasuda, Peter Ngo, Anke Widenmann, Graham Slater, Benjamin Zendejas
Orphanet Journal of Rare Diseases - 2025 -
Gastrointestinal quality of life in children born with
gastroschisis.
Matilda Bräutigam, Michaela Dellenmark-Blom, Kate Abrahamsson, Cathrine Gatzinsky, Vladimir Gatzinsky
Pediatric surgery international - 2025 -
Disease-specific quality of life as part of the long-term follow-up for children born with esophageal atresia in an academic unit in South Africa-a pilot
study.
C de Vos, Michaela Dellenmark Blom, F M Sikwete, D Sidler, L van Wyk, P Goussard
Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus - 2024 -
Commentary on bowel bladder dysfunction in control children in a pediatric urology office. Ref Rodriguez P, Rehfuss A, Adam Howe A, Giramonti K, Feustel PJ, Kogan BA (J Ped Urol,
https://doi.org/10.1016/j.jpurol.2024.04.023)
Sofia Sjöström, Ulla Sillén, Michaela Dellenmark-Blom
Journal of Pediatric Urology - 2024 -
Navigating global collaboration: challenges faced by the international network on esophageal
atresia.
Frédéric Gottrand, Usha Krishnan, Anke Widenmann, Michaela Dellenmark-Blom, Luigi Dall'Oglio, Rene Wijnen, Michiel van Wijk, JoAnne Fruithof, Daniel von Allmen, Tom Kovesi, Christophe Faure
Orphanet Journal of Rare Diseases - 2024 -
Response to commentary on: Parents’ experiences of treatment and outcomes in high-grade vesicoureteral reflux in infants – One piece in the puzzle of VUR
management?
Josefin Nordenström, Sofia Sjöström, Michaela Dellenmark-Blom
Journal of Pediatric Urology - 2024 -
Parents' experiences of treatment and outcomes in high-grade vesicoureteral reflux in infants - One piece in the puzzle of VUR
management?
Josefin Nordenström, Sofia Sjöström, Michaela Dellenmark-Blom
JOURNAL OF PEDIATRIC UROLOGY - 2024 -
The Swedish PedsQL gastrointestinal symptoms scale and symptoms module showed good psychometric
performance
Matilda Bräutigam, Kate Abrahamsson, Vladimir Gatzinsky, Robert Saalman, Lana Hadi, Suzanne Nilsson, Michaela Dellenmark-Blom
ACTA PAEDIATRICA - 2024 -
Linguistic, Content and Face Validity of the Swedish Version of a Quality-of-Life Assessment for Children, Teenagers and Adults with Spina
Bifida
Michaela Dellenmark-Blom, Marie Andersson, Konrad M. Szymanski, Charlotta Levén Andréasson, Magdalena Vu Minh Arnell, Sofia Sjöström, Kate Abrahamsson
International Journal of Environmental Research and Public Health - 2024 -
Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative
study
Josefin Soto Jansson, Björn Bjurulf, Michaela Dellenmark-Blom, Tove Hallböök, Colin Reilly
Epilepsy and Behavior - 2024 -
Mortality rates, cause and risk factors in people with spina bifida, register-based study over five
decades
Marie Andersson, Lana Hadi, Michaela Dellenmark-Blom, Ulla Sillén, Sofia Sjöström, Magdalena Vu Minh Arnell, Kate Abrahamsson
ACTA PAEDIATRICA - 2024 -
A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the
Field
Olivia K. C. Spivack, Michaela Dellenmark-Blom, Jens Dingemann, Chantal A. ten Kate, Vuokko Wallace, Wichor M. Bramer, Julia H. Quitmann, Andre Rietman
EUROPEAN JOURNAL OF PEDIATRIC SURGERY - 2024 -
Diagnosis, epilepsy treatment and supports for neurodevelopment in children with Dravet Syndrome: Caregiver reported experiences and
needs
Josefin Soto Jansson, Björn Bjurulf, Michaela Dellenmark-Blom, Tove Hallböök, Colin Reilly
Epilepsy and Behavior - 2024 -
Prevalence of Mental Health Problems, Associated Factors, and Health-Related Quality of Life in Children with Long-Gap Esophageal Atresia in
Sweden.
Michaela Dellenmark Blom, Sofie Örnö Ax, Helene Engstrand Lilja, Colin Reilly, Jan F Svensson, Ann-Marie Kassa, Linus Jönsson, Kate Abrahamsson, Vladimir Gatzinsky, Erik Omling, AnnaMaria Tollne, Pernilla Stenström, Elin Öst
Journal of pediatric surgery - 2023 -
Schooling experiences in children with long-gap esophageal atresia compared with children with esophageal atresia and primary anastomosis: a Swedish
study
Michaela Dellenmark-Blom, Colin Reilly, E. Ost, Sofie Örnö Ax, J. F. Svensson, A. M. Kassa, Linus Jönsson, Kate Abrahamsson, Vladimir Gatzinsky, A. Tollne, E. Omling, P. Stenstrom, H. E. Lilja
Orphanet Journal of Rare Diseases - 2023 -
The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia-tracheoesophageal
fistula
U. Krishnan, M. W. Dumont, H. Slater, B. D. Gold, D. Seguy, M. Bouin, R. Wijnen, L. Dall'Oglio, M. Costantini, A. C. Koumbourlis, T. A. Kovesi, M. J. Rutter, M. Soma, J. Menzies, A. Van Malleghem, N. Rommel, Michaela Dellenmark-Blom, V. Wallace, E. Culnane, G. Slater, F. Gottrand, C. Faure
Nature Reviews Gastroenterology & Hepatology - 2023 -
Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14
countries
Michaela Dellenmark-Blom, S. Witt, B. Zendejas, I. Sabolic, J. D. Porras-Hernandez, N. Durkin, S. Eaton, K. Birketvedt, A. S. Galán, K. E. Müller, A. Rozensztrauch, T. Soyer, S. Q. Li, A. Fourtaka, C. de Vos, G. Slater, A. Spoljaric, J. Bennett, R. Emblem, Z. Andrasdi, R. Smigiel, D. Patkowski, ÇU Durakbasa, M. Stilinovic, F. Gottrand, D. S. Sosa, T. Luetic, S. Gerus, S. Yang, Y. Zhao, Y. C. Gu, S. S. Li, D. Rodriguez-Alvirde, O. Kadenczki, M. Pasini, V. Wallace, A. Widenmann, F. M. Sikwete, J. S. Huang, L. M. Martínez, Kate Abrahamsson, S. Izadi, B. M. Ure, D. Sidler, J. H. Quitmann, J. Dingemann
Frontiers in Pediatrics - 2023 -
The association of feeding difficulties and generic health-related quality of life among children born with esophageal
atresia
Sofie Örnö Ax, Michaela Dellenmark-Blom, Kate Abrahamsson, Linus Jönsson, Vladimir Gatzinsky
Orphanet Journal of Rare Diseases - 2023 -
The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content
Validity.
Siqi Li, Michaela Dellenmark-Blom, Yong Zhao, Yichao Gu, Shuangshuang Li, Shen Yang, Julia H Quitmann, Jinshi Huang
International journal of environmental research and public health - 2022 -
Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal
Atresia
A. Rozensztrauch, R. Smigiel, D. Patkowski, S. Gerus, M. Klaniewska, J. H. Quitmann, Michaela Dellenmark-Blom
International Journal of Environmental Research and Public Health - 2022 -
Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia: a nationwide Swedish
study
Michaela Dellenmark-Blom, Sofie Örnö Ax, E. Ost, J. F. Svensson, A. M. Kassa, Linus Jönsson, Kate Abrahamsson, Vladimir Gatzinsky, P. Stenstrom, A. Tollne, E. Omling, H. E. Lilja
Orphanet Journal of Rare Diseases - 2022 -
Psychometric Performance of a Condition-Specific Quality-of-Life Instrument for Dutch Children Born with Esophageal
Atresia.
Chantal A Ten Kate, Hanneke IJsselstijn, Michaela Dellenmark-Blom, E Sofie van Tuyll van Serooskerken, Maja Joosten, René M H Wijnen, Michiel P van Wijk, On Behalf Of The Dcea Study Group
Children (Basel, Switzerland) - 2022 -
Understanding of the transition to adult healthcare services among individuals with VACTERL association in Sweden: A qualitative
study
A. M. Kassa, G. Engvall, Michaela Dellenmark-Blom, H. E. Lilja
Plos One - 2022 -
Development and Evaluation of a Transition Model for Adolescents With Inflammatory Bowel Disease Moving From Pediatric to Adult Surgical Care: Report of a Quality Improvement Project in a Swedish
Setting
Jenny Bergström, Michaela Dellenmark Blom, Vladimir Gatzinsky, Kate Abrahamsson, Matilda Bräutigam, Cathrine Gatzinsky
Journal of Pediatric Surgical Nursing - 2021 -
Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional
study.
Stefanie Witt, Michaela Dellenmark-Blom, Susanne Kuckuck, Jens Dingemann, Kate Abrahamsson, Carmen Dingemann, John Chaplin, Benno Ure, Monika Bullinger, Vladimir Gatzinsky, Linus Jönsson, Julia Hannah Quitmann
Orphanet journal of rare diseases - 2021 -
Parent-Reported Feeding Difficulties among Children Born with Esophageal Atresia: Prevalence and Early Risk
Factors
S. O. Ax, Kate Abrahamsson, Vladimir Gatzinsky, L. Jonsson, Michaela Dellenmark-Blom
European Journal of Pediatric Surgery - 2021 -
Patient-Reported Outcomes-The Value of Observational
Assessments.
Stefanie Witt, Janika Bloemeke, Monika Bullinger, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2021 -
Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal
Atresia.
Stefanie Witt, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
Frontiers in pediatrics - 2021 -
Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal
Atresia
T. Soyer, U. E. Arslan, C. U. Durakbasa, S. Aydoner, O. Boybeyi-Turer, J. H. Quitmann, J. Dingemann, Michaela Dellenmark-Blom
Turkish Journal of Gastroenterology - 2021 -
Linguistic and content validity of the Swedish version of the PedsQL (TM) gastrointestinal symptoms scales and symptoms module for paediatric
patients
Matilda Bräutigam, Michaela Dellenmark-Blom, Vladimir Gatzinsky, J. Bergstrom, Kate Abrahamsson
Acta Paediatrica - 2021 -
Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL
Study
Michaela Dellenmark-Blom, J. Quitmann, J. Dingemann, S. Witt, B. M. Ure, M. Bullinger, L. Jonsson, Vladimir Gatzinsky, C. Dingemann
European Journal of Pediatric Surgery - 2020 -
Health-Related Quality of Life in Pediatric Surgical Patients and their
Caretakers.
Jens Dingemann, Michaela Dellenmark-Blom, Julia H Quitmann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2020 -
Health-Related Quality of Life in Patients after Repair of Esophageal Atresia: A Review of Current
Literature.
Michaela Dellenmark-Blom, Julia Quitmann, Carmen Dingemann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2020 -
Development and Validation of Symptom Score for Total Bladder-Bowel Dysfunction: Subscales for Overactive Bladder and Dysfunctional
Voiding.
Ulla Sillén, Sofia Sjöström, Monika Doroszkiewicz, Helena Ekdahl, Michaela Dellenmark-Blom
The Journal of urology - 2020 -
Health-Related Quality of Life Assessment in Children and their Families: Aspects of Importance to the Pediatric
Surgeon
J. Bloemeke, S. Witt, M. Bullinger, J. Dingemann, Michaela Dellenmark-Blom, J. Quitmann
European Journal of Pediatric Surgery - 2020 -
Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent
Literature.
Gundela Holmdahl, Michaela Dellenmark-Blom, Agneta Nordenskjöld, Sofia Sjöström
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2020 -
Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their
parents.
A-M Kassa, Michaela Dellenmark-Blom, J Thorsell Cederberg, G Engvall, H Engstrand Lilja
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation - 2020 -
Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish
Cohort.
Sofie Flieder, Michaela Dellenmark-Blom, Stefanie Witt, Carmen Dingemann, Julia H Quitmann, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Barbara Gómez Dammeier, Monika Bullinger, Benno M Ure, Kate Abrahamsson, Jens Dingemann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2019 -
The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific
approach
Michaela Dellenmark-Blom, John Chaplin, J. H. Quitmann, L. Jönsson, V. Gatzinsky, J. Dingemann, Kate Abrahamsson
Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus - 2019 -
Quality of Life in Parents of Children Born with Esophageal
Atresia.
Stefanie Witt, Michaela Dellenmark-Blom, Jens Dingemann, Carmen Dingemann, Benno M Ure, Barbara Gomez, Monika Bullinger, Julia Quitmann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery = Zeitschrift fur Kinderchirurgie - 2019 -
Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional
study.
Stefanie Witt, Janika Bloemeke, Monika Bullinger, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
BMC pediatrics - 2019 -
Health-related quality of life among children, adolescents, and adults with bladder exstrophy–epispadias complex: a systematic review of the literature and recommendations for future
research
Michaela Dellenmark-Blom, Sofia Sjöström, Kate Abrahamsson, Gundela Holmdahl
Quality of Life Research - 2019 -
Clinical predictors and prevalence of receiving special preschool/school support in children with repaired esophageal
atresia
Michaela Dellenmark-Blom, L. Jonsson, Vladimir Gatzinsky, Kate Abrahamsson
Journal of Pediatric Surgery - 2018 -
The Esophageal-Atresia-Quality-of-life Questionnaires: Feasibility, Validity and Reliability in Sweden and
Germany.
Michaela Dellenmark-Blom, Jens Dingemann, Stefanie Witt, Julia H Quitmann, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Monika Bullinger, Sofie Flieder, Benno M Ure, Carmen Dingemann, Kate Abrahamsson
Journal of pediatric gastroenterology and nutrition - 2018 -
Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal
atresia.
Michaela Dellenmark-Blom, Kate Abrahamsson, J H Quitmann, R Sommer, S Witt, J Dingemann, S Flieder, Linus Jönsson, V Gatzinsky, M Bullinger, B M Ure, C Dingemann, John Chaplin
Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus - 2017 -
Patient-reported outcomes in children and adolescents born with esophageal
atresia
-
Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent
perspective
Michaela Dellenmark-Blom, John Chaplin, Linus Jönsson, Vladimir Gatzinsky, J. H. Quitmann, Kate Abrahamsson
Child Care Health and Development - 2016
More publications
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