Michaela Dellenmark Blom

A Narrative Review of Patient-Reported Outcome Measures and Their Application in Recent Pediatric Surgical Research: Advancing Knowledge and Offering New Perspectives to the

Field

Olivia K. C. Spivack, Michaela Dellenmark-Blom, Jens Dingemann, Chantal A. ten Kate, Vuokko Wallace, Wichor M. Bramer, Julia H. Quitmann, Andre Rietman
EUROPEAN JOURNAL OF PEDIATRIC SURGERY - 2024

Diagnosis, epilepsy treatment and supports for neurodevelopment in children with Dravet Syndrome: Caregiver reported experiences and

needs

Josefin Soto Jansson, Björn Bjurulf, Michaela Dellenmark-Blom, Tove Hallböök, Colin Reilly
Epilepsy and Behavior - 2024

Schooling experiences in children with long-gap esophageal atresia compared with children with esophageal atresia and primary anastomosis: a Swedish

study

Michaela Dellenmark-Blom, Colin Reilly, E. Ost, Sofie Örnö Ax, J. F. Svensson, A. M. Kassa, Linus Jönsson, Kate Abrahamsson, Vladimir Gatzinsky, A. Tollne, E. Omling, P. Stenstrom, H. E. Lilja
Orphanet Journal of Rare Diseases - 2023

The International Network on Oesophageal Atresia (INoEA) consensus guidelines on the transition of patients with oesophageal atresia-tracheoesophageal

fistula

U. Krishnan, M. W. Dumont, H. Slater, B. D. Gold, D. Seguy, M. Bouin, R. Wijnen, L. Dall'Oglio, M. Costantini, A. C. Koumbourlis, T. A. Kovesi, M. J. Rutter, M. Soma, J. Menzies, A. Van Malleghem, N. Rommel, Michaela Dellenmark-Blom, V. Wallace, E. Culnane, G. Slater, F. Gottrand, C. Faure
Nature Reviews Gastroenterology & Hepatology - 2023

Establishment of a condition-specific quality-of-life questionnaire for children born with esophageal atresia aged 2-7 across 14

countries

Michaela Dellenmark-Blom, S. Witt, B. Zendejas, I. Sabolic, J. D. Porras-Hernandez, N. Durkin, S. Eaton, K. Birketvedt, A. S. Galán, K. E. Müller, A. Rozensztrauch, T. Soyer, S. Q. Li, A. Fourtaka, C. de Vos, G. Slater, A. Spoljaric, J. Bennett, R. Emblem, Z. Andrasdi, R. Smigiel, D. Patkowski, ÇU Durakbasa, M. Stilinovic, F. Gottrand, D. S. Sosa, T. Luetic, S. Gerus, S. Yang, Y. Zhao, Y. C. Gu, S. S. Li, D. Rodriguez-Alvirde, O. Kadenczki, M. Pasini, V. Wallace, A. Widenmann, F. M. Sikwete, J. S. Huang, L. M. Martínez, Kate Abrahamsson, S. Izadi, B. M. Ure, D. Sidler, J. H. Quitmann, J. Dingemann
Frontiers in Pediatrics - 2023

The association of feeding difficulties and generic health-related quality of life among children born with esophageal

atresia

Sofie Örnö Ax, Michaela Dellenmark-Blom, Kate Abrahamsson, Linus Jönsson, Vladimir Gatzinsky
Orphanet Journal of Rare Diseases - 2023

The Chinese Mandarin Version of the Esophageal-Atresia-Quality-of-Life Questionnaires for Children and Adolescents: Evaluation of Linguistic and Content

Validity.

Siqi Li, Michaela Dellenmark-Blom, Yong Zhao, Yichao Gu, Shuangshuang Li, Shen Yang, Julia H Quitmann, Jinshi Huang
International journal of environmental research and public health - 2022

Reliability and Validity of the Polish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal

Atresia

A. Rozensztrauch, R. Smigiel, D. Patkowski, S. Gerus, M. Klaniewska, J. H. Quitmann, Michaela Dellenmark-Blom
International Journal of Environmental Research and Public Health - 2022

Postoperative morbidity and health-related quality of life in children with delayed reconstruction of esophageal atresia: a nationwide Swedish

study

Michaela Dellenmark-Blom, Sofie Örnö Ax, E. Ost, J. F. Svensson, A. M. Kassa, Linus Jönsson, Kate Abrahamsson, Vladimir Gatzinsky, P. Stenstrom, A. Tollne, E. Omling, H. E. Lilja
Orphanet Journal of Rare Diseases - 2022

Psychometric Performance of a Condition-Specific Quality-of-Life Instrument for Dutch Children Born with Esophageal

Atresia.

Chantal A Ten Kate, Hanneke IJsselstijn, Michaela Dellenmark-Blom, E Sofie van Tuyll van Serooskerken, Maja Joosten, René M H Wijnen, Michiel P van Wijk, On Behalf Of The Dcea Study Group
Children (Basel, Switzerland) - 2022

Understanding of the transition to adult healthcare services among individuals with VACTERL association in Sweden: A qualitative

study

A. M. Kassa, G. Engvall, Michaela Dellenmark-Blom, H. E. Lilja
Plos One - 2022

Patient-Reported Outcomes-The Value of Observational

Assessments.

Stefanie Witt, Janika Bloemeke, Monika Bullinger, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2021

Parent-Reported Feeding Difficulties among Children Born with Esophageal Atresia: Prevalence and Early Risk

Factors

S. O. Ax, Kate Abrahamsson, V. Gatzinsky, L. Jonsson, Michaela Dellenmark-Blom
European Journal of Pediatric Surgery - 2021

Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional

study.

Stefanie Witt, Michaela Dellenmark-Blom, Susanne Kuckuck, Jens Dingemann, Kate Abrahamsson, Carmen Dingemann, John Chaplin, Benno Ure, Monika Bullinger, Vladimir Gatzinsky, Linus Jönsson, Julia Hannah Quitmann
Orphanet journal of rare diseases - 2021

Parent-Child Assessment of Strengths and Difficulties of German Children and Adolescents Born With Esophageal

Atresia.

Stefanie Witt, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
Frontiers in pediatrics - 2021

Linguistic and content validity of the Swedish version of the PedsQL (TM) gastrointestinal symptoms scales and symptoms module for paediatric

patients

Matilda Bräutigam, Michaela Dellenmark-Blom, Vladimir Gatzinsky, J. Bergstrom, Kate Abrahamsson
Acta Paediatrica - 2021

Feasibility, Reliability, and Validity of the Turkish Version of the Esophageal-Atresia-Quality-of-Life Questionnaires to Assess Condition-Specific Quality of Life in Children and Adolescents Born with Esophageal

Atresia

T. Soyer, U. E. Arslan, C. U. Durakbasa, S. Aydoner, O. Boybeyi-Turer, J. H. Quitmann, J. Dingemann, Michaela Dellenmark-Blom
Turkish Journal of Gastroenterology - 2021

Caretakers.

Jens Dingemann, Michaela Dellenmark-Blom, Julia H Quitmann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2020

Literature.

Michaela Dellenmark-Blom, Julia Quitmann, Carmen Dingemann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2020

Development and Validation of Symptom Score for Total Bladder-Bowel Dysfunction: Subscales for Overactive Bladder and Dysfunctional

Voiding.

Ulla Sillén, Sofia Sjöström, Monika Doroszkiewicz, Helena Ekdahl, Michaela Dellenmark-Blom
The Journal of urology - 2020

Surgeon

J. Bloemeke, S. Witt, M. Bullinger, J. Dingemann, Michaela Dellenmark-Blom, J. Quitmann
European Journal of Pediatric Surgery - 2020

Clinical Factors Affecting Condition-Specific Quality-of-Life Domains in Pediatric Patients after Repair of Esophageal Atresia: The Swedish-German EA-QOL

Study

Michaela Dellenmark-Blom, J. Quitmann, J. Dingemann, S. Witt, B. M. Ure, M. Bullinger, L. Jonsson, V. Gatzinsky, C. Dingemann
European Journal of Pediatric Surgery - 2020

Literature.

Gundela Holmdahl, Michaela Dellenmark-Blom, Agneta Nordenskjöld, Sofia Sjöström
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2020

Children and adolescents with VACTERL association: health-related quality of life and psychological well-being in children and adolescents and their

parents.

A-M Kassa, Michaela Dellenmark-Blom, J Thorsell Cederberg, G Engvall, H Engstrand Lilja
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation - 2020

The prevalence and role of coping strategies in the nutritional intake of children born with esophageal atresia: a condition-specific

approach

Michaela Dellenmark-Blom, John Chaplin, J. H. Quitmann, L. Jönsson, V. Gatzinsky, J. Dingemann, Kate Abrahamsson
Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus - 2019

Quality of Life in Parents of Children Born with Esophageal

Atresia.

Stefanie Witt, Michaela Dellenmark-Blom, Jens Dingemann, Carmen Dingemann, Benno M Ure, Barbara Gomez, Monika Bullinger, Julia Quitmann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery = Zeitschrift fur Kinderchirurgie - 2019

study.

Stefanie Witt, Michaela Dellenmark-Blom, Sofie Flieder, Jens Dingemann, Kate Abrahamsson, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Benno Ure, Carmen Dingemann, Monika Bullinger, Rachel Sommer, Julia Hannah Quitmann
Child: care, health and development - 2019

Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish

Cohort.

Sofie Flieder, Michaela Dellenmark-Blom, Stefanie Witt, Carmen Dingemann, Julia H Quitmann, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Barbara Gómez Dammeier, Monika Bullinger, Benno M Ure, Kate Abrahamsson, Jens Dingemann
European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie - 2019

Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional

study.

Stefanie Witt, Janika Bloemeke, Monika Bullinger, Jens Dingemann, Michaela Dellenmark-Blom, Julia Quitmann
BMC pediatrics - 2019

research

Michaela Dellenmark-Blom, Sofia Sjöström, Kate Abrahamsson, Gundela Holmdahl
Quality of Life Research - 2019

Clinical predictors and prevalence of receiving special preschool/school support in children with repaired esophageal

atresia

Michaela Dellenmark-Blom, L. Jonsson, V. Gatzinsky, Kate Abrahamsson
Journal of Pediatric Surgery - 2018

The Esophageal-Atresia-Quality-of-life Questionnaires: Feasibility, Validity and Reliability in Sweden and

Germany.

Michaela Dellenmark-Blom, Jens Dingemann, Stefanie Witt, Julia H Quitmann, Linus Jönsson, Vladimir Gatzinsky, John Chaplin, Monika Bullinger, Sofie Flieder, Benno M Ure, Carmen Dingemann, Kate Abrahamsson
Journal of pediatric gastroenterology and nutrition - 2018

Development and pilot-testing of a condition-specific instrument to assess the quality-of-life in children and adolescents born with esophageal

atresia.

Michaela Dellenmark-Blom, Kate Abrahamsson, J H Quitmann, R Sommer, S Witt, J Dingemann, S Flieder, Linus Jönsson, V Gatzinsky, M Bullinger, B M Ure, C Dingemann, John Chaplin
Diseases of the esophagus : official journal of the International Society for Diseases of the Esophagus - 2017

Patient-reported outcomes in children and adolescents born with esophageal

atresia

Michaela Dellenmark-Blom
2017

patients.

Michaela Dellenmark-Blom, John Chaplin, Vladimir Gatzinsky, Linus Jönsson, Helena Wigert, Jeanette Apell, Ulla Sillén, Kate Abrahamsson
Journal of pediatric surgery - 2016

Macrophage Phenotype Is Associated With the Regenerative Response in Experimental Replacement of the Porcine

Esophagus.

Linus Jönsson, Michaela Dellenmark-Blom, Lars-Göran Friberg, Vladimir Gatzinsky, Olof Holmquist, Eva Jennische, Anders Sandin, Kate Abrahamsson
Artificial organs - 2016

Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent

perspective

Michaela Dellenmark-Blom, John Chaplin, Linus Jönsson, Vladimir Gatzinsky, J. H. Quitmann, Kate Abrahamsson
Child Care Health and Development - 2016

research.