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University of Gothenburg

List of publications: Stepstones

1. Saarijärvi M, Wallin L, Moons P, Gyllensten H, Bratt EL. Factors affecting adolescents' participation in randomized controlled trials evaluating the effectiveness of healthcare interventions: the case of the STEPSTONES project. BMC Medical Research Methodology (2020) 20:205 doi.org/10.1186/s12874-020-01088-7

2. Brorsson AL, Bratt EL, Moons P, Sparud-Lundin C. Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study protocol. BMJ Open 2020 Apr 14;10(4):e036496. doi: 10.1136/bmjopen-2019-036496.

3. Skogby S, Bratt EL, Burström Å. ADHD symptoms as a potential driver to cannabis use in young persons with complex congenital heart defects. Canadian Journal of Cardiology. 2019 Dec;35(12):1861.e1. doi: 10.1016/j.cjca.2019.10.004. Doi: https://doi.org/10.1016/j.cjca.2019.10.004. Letter to the editor.

4. Saarijärvi M, Moons P, Wallin L, Gyllensten H, Bratt EL. Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-methods process evaluation study (the STEPSTONES project). BMJ Open. 2019. Aug 2;9(8):e028229. doi: 10.1136/bmjopen-2018-028229.

5. Acuña Mora M, Saarijärvi M, Sparud-Lundin C, Bratt EL, Moons P, Goossens E. The scope of research on transfer and transition in young persons with chronic conditions. Journal of Adolescent Health. 2019 Nov;65(5):581-589. doi: 10.1016/j.jadohealth.2019.07.014.

6. Acuña Mora M, Saarijärvi M, Sparud-Lundin C, Moons P, Bratt EL. Empowering young persons with congenital heart disease: using intervention mapping to develop a transition program-the STEPSTONES project. Journal of Pediatric Nursing Jan-Feb 2020;50:e8-e17. doi: 10.1016/j.pedn.2019.09.021.

7. Acuña Mora M, Sparud-Lundin C, Burström Å, Hanseus Å, Rydberg A, Moons P, Bratt EL. Patient empowerment and its correlates in young persons with congenital heart disease.

8. Acuña Mora M, Sparud-Lundin C, Burström Å, Hanseus Å, Rydberg A, Moons P, Bratt EL. Patient empowerment and its correlates in young persons with congenital heart disease. Eur J of Cardiovasc Nurs 2019, Vol. 18(5) 389–398. doi: 10.1177/1474515119835434

9. Burström Å, Acuña Mora M, Öjmyr-Joelsson M, Sparud-Lundin C, Rydberg A Hanseus K, Frenckner B, Nisell M, Moons P, Bratt EL. Ready for transfer to adult care? - a triadic evaluation of transition readiness in adolescents with congenital heart disease and their parents. Journal of Family Nursing. 2019 Aug;25(3):447-468. doi: 10.1177/1074840719864255.

10. Burström Å, Acuña Mora M, Öjmyr-Joelsson M, Sparud-Lundin C, Rydberg A Hanseus K, Frenckner B, Nisell M, Moons P, Bratt EL. Parental Uncertainty About Transferring Their Adolescent with Congenital Heart Disease to Adult Care. Journal of Advanced Nursing. 2019 Feb;75(2):380-387. doi: 10.1111/jan.13852.

11. Acuña Mora M, Luyckx K, Sparud-Lundin C, Peeters M, van Staa A, Sattoe J, Bratt EL, Moons P. Patient empowerment in young persons with chronic conditions: psychometric properties of the Gothenburg Young Persons Empowerment Scale (GYPES). PLoS One. 2018 Jul 20;13(7). doi: 10.1371/journal.pone.0201007

12. Bratt EL, Burström Å, Hanseus K, Rydberg A, Berghammer M. Do not forget the parents- Parents concerns during transition to adult care for adolescents with congenital heart disease. Child Care Health and Development. 2018 Mar;44(2):278-284. doi:10.1111/cch.12529

13. Burström Å, Bratt EL, Nisell M, Freckner B, Rydberg A, Hanseus K, Öjmyr-Joelsson M. Adolescents with congenital heart disease: their opinions about the preparation for transfer to adult care. European Journal of Pediatrics. 2017 Jul;176(7):881-889. doi: 10.1007/s00431-017-2917-9.

14. Sparud-Lundin C, Berghammer M, Moons P, Bratt EL. doi: 10.1186/s12913-017-2192-5.

Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based survey. BMC Health Services Research. 2017 Apr 11;17(1):260. doi 10.1186/s12913-017-2192-5

15. Acuna Mora M, Sparud-Lundin S, Bratt EL, Moons P. Person-centered transition program to empower adolescents with congenital heart disease in the transition to adulthood: study protocol for a hybrid randomized controlled trial (STEPSTONES project). BMJ Open. 2017 Apr 17;7(4):e014593. doi. 10.1136/bmjopen-2016-014593

16. Acuña Mora M, Moons P, Sparud-Lundin C, Bratt EL, Goossens E. Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping review. Systematic Reviews. 2016 Sep 29;5(1):166. doi.10.1186/s13643-016-0344-z

17. Burström Å, Öjmyr-Joelsson M, Bratt EL, Lundell B, Nisell M. Adolescents with Congenital Heart Disease and their parents - Needs before transfer to adult care. Journal of Cardiovascular Nursing. 2016 Sep-Oct;31(5):399-404. doi: 10.1097/JCN.0000000000000288

18. Asp A, Bratt EL, Bramhagen AC. Transfer to adult care - Experiences of young adults with Congenital Heart Disease. Journal of Pediatric Nursing. 2015 Sep-Oct;30(5):e3-e10. doi: 10.1016/j.pedn.2015.05.025.

Manuscripts

1. Acuña Mora M, Koen Luyckx, Sparud-Lundin C, Moons P, Bratt EL. Does patient empowerment has a predictive effect over other patient-reported outcomes?

Accepted abstracts

1. Sparud-Lundin C, Brorsson AL, Bratt EL, Moons P, Hällström M. Evaluating a personcentred transition careprogram foradolesents with type 1 diabetesin the transtion to adulthood: The STEPSTONES_DIAB project. Centrum för personcentrerad vård (GPCC) 10-års jubileumskonferens 6-7 feb 2020, Göteborg.

2. Saarijärvi M, Wallin L, Gyllensten H, Moons P, Bratt EL. Processutvärdering av ett personcentrerat övergångsprogram för ungdomar med medfödda hjärtfel i övergång till vuxenlivet – STEPSTONES-projektet. Centrum för personcentrerad vård (GPCC) 10-årsjubileumskonferens 6-7 feb 2020, Göteborg.

3. Burström Å, Acuna Mora M, Sparud-Lundin C, Ryberg A, Hanséus K, Moons P, Bratt EL. Lack of Knowledge about Contraception and Pregnancy in Adolescent Girls with Congenital Heart Disease – There is Room for Improvement. 53rd Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 15-18 May 2019, Seville, Spain.

4. Bratt EL, Saarijärvi M, Acuna Mora M, Sparud-Lundin C, Moons P. Transition program to empower adolescents with chronic conditions in their transition to adulthood: methods and rationale for the STEPSTONES project. Forte talks 26-27 mars 2019. Stockholm. www.fortetalks.se

5. Bratt EL, Acuna Mora M, Saarijärvi M, Brorsson AL, Skogby S, Sparud-Lundin C. Person-centered and Empowering Care for Adolescents with Chronic Conditions during Transition to Adulthood - workshop. SAHM 2019 Annual Meeting Psychological Well-being: International Transcultural Perspectives. March 6-9, 2019 Washington Marriott Wardman Park Washington, DC, USA.

6. Burström Å, Acuña Mora M, Sparud-Lundin C, Rydberg A Hanseus K, Moons P, Bratt EL. Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart disease. SAHM 2019 Annual Meeting Psychological Well-being: International Transcultural Perspectives. March 6-9, 2019 Washington Marriott Wardman Park Washington, DC, USA

7. Acuña Mora M, Moons P, Burström Å, Sparud-Lundin C, Rydberg A, Hanseus K, Bratt EL. Illness perceptions in adolescents with congenital heart disease and its association with patient reported outcomes. European Society of Cardiology Congress. 25-29 Aug 2018. Munchen, Tyskland.

8. Burström Å, Acuña Mora M, Öjmyr-Joelsson M, Sparud-Lundin C, Rydberg A, Hanseus K, Frenckner B, Nisell M, Moons P, Bratt EL. Ready for the transfer to the adult care - factors associated with transition readiness in adolescents with congenital heart disease. 52 Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 9-11 Maj 2018, Aten, Grekland.

9. Acuna Mora, M. Sparud-Lundin, C. Burström, Å. Hanseus, K. Rydberg, A. Moons, P. Bratt, EL. Level of empowerment and its correlates in young persons with congenital heart disease. European Society of Cardiology Congress. 26-30 Aug 2017. Barcelona, Spanien.

10. Burström, Å. Acuna Mora, M. Sparud-Lundin, C. Hanseus, K. Rydberg, A. Öjmyr-Joelsson, M. Nisell, M. Frenckner, B. Moons, P. Bratt, EL. Readiness for transfer in adolescents with congenital heart disease. 7th World congress of Pediatric Cardiology and Cardiac Surgery. 16-21 juli 2017. Barcelona, Spanien

11. Bratt EL, Sparud-Lundin C, Acuña Mora M, Moons P. The STEPSTONES project - Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood. ISTAR conference (Individual Self-esteem and Transition to Adolescence with Respect). Enablers and barriers for successful transition from childhood to adulthood. 19-21 juni 2017, Borås.

12. Sparud-Lundin C, Berghammer M, Moons P, Bratt EL. Health care providers’attitudes towards transfer and transition in young persons with long term illness. ISTAR conference (Individual Self-esteem and Transition to Adolescence with Respect). Enablers and barriers for successful transition from childhood to adulthood. 19-21 juni 2017, Borås.

13. Sparud-Lundin C, Berghammer M, Moons P, Bratt EL. Sjuksköterskors och läkares uppfattningar om överföring från barn- till vuxensjukvård av unga med långvariga sjukdomar. Barnveckan. 24-27 april 2017. Göteborg. Posterpresentation.

14. Acuña Mora M, Sparud-Lundin C, Luyckx K, Bratt EL, Moons P. Empowerment in congenital heart disease: psychometric properties of the Gothenburg Young Persons Empowerment Scale (GYPES). EuroHeart Care. Maj 2017. Jönköping.

15. Acuña Mora M, Moons P, Sparud-Lundin C, Bratt EL. Using intervention mapping in developing complex nursing interventions - the STEPSTONES transition program for adolescents with chronic conditions. The Future Direction of European Nursing and

Nursing Research. Jointly convened by: the European Academy of Nursing Science & the Swedish Society of Nursing. Malmö 4-7 Juli. 2017.

16. Acuña Mora M, Bratt EL, Sparud-Lundin C, Moons P. Hybrid experimental design: A suitable design to tackle contamination of control groups. Nordic Conference in Nursing Research. Stockholm 15-17 Juni 2016.

17. Burström Å, Bratt EL, Frenckner B, Nisell M, Rydberg A, Hanseus K, Öjmyr-Joelsson M. Responsibility, knowledge and trust – Important aspects in the preparation to the transfer to adult care. 50th Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 2-4 juni 2016, Rom, Italien.

18. Moons P, Sparud-Lundin C, Acuña Mora M, Bratt EL. Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood: Rationale and methods of the STEPSTONES-ConHD project. 50th Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 2-4 juni 2016, Rom, Italien.

19. Burström Å, Öjmyr-Joelsson, Bratt EL, Lundell B, Nisell M. Young people with congenital heart disease need to be prepared for the shift in responsibility - Safety and Trust during Transfer to adult care. 49th Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 20-23 Maj 2015, Prag, Tjeckien.

20. Burström Å, Bratt EL, Nisell M, Hanseus K, Rydberg A, Frenckner B, Öjmyr-Joelsson M. Young people with Congenital Heart Disease. How to prepare for adult care - their own perspective? 49th Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 20-23 Maj 2015, Prag, Tjeckien.

21. Asp A, Bratt EL, Bramhagen AC. Upplevelser kring överföring till vuxensjukvård. Unga vuxna med medfödda hjärtfel. Barnveckan 20-23 april 2015, Stockholm. Sweden.

Presentations

1. Bratt EL. Transfer from pediatric to adult care- the Stepstones project. Nordic meeting – Hjärtebarnsfonden. Gothenburg, Sweden. 26 Oct 2019.

2. Sparud Lundin, C. Överföring från barn till vuxen. Regiondag Halland för diabetesvård 13 november 2019, Kungsbacka. Inbjuden föreläsare.

3. Brorsson, A-L. Sparud Lundin, C. Överföring från barn till vuxen. Diabetologiskt vårmöte 13-15 mars 2019, Stockholm, Sverige. Inbjudna som föredragshållare och workshop.

4. Burström, A, Moons, P. Transition medicine: from childhood to adulthood. Swedish Society of Medicine. 23 oktober 2018. Stockholm, Sverige. Inbjuden föreläsare.

5. Bratt, EL. Övergång från barn till vuxensjukvård – medfödda hjärtfel. Stepstones-projektet. Barnveckan. 23-27 april, 2018. Västerås, Sverige. Inbjuden föreläsare.

6. Moons, P. Transfer and transition of young persons with chronic disease: From eminence-based to evidence-based practice. Barnveckan. 23-27 april, 2018. Västerås, Sverige. Inbjuden föreläsare.

7. Moons P. Ensuring high quality life-long care: Holding providers responsible. 27th International Symposium on Adult Congenital Heart Disease. 15 september 2017. Cincinnati (OH), USA. Inbjuden föreläsare.

8. Bratt EL. Health care needs of adolescents with congenital heart disease: transition into adulthood. European Society of Cardiology Congress. 26-30 augusti 2017. Barcelona, Spanien. Inbjuden föreläsare.

9. Moons P. Landmark lecture: A life-cycle perspective on congenital heart disease: What happens beyond your clinic? 7th World Congress on Pediatric Cardiology and Cardiac Surgery. 21 juli 2017. Barcelona, Spanien. Inbjuden föreläsare.

10. Moons P. Location matters: pediatric versus adult hospitals. 7th World Congress on Pediatric Cardiology and Cardiac Surgery. 19 juli 2017. Barcelona, Spanien. Inbjuden föreläsare.

11. Bratt EL. Challenges in Parenting a Child with Heart Disease. 7th World Congress of Pediatric Cardiology and Cardiac Surgery. 16-21 juli 2017. Barcelona, Spanien. Inbjuden föreläsare.

12. Moons P. Research on transitional care: State of an art in transition. 29th European Academy of Childhood Disability preconference. 17 maj 2017. Amsterdam, Nederländerna. Inbjuden föreläsare.

13. Sparud-Lundin, C. Stepstones- Nationell undersökning av uppfattningar kring överföring av unga med kroniska sjukdomar), Forskningsdagen Sahlgrenska Akademin och Sahlgrenska Universitetssjukhuset. 2 march, 2017.Gothenburg, Sweden.

14. Acuna Mora, M. STEPSTONES forskningsprojekt. Forskningsdagen Sahlgrenska Akademin och Sahlgrenska Universitetssjukhuset. 2 march, 2017.Gothenburg, Sweden.

15. Bratt, EL. Adole7C forskningsprojekt. Forskningsdagen Sahlgrenska Akademin och Sahlgrenska Universitetssjukhuset. 2 march, 2017.Gothenburg, Sweden.

16. Moons P. Transfer and transition of young persons with chronic disease: What is it, and what’s the problem? Forskningsdagen Sahlgrenska Akademin och Sahlgrenska Universitetssjukhuset. 2 march, 2017.Gothenburg, Sweden.

17. Sparud-Lundin, C. Stepstones – en komplex intervention med syfte att stödja ungdomar med medfödda hjärtfel i övergången från barn- till vuxensjukvård. Design, upplägg och utmaningar. Nationell nätverksträff för disputerade sjuksköterskor inom barn hälso- och sjukvård. Forskningscentrum vid Örebros universitet, 6 april 2017.

18. Bratt EL, Sparud-Lundin. STEPSTONES-ConHD. Nationellt nätverksmöte för disputerade barnsjuksköterskor. 10-11 november 2016. Uppsala.

19. Bratt EL. STEPSTONES – the Swedish transition project. Nordic meeting in Pediatric Cardiology and Cardiac surgery. 21-23 september 2016. Båstad

20. Bratt EL. Parenting during transition. 50th Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 2-4 juni 2016, Rom, Italien.

21. Bratt EL. Stepstones-ConHD. Pediatrikens dag. Institutionen för kliniska vetenskaper vid Göteborgs universitet och Drottning Silvias Barn och ungdomssjukhus i Göteborg. 10 juni 2017.

22. Bratt EL. Stepstones-ConHD. Nationella regiondagar i barnhjärtsjukvård 12-13 maj 2016. Göteborg.

1. Sparud-Lundin, C. STEPSTONES-DIAB- ett överföringsprogram för att förbereda unga med typ 1 diabetes för vuxenliv och vuxensjukvård. Sticket Nr 3, 2019. (Barndiabetesfondens tidning)

2. Sparud-Lundin, C. Klivet in i vuxenvården. Allt om diabetes Nr 2, 2019 (Diabetesförbundets tidning).

3. Acuna Mora, M, Saarijärvi, M, Bratt, EL. STEPSTONES-pågående studie för att förbättra övergången till vuxenlivet för ungdomar med medfödda hjärtfel. Hjärtebarnet. 2018.

4. Bratt EL, Sparud-Lundin C. Ungdomar med kroniska sjukdomar och deras överföring från barn till vuxensjukvård- STEPSTONES – (Swedish Transition Effect Project Supporting Teenagers with Chronic Medical Conditions). Barnbladet. Aug 2016

5. Bratt EL. Från barn till vuxen – pågående forskningsprojekt om unga personer med långvariga sjukdomstillstånd. STEPSTONES-ConHD. Hjärtebarnet. Jan Volym 2016 Nummer 1.

6. Bratt EL. Från barn till vuxen – pågående forskningsprojekt om unga personer med långvariga sjukdomstillstånd. Barnbladet. Dec 2015.

Reports

1. Förberedd och sedd – Förutsättningar vid övergången från barn- till vuxensjukvård. Vårdanalys. 2019. Rapport 2019:6. https://www.v