Support intervention for people with a malignant brain tumour and their family members
Short description
A diagnosis of glioblastoma affects both the person living with the disease and their family members. In this project, we investigate how quality of life, well-being, everyday life and support needs change throughout the course of the illness. By following people with glioblastoma and their family members over time, we aim to increase our understanding of what support is needed and when it is most needed. This knowledge will be used to develop a person-centred model of family support that can contribute to more coordinated and accessible care throughout the disease trajectory.
The aim of the project is to investigate the health-related quality of life, emotional well-being, life situation, and support needs of individuals with high-grade brain tumors and their relatives. The study spans over time to, based on the results and existing literature, develop a model of support for these families where the right resources can be introduced at the right time during the disease's progression.
The model is intended to provide families with person-centered, close care based on interprofessional teamwork. Through collaboration between hospitals, municipalities, and other relevant entities for the family, this close care can enhance support from diagnosis to end-of-life care.
Researchers
Pernilla Ståhl
Ingela Henoch
Asgeir Jakola
Anja Smits
Bertil Rydenhag
Tomás Gòmes Vecchio