Support intervention for people with epilepsy in outpatient care
Short description
Epilepsy is one of the most common neurological disorders and is characterised by spontaneous, recurrent, uncontrolled electrical discharges in the nerve cells of the brain. Comorbidity and negative psychosocial factors affect the condition and make care more complex. There is a lack of knowledge about how care for people with epilepsy who are also affected by these factors should be designed in order to provide support based on each person’s specific needs. Our research group has studied this and is now working to develop a support intervention to enable more person-centred and equitable care in neurological outpatient services.
The aim of this project is to develop and implement a complex intervention that will result in a support intervention for people with epilepsy who are particularly vulnerable from a psychosocial and sociodemographic perspective.
This research project is important for improving care for people with epilepsy, an often overlooked group who do not currently receive the support they need. There are gaps in knowledge about the condition and its consequences within health care, social care, public authorities and among the general public. This lack of knowledge means that people with epilepsy do not always receive appropriate support from different services.
By developing systematic support adapted to these individuals’ specific needs, we can enable more person-centred and equitable care. This may improve their wellbeing and provide health care services with the clinical understanding and structure needed to offer appropriate interventions.
Researchers
Anneli Ozanne
Anna Hjort
Ewa-Lena Bratt
Johan Zelano,
Kristina Malmgren
Anna Edelvik
Klara Andersson
Kerstin Andrén