Together
Joint Package Together focuses on creating better coherence and continuity in care and support for people living with dementia and their relatives. The focus is on transitions between different parts of health care, social care and dental care, for example between the home, primary care, hospitals and municipal services. The aim is to reduce gaps, inequalities and lack of coordination that can lead to unnecessary suffering.
Within this joint package, co-created and scalable approaches are developed based on the needs of people living with dementia and their families. The research pays particular attention to situations where continuity often breaks down, from early identification and assessment to end-of-life care. Transitions between different forms of care are not only seen as risk points, but also as opportunities to strengthen participation, a sense of security and empowerment.
Support and coordination throughout the care pathway
Special attention is given to rare dementias, where the need for adapted care pathways and ethically sustainable diagnostic processes is particularly high. By mapping the entire dementia care and support system, barriers related to organisation, responsibility and governance are identified, with the aim of developing solutions that function across professional and organisational boundaries.
Knowledge, policy and shared solutions
The research is based on a multi-level approach that integrates individual, organisational and policy perspectives. Drawing on established studies and national quality registers, such as the H70 Study, SveDem, SKaPa, Senior Alert and the BPSD Register, knowledge is developed that can be translated into practical tools, monitoring indicators and policy recommendations.
Key questions concern how coherent and ethically sustainable care transitions can be designed between health care, social services and dental care. Other questions address which policy changes are required to create more equitable care pathways, particularly for people living with rare or underrepresented dementias, and how evidence-based tools can support professionals in complex ethical decision-making, improve continuity of care and reduce the burden on relatives.
The work is carried out in close collaboration with people living with dementia, relatives, care professionals and societal actors. Through DEMSAM’s research infrastructure, care transitions are studied in everyday settings, across social services, civil society and health care. The aim is to contribute to more coherent, equitable and sustainable care and support systems, where no one falls through the gaps.