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Om Niclas Hagen
I did my undergraduate studies at Lund University in genetics/molecular biology, as well as in sociology and political science in which I hold a masters degree. During 2009, I commenced my PhD studies in ethnology, working within the Basal Ganglia Disorders Linnaean Consortium (http://www.med.lu.se/bagadilico). My general research interest concerns the social and cultural aspects of science, particularly in relation to the biomedical sciences. As a scientific “hybrid”, which has experience from the natural, social and cultural sciences, I also have a strong interest in various theoretical and practical aspects of interdisciplinary science.
In 2013, I defended my Ph.D. thesis ‘Modern Genes –Body, Rationality, and Ambivalence’. The main objective of the thesis was to investigate the linkage between everyday life with a genetic disease and intrinsic patterns of modernity. The thesis is a compilation thesis that contains four individual articles each addressing the everyday experience of a genetic disease from different angles, with different research questions and theoretical presumptions. Each of the four articles has performed ethnographic investigations, mainly through semi-structured interviews, with individuals who in various ways are affected by Huntington’s disease, which is a genetic brain disease. Between 2013-2016, I worked in the interdisciplinary project Treatments for the Future - RNA editing for treatment of Huntington’s disease, which was a collaboration between medical researchers and researchers working within cultural sciences at Lund University. The medical side of the project aims at developing new treatments for Huntington’s disease, whereas the cultural scientific side of the project investigates the involvement and participation of patients in medical research.
Currently I am part of the multidisciplinary project Taking science to the crowd: Researchers, programmers and volunteer contributors transforming science online funded by the Marianne and Marcus Wallenberg foundation. The aim of the project is contribute to our understanding of how digital technologies are transforming the production of scientific knowledge as a consequence of scientists enlisting crowds of volunteers to contribute to scientific projects involving big data.
Between 2015-2017, I was the research coordinator for the Network for Medical Humanities, as well as the coordinator for the Heritage and Wellbeing research cluster within at Centre for Critical Heritage Studies at Gothenburg University. Since 1st of June 2017, I am working as a research coordinator at Centre for Digital Humanities at Gothenburg University.
Niclas Hagen, Dep. of Philosophy, Linguistics and Theory of Science (FLoV) Researcher Email: email@example.com Office phone: 031-786 5074 Office: Pavilion at the FLoV. Postal address: Box 200, 40530 Göteborg Visiting address: Olof Wijksgatan 6, 41255 Göteborg
Scientific publications (peer-reviewed)
Hagen, N. (2017) ’The lived experience of Huntington’s disease: A phenomenological perspective on genes, the body and the lived experience of a genetic disease’ Health, 1-15. DOI: 10.1177/1363459316688516
Punzi, E., Hagen, N. (2017) ’The incorporation of literature into clinical practice’, The Humanistic Psychologist, Vol 45(1), 49-61.
Hagen, N. (2013) ’Modern Genes – Body, Rationality and Ambivalence. Lund: Lund Studies in Arts and Cultural Sciences 2.
Hagen, N. (2013) ’The Cultural Paradox of Predictive Genetic Testing for Huntington’s Disease, Ethnologia Europaea, 43(1), 55-67.
Hagen, N. (2012). ‘A molecular body in a digital society. From practical biosociality to online biosociality’, in S. Lundin, M. Liljefors, A. Wiszmeg (eds) The Atomized Body. Lund: Nordic Academic Press.
Hagen, N. Lundin, S., O’Dell, T., Petersén, Å. (2012). ‘For Better or for Worse: Lifeworld, System and Family Caregiving for a Chronic Genetic Disease’, Culture Unbound, 4, 537-557. doi:10.3384/cu.2000.1525.124537
Wiszmeg, A., Lundin, S., Torkelson, E., Hagen, N., Lundberg, C. (2012). ‘Difficult Questions and Ambivalent Answers on Genetic Testing’, Culture Unbound, 4, 463-480. doi:10.3384/cu.2000.1525.124463
Hagen, N., Hedlund, M., Mulinari, S., Lundin, S., Kristoffersson, U. (2012). ‘Genetics and democracy -what is the issue?’, Journal of Community Genetics, doi: 10.1007/s12687-012-0109-x.
Hagen, N. (2011). ‘I gränslandet mellan genotyp och fenotyp – motsägelser i samband med prediktiv genetisk testning’, Socialmedicinsk tidskrift, 88(3): 266-272.
Isenberg, B., Hagen, N. (2011). ‘The Manifestation of Modernity in Genetic Science’ in R. Nate, B. Klüsner (eds) Biology and Culture. Würzburg: Königshausen & Neumann.
Other academic publications
Hedlund, M., Hagen, N., Kristoffersson, U. (2012) ‘Editorial: Genetics and Democracy’, Journal of Community Genetics, 3(2): 57-59.
Daun, Å (2009). Arv och Miljö. Stockholm/Stehag: Brutus Östlings Förlag Symposium. Review in RIG, nr. 2, 2010.
Kullenberg, C., Hagen, N. (2016)‘Empati och solidaritet tar nya former på nätet’, Svenska Dagbladet, 160402.
Hanson, K., Hagen, N. (2010). ‘DNA-tester väcker svåra frågor som kräver svar’, Svenska Dagbladet, 101020, s. 5.
The wickedness of citizen science, law and planetary health:
grappling with trust, democracy and
Making particularity travel: Trust and citizen science data in Swedish environmental
Ethical boundary work in citizen science: Themes of
Awareness, views and experiences of Citizen Science among Swedish researchers — two
Certainty in locality: citizen science, observation and
Dick Kasperowski, Niclas Hagen
Society for Social Studies of Science (4S), 2020, Prague, August 18 - 21, 2020 : Locating and Timing Matters: Significance and agency of STS in emerging worlds - 2020-01-01
Scaling up and rolling out through the Web
The “platformization” of citizen science and scientific
Nordic Journal of Science and Technology Studies - 2020-01-01
A Convergence of Methodologies: Notes on Data-Intensive Humanities
Nina Tahmasebi, Niclas Hagen, Daniel Brodén, Mats Malm
CEUR workshop proceedings ; 2364. Proceedings of the 4th Conference on Digital Humanities in the Nordic Countries, Copenhagen, Denmark, March 5-8, 2019 / edited by Costanza Navarretta, Manex Agirrezabal, Bente Maegaard - 2019-01-01
Medborgarforskningen former: Perception, epistemisk representation och
Tagging, Pinging and Linking – User Roles in Virtual Citizen Science
The lived experience of Huntington’s disease: A phenomenological perspective on genes, the body and the lived experience of a genetic
Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine - 2018-01-01
Dignity and the goals of
Agentiell realism och diffraktiv
The incorporation of literature into clinical
Symposium: Migration, transkulturella möten och mental
Neuropsykiatriska diagnoser - Ett resultat av ideologiska, politiska och sociala faktorer snarare än vetenskapliga upptäckter? Ett öppet seminarium med professor Sami Timimi, University of
Religion, ritualer och tvång. Öppet seminarium med professor Kate Loewenthal, Royal Hollway University of
Empati och solidaritet tar nya former på
Joining Reference and Representation —Citizen Science as Resistance
Dick Kasperowski, Niclas Hagen, Christopher Kullenberg, Antonia Walford, Kevin Matthew Smith, Max Liborion, Ned Prutzer, Sarah T. Hamid
Society for Social Studies of Science 2015 Annual Meeting November 11-14 Denver, Colorado - 2015-01-01
Designing Futures for Learning in the Crowd: New Challenges and Opportunities for
Marisa Ponti, Niclas Hagen, Thomas Hillman, Dick Kasperowski, Christopher Kullenberg, Igor Stankovic
Lindwall, O., Häkkinen, P., Koschman, T. Tchounikine, P. & Ludvigsen, S. (Eds.) (2015). Exploring the Material Conditions of Learning: The Computer Supported Collaborative Learning (CSCL) Conference - 2015-01-01