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Exploring documentation in a person-centred care pathway for persons with chronic health conditions

Research project
Active research
Project period
2019 - 2022
Project owner
The Institute of Health and Care Sciences and Departments for Neurosurgery and Department for Endocrinology, Sahlgrenska University Hospital, Gothenburg, Sweden

Short description

In clinical care practice, the focus is often on identifying and treating a patient's health problems. This approach is also reflected in the patient documentation, and research shows that healthcare professionals find it challenging to document person-centred care. In this study, we investigate
1. the language and content of patient health records,
2. the patients' needs and use of documentation,
3. patient health records before and after the implementation of person-centred care.
The study is part of the Gothenburg Pituitary Gland Tumor Study (GoPT study), which evaluates the implementation of a person-centred care pathway.

Study group

 

Ann-Charlotte Olofsson, Registered Nurse, BSc. Sahlgrenska University Hospital, Center for Endocrine Metabolism, Gothenburg, Sweden

Birgit Heckemann (xhecbi), Project Lead, Registered Nurse, Ph.D. Institute of Health and Care Sciences and Gothenburg Centre for Person-centred Care, Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden

Christina Blomdahl, Registered Occupational Therapist, Ph.D. Södra Älvsborgs Hospital, Adult Psychiatric Clinic, Borås, Sweden

Daniel S. Olsson (xolssd), Medical Doctor, Associate Professor. Sahlgrenska University Hospital, Department of Endocrinology, Gothenburg, Sweden and Department of Internal Medicine and Clinical Nutrition, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

Eva Jakobsson Ung (xjakev), Principal Investigator GoPT Health and Care Sciences Research, Registered Nurse, Professor. Institute of Health and Care Sciences, Sahlgrenska Academy, Gothenburg University, Gothenburg, Sweden and Sahlgrenska University Hospital, Specialist Medicine, Gothenburg, Sweden

Sofie Jakobsson (xjakso), Registered Nurse, PhD. Institute of Health and Care Sciences and Gothenburg Centre for Person-centred Care, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

Further member of the GoPT project group

 

David Krabbe, Registered Psychologist, Ph.D. candidate. Sahlgrenska University Hospital, Department of Rehabilitation Medicine, Gothenburg, Sweden and Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

Eva Andersson, Registered Nurse. Sahlgrenska University Hospital, Specialist Medicine, Gothenburg, Sweden

Gudmundur Johannsson (xjgudn) Principal Investigator GoPT Endocrinology, Medical Doctor, Chief Physician, Professor. Sahlgrenska University Hospital, Department of Endocrinology, Gothenburg, Sweden and Institute of Medicine, Department of Internal Medicine and Clinical Nutrition, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

Oskar Ragnarsson (xragos), Medical Doctor, Associate Professor. Sahlgrenska University Hospital, Department of Endocrinology, Gothenburg, Sweden and Institute of Medicine, Department of Internal Medicine and Clinical Nutrition, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

Tobias Hallén, Medical Doctor, Ph.D. candidate. Sahlgrenska University Hospital, Department of Neurosurgery, Gothenburg, Sweden and Institute of Clinical Neuroscience, Department of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

Thomas Skoglund, Principal Investigator GoPT Neurosurgery, Medical Doctor, Associate Professor. Sahlgrenska University Hospital, Department of Neurosurgery, Gothenburg, Sweden and Institute of Clinical Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden

Publications

Title: Jakobsson, S, Ringström, G, Andersson, E, et al. Patient safety before and after implementing person‐centred inpatient care — A quasi‐experimental study. J Clin Nurs. 2019; 29: 602– 612. https://doi.org/10.1111/jocn.15120

Title: Jakobsson, S, Eliasson, B, Andersson, E, et al. Person‐centred inpatient care – A quasi‐experimental study in an internal medicine context. J Adv Nurs. 2019; 75: 1678– 1689. https://doi.org/10.1111/jan.13953

Title: Jakobsson Ung E, Olofsson A-C, Björkman I,  Hallén T, Olsson D,  Ragnarsson O, Skoglund T, Jakobsson S, Johannsson G. (2019). The pre- and postoperative illness trajectory in patients with pituitary tumours. Endocrine connections. 8. 10.1530/EC-19-0202.

Title: Titel: Jakobsson, Sofie & Olsson, Daniel & Andersson, Eva & Hallén, Tobias & Krabbe, David & Olofsson, Ann-Charlotte & Ragnarsson, Oskar & Skoglund, Thomas & Johannsson, Gudmundur & Jakobsson Ung, Eva. (2020). Extended support within a person-centred practice after surgery: protocol for a quasi- experimental study for patients with pituitary tumours (Preprint). 10.2196/preprints.17697.