Philip Moons

Researcher

Care in Long-term

Conditions

Mail

philip.moons@gu.se

Visiting address

Arvid wallgrens backe hus 1 och 2

41346 Göteborg

Postal address

Box 457

40530 Göteborg

Publications

Atrial Arrhythmias and Patient-Reported Outcomes in Adults with Congenital Heart Disease: an International
Study.

Benjamin Casteigt, Michelle Samuel, Laurence Laplante, Azadeh Shohoudi, Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Judith Brouillette, Philip Moons, Paul Khairy
Heart rhythm - 2021-01-01
Qualitative study of facilitators and barriers for continued follow-up care as perceived and experienced by young people with congenital heart disease in
Sweden

Sandra Skogby, Eva Goossens, Bengt Johansson, Philip Moons, Ewa-Lena Bratt
BMJ Open - 2021-01-01
Illness identity in adults with congenital heart disease: Longitudinal trajectories and associations with patient-reported outcomes and healthcare
use.

Liesbet Van Bulck, Eva Goossens, Silke Apers, Philip Moons, Koen Luyckx
Journal of advanced nursing - 2021-01-01
Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and
Risks?

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Journal of Cardiovascular Nursing - 2021-01-01
Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of Cardiovascular Nursing and Allied Professions (ACNAP), the ESC Working Group on Adult Congenital Heart Disease (WG ACHD), the Association for European Paediatric and Congenital Cardiology (AEPC), the Pan-African Society of Cardiology (PASCAR), the Asia-Pacific Pediatric Cardiac Society (APPCS), the Inter-American Society of Cardiology (IASC), the Cardiac Society of Australia and New Zealand (CSANZ), the International Society for Adult Congenital Heart Disease (ISACHD), the World Heart Federation (WHF), the European Congenital Heart Disease Organisation (ECHDO), and the Global Alliance for Rheumatic and Congenital Hearts (Global
ARCH)

Philip Moons, Ewa-Lena Bratt, J De Backer, Eva Goossens, Tim Hornung, O Tutarel, Liesl Zühlke , A Jairo Araujo, Edward Callus, H Gabriel, S Nauman, S Karen, Amy Verstappen, Y Hsiao-Ling , C Thomet
European Heart Journal - 2021-01-01
Smoking among adult congenital heart disease survivors in the United States: Prevalence and relationship with illness
perceptions.

Kristen R Fox, Rose Y Hardy, Philip Moons, Adrienne H Kovacs, Koen Luyckx, Silke Apers, Stephen C Cook, Gruschen Veldtman, Susan M Fernandes, Kamila White, Shelby Kutty, Jamie L Jackson
Journal of behavioral medicine - 2021-01-01
Rapid reviews: the pros and cons of an accelerated review
process.

Philip Moons, Eva Goossens, David R Thompson
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021-01-01
Mechanisms of Impact and Experiences of a Person-Centred Transition Programme for Adolescents With Chd: The Stepstones
Project

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMC Health Services Research - 2021-01-01
Influenza vaccination in congenital heart disease in the pre-COVID19 era: Coverage rate, patient characteristics and
outcome.

Philip Moons, Steffen Fieuws, Corinne Vandermeulen, Fouke Ombelet, Ruben Willems, Eva Goossens, Liesbet Van Bulck, Michèle de Hosson, Lieven Annemans, Werner Budts, Julie De Backer, Stéphane Moniotte, Arianne Marelli, Katya De Groote
The Canadian journal of cardiology - 2021-01-01
Research Electronic Data Capture (REDCap): tackling data collection, management, storage, and privacy
challenges.

Liesbet Van Bulck, Martien Wampers, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021-01-01
Different levels of care for follow-up of adults with congenital heart disease: a cost analysis scrutinizing the impact on medical costs, hospitalizations, and emergency department
visits.

Ruben Willems, Fouke Ombelet, Eva Goossens, Katya De Groote, Werner Budts, Stéphane Moniotte, Michèle de Hosson, Liesbet Van Bulck, Ariane Marelli, Philip Moons, Julie De Backer, Lieven Annemans
The European journal of health economics : HEPAC : health economics in prevention and care - 2021-01-01
Covered stent placement for treatment of coarctation of the aorta: immediate and long-term
results.

Jan Stassen, Pieter De Meester, Els Troost, Leen Roggen, Philip Moons, Marc Gewillig, Alexander Van De Bruaene, Werner Budts
Acta cardiologica - 2021-01-01
Self-rated health status (EQ-5D) in adults with congenital heart defect around the
globe

Goedele Belaen, Philip Moons, Eva Goossens, Koen Luyckx, Silke Apers, Adrienne Kovacs, Erwin Oechslin, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, Chun-Wei Lu, Jamie Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Marianne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan Fernandes, Kamila White, Edward Callus, Shelby Kutty, Liesbet Van Bulck
EuroGUCH 2021, the 12th European Meeting on Adult Congenital Disease, 4-5 May, 2021. - 2021-01-01
Identity functioning and eating disorder symptomatology: The role of emotion regulation
strategies

Margaux Verschueren, Laurence Claes, Nina Palmeroni, Leni Raemen, T Buelens, Philip Moons, Koen Luyckx
ISRI: International Society for Research on Identity, 3-4 June 2021. - 2021-01-01
Provision of palliative care to adults with congenital heart disease at the end of
life

Liesbet Van Bulck, Eva Goossens, Koen Luyckx, Fouke Ombelet, Ruben Willems, Michele de Hosson, Lieven Annemans, Werner Budts, Julie De Backer, Stephane Moniotte, Ariane Marelli, Katya De Groote, Philip Moons
European Journal of Cardiovascular Nursing 2021; 20: i31-i32 - 2021-01-01
Patient Reported Outcome of Adults with CHD Across the
World

Philip Moons
Asia-Pacific Pediatric Cardiac Society (APPCS 2021), 17-18 July 2021. - 2021-01-01
Transition in patients with developmental
disabilities

Philip Moons
31st International Symposium on Adult Congenital Heart Disease – Virtual conference (invited lecture: 15 October 2021) - 2021-01-01
The Stepstones project: Development and first
experiences

Philip Moons
Third European Symposium on Transition – Virtual conference (invited lecture: 9 September 2021) - 2021-01-01
Patient-Reported Outcomes next level: Contemporary issues in PRO
research

Philip Moons
PRO conference 2021 – Virtual conference (invited lecture: 10 June 2021) - 2021-01-01
Identity formation in adults with congenital heart disease: what have we learned so
far?

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Philip Moons
International Journal of Cardiology Congenital Heart Disease - 2021-01-01
A new editorial team for the European Journal of Cardiovascular Nursing: building on successes and mapping new
horizons.

Philip Moons, Jeroen M Hendriks, Catriona Jennings, Sandra Lauck
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021-01-01
Pain in adults with congenital heart disease - An international
perspective

Allison Leibold, Erin Eichler, Sukyung Chung, Philip Moons, Adrienne Kovacs, Koen Luyckx, Silke Apers, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, Jou-Kou Wang, Jamie Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Kamila White, Edward Callus, Shelby Kutty, Susan Fernandes
International Journal of Cardiology Congenital Heart Disease - 2021-01-01
Exercise prescription as
medicine

George Lui, Philip Moons
International Journal of Cardiology Congenital Heart Disease - 2021-01-01
Social and emotional factors as predictors of poor outcomes following cardiac
surgery.

Pernille Fevejle Cromhout, Lau Caspar Thygesen, Philip Moons, Samer Nashef, Sune Damgaard, Selina Kikkenborg Berg
Interactive cardiovascular and thoracic surgery - 2021-01-01
One year of methods corner: the way forward to innovate research in cardiovascular
care.

Philip Moons, Christopher S Lee
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021-01-01
Heart failure related to adult congenital heart disease: prevalence, outcome and risk
factors.

Stijn Arnaert, Pieter De Meester, Els Troost, Walter Droogne, Lucas Van Aelst, Johan Van Cleemput, Gabor Voros, Marc Gewillig, Bjorn Cools, Philip Moons, Filip Rega, Bart Meyns, Zhenyu Zhang, Werner Budts, Alexander Van De Bruaene
ESC heart failure - 2021-01-01
Transfer and transition practices in 96 European adult congenital heart disease
centres.

Corina Thomet, Markus Schwerzmann, Werner Budts, Julie De Backer, Massimo Chessa, Gerhard Diller, Andreas Eicken, Harald Gabriel, Pastora Gallego, Alessandro Giamberti, Jolien Roos-Hesselink, Lorna Swan, Gary Webb, Philip Moons
International journal of cardiology - 2021-01-01
Participants and non-participants – factors affecting representativeness and reach in randomized controlled trials evaluating the effectiveness of complex
interventions

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
Nordic Conference in Nursing Research, Copenhagen 4-6th October 2021 - 2021-01-01
How to select and measure PROMS and
PREMS?

Philip Moons
54th Annual Meeting of the Association for European Paediatric and Congenital Cardiology - Virtual Meeting. (invited lecture: 27 May 2021) - 2021-01-01
Patient engagement – Transfer and
transition

Philip Moons
12th European Meeting on Adult Congenital Heart Disease -EuroGUCH 2021. (invited lecture: 4 May 2021) - 2021-01-01
Quality of life in patients with CHD from a life-cycle
perspective

Philip Moons
54th Annual Meeting of the Association for European Paediatric and Congenital Cardiology - Virtual Meeting. (invited lecture: 25 May 2021) - 2021-01-01
A Delphi Study on the Healthcare Needs of Patients with Type 1 Diabetes during the Transition from Adolescence to Adulthood: Consensus among Patients, Primary Caregivers, and Healthcare
Providers.

Yuehtao Chiang, Peikwei Tsay, Chiwen Chen, Chienlung Hsu, Hsingyi Yu, Chiwen Chang, Fusung Lo, Philip Moons
International journal of environmental research and public health - 2021-01-01
Illness identity and adjusting to type I diabetes: A four-wave longitudinal
study.

Jessica Rassart, Leen Oris, Sofie Prikken, Eveline R Goethals, Koen Raymaekers, Ilse Weets, Philip Moons, Koen Luyckx
Health psychology : official journal of the Division of Health Psychology, American Psychological Association - 2021-01-01
Are missed appointments in an outpatient clinic for adults with congenital heart disease the harbinger for care
gaps?

Eva Goossens, Kristien van Deyk, Werner Budts, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021-01-01
Physical Functioning, Mental Health, and Quality of Life in Different Congenital Heart Defects: Comparative Analysis in 3538 Patients From 15
Countries.

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Fouke Ombelet, Silke Apers, Adrienne H Kovacs
The Canadian journal of cardiology - 2021-01-01
Sense of coherence in adults with congenital heart disease in 15 countries: Patient characteristics, cultural dimensions and quality of
life.

Philip Moons, Silke Apers, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Koen Luyckx
European journal of cardiovascular nursing - 2021-01-01
Diabetes-specific friend support in emerging adults with type 1 diabetes: Does satisfaction with support
matter?

Koen Raymaekers, Vicki S Helgeson, Sofie Prikken, Janne Vanhalst, Philip Moons, Eva Goossens, Cynthia A Berg, Koen Luyckx
Journal of behavioral medicine - 2021-01-01
Discontinuity of Cardiac Follow-Up in Young People With Congenital Heart Disease Transitioning to Adulthood: A Systematic Review and
Meta-Analysis.

Philip Moons, Sandra Skogby, Ewa-Lena Bratt, Liesl Zühlke, Ariane Marelli, Eva Goossens
Journal of the American Heart Association - 2021-01-01
Definitions, instruments and correlates of patient empowerment: A descriptive
review.

Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Patient education and counseling - 2021-01-01
Comprehensive cardiac rehabilitation for patients following infective endocarditis: results of the randomized CopenHeartIE
trial.

Trine Bernholdt Rasmussen, Ann-Dorthe Zwisler, Signe Stelling Risom, Kirstine Lærum Sibilitz, Jan Christensen, Henning Bundgaard, Philip Moons, Lau Caspar Thygesen, Jane Lindschou, Tone Merete Norekvål, Selina Kikkenborg Berg
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021-01-01
Identity Functioning and Eating Disorder Symptomatology: The Role of Cognitive Emotion Regulation
Strategies.

Margaux Verschueren, Laurence Claes, Nina Palmeroni, Leni Raemen, Tinne Buelens, Philip Moons, Koen Luyckx
Frontiers in psychology - 2021-01-01
Adverse functional remodelling of the subpulmonary left ventricle in patients with a systemic right ventricle is associated with clinical
outcome.

Béatrice Santens, Frederik Helsen, Alexander Van De Bruaene, Pieter De Meester, Anne-Laure Budts, Els Troost, Philip Moons, Piet Claus, Filip Rega, Jan Bogaert, Werner Budts
European heart journal. Cardiovascular Imaging - 2021-01-01
Identity formation in adults with congenital heart disease: what have we learned so
far?

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Philip Moons
International Journal of Cardiology Congenital Heart Disease - 2021-01-01
Factors perceived by young adults with congenital heart disease to affect continuing follow-up care after
transfer

Sandra Skogby, Eva Goossens, Bengt Johansson, Philip Moons, Ewa-Lena Bratt
Association for European Paediatric and Congenital Cardiology - AEPC 2021, Gothenburg - 2021-01-01
Patient-Reported Outcomes in Adults With Congenital Heart Disease Following Hospitalization (From
APPROACH-IS).

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Erwin Oechslin, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers, Adrienne H Kovacs
The American journal of cardiology - 2021-01-01
Florence Nightingale lecture: The contribution of empirical research in nursing to the care for patients with
CHD

Philip Moons
54th Annual Meeting of the Association for European Paediatric and Congenital Cardiology - Virtual Meeting. (invited lecture: 26 May 2021) - 2021-01-01
What we have learnt from
APPROACH-IS

Philip Moons
Newcastle Congenital Heart Disease Research Group Seminar. (invited lecture: 22 January 2021) - 2021-01-01
Patient-reported outcomes in adults with congenital heart disease: What did we learn from
APPROACH-IS?

Philip Moons, Koen Luyckx, Adrienne Kovacs
International Journal of Cardiology Congenital Heart Disease - 2021-01-01
Lifespan Perspective on Congenital Heart Disease Research: JACC State-of-the-Art
Review.

Gerhard-Paul Diller, Alexandra Arvanitaki, Alexander R Opotowsky, Kathy Jenkins, Philip Moons, Alexander Kempny, Animesh Tandon, Andrew Redington, Paul Khairy, Seema Mital, Michael Α Gatzoulis, Yue Li, Ariane Marelli
Journal of the American College of Cardiology - 2021-01-01
2020 ESC Guidelines for the management of adult congenital heart
disease.

Helmut Baumgartner, Julie De Backer, Sonya V Babu-Narayan, Werner Budts, Massimo Chessa, Gerhard-Paul Diller, Bernard Lung, Jolanda Kluin, Irene M Lang, Folkert Meijboom, Philip Moons, Barbara J M Mulder, Erwin Oechslin, Jolien W Roos-Hesselink, Markus Schwerzmann, Lars Sondergaard, Katja Zeppenfeld
European heart journal - 2021-01-01
Supplementing prediction by EuroSCORE with social and patient-reported measures among patients undergoing cardiac
surgery.

Pernille F Cromhout, Lau C Thygesen, Philip Moons, Samer Nashef, Sune Damgaard, Anne V Christensen, Trine B Rasmussen, Britt Borregaard, Lars Thrysoee, Charlotte B Thorup, Rikke E Mols, Knud Juel, Selina K Berg
Journal of cardiac surgery - 2021-01-01
Flash mob studies: a novel method to accelerate the research
process.

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2021-01-01
Phenotypes of adults with congenital heart disease around the globe: a cluster
analysis.

Edward Callus, Silvana Pagliuca, Sara Boveri, Federico Ambrogi, Koen Luyckx, Adrienne H Kovacs, Silke Apers, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Shelby Kutty, Philip Moons
Health and quality of life outcomes - 2021-01-01
Different Levels of Care for Follow-up of Adults with Congenital Heart
Disease

Ruben Willems, Fouke Ombelet, Eva Goossens, Katya De Groote, Werner Budts, Stephane Moniotte, Michele de Hosson, Liesbet Van Bulck, Ariane Marelli, Philip Moons, Julie De Backer, Lieven Annemans
Value in Health. 23, Suppl. 2, S408 - 2020-01-01
Nursing research in congenital heart disease has grown
up.

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020-01-01
Empowering young persons during the transition to
adulthood

Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
Transition from Pediatric to Adult Healthcare Services for Young Adults with Long-Term Conditions: An International Perspective on Nurses Roles and Interventions - 2020-01-01
A guide to improve your causal inferences from observational
data.

Koen Raymaekers, Koen Luyckx, Philip Moons
European journal of cardiovascular nursing - 2020-01-01
Comorbidity as a mediator of depression in adults with congenital heart disease: A population-based cohort
study.

Hsiao-Ling Yang, Nien-Tzu Chang, Jou-Kou Wang, Chun-Wei Lu, Yong-Chen Huang, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020-01-01
Long-Term Healthcare Utilization, Medical Cost, and Societal Cost in Adult Congenital Heart
Disease

R. Willems, F. Ombelet, E. Goossens, K. De Groote, W. Budts, S. Moniotte, M. de Hosson, L. Van Bulck, A. Marelli, Philip Moons, J. De Backer, L. Annemans
Congenital Heart Disease - 2020-01-01
Comparison of risk stratification models for pregnancy in congenital heart
disease.

Nathalie Denayer, Els Troost, Béatrice Santens, Pieter De Meester, Leen Roggen, Philip Moons, Kristel Van Calsteren, Werner Budts, Alexander Van De Bruaene
International journal of cardiology - 2020-01-01
Factors affecting adolescents’ participation in randomized controlled trials evaluating the effectiveness of healthcare interventions: the case of the STEPSTONES
project

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMC Medical Research Methodology - 2020-01-01
Recommendations for advance care planning in adults with congenital heart disease: a position paper from the ESC Working Group of Adult Congenital Heart Disease, the Association of Cardiovascular Nursing and Allied Professions (ACNAP), the European Association for Palliative Care (EAPC), and the International Society for Adult Congenital Heart Disease
(ISACHD).

Markus Schwerzmann, Eva Goossens, Pastora Gallego, Adrienne H Kovacs, Philip Moons, Lorna Swan, Daniel Tobler, Noémi de Stoutz, Harald Gabriel, Matthias Greutmann, Jolien W Roos-Hesselink, Piotr Z Sobanski, Corina Thomet
European heart journal - 2020-01-01
15-Year follow-up of regional right and left ventricular function after the Senning operation: a Colour-Doppler myocardial imaging
study.

Ana Moya, Pieter De Meester, Els Troost, Leen Roggen, Frank Weidemann, Philip Moons, Benedicte Eyskens, Piet Claus, Werner Budts, Alexander Van De Bruaene
Acta cardiologica - 2020-01-01
Creating the BELgian COngenital heart disease database combining administrative and clinical data (BELCODAC): Rationale, design and
methodology.

Fouke Ombelet, Eva Goossens, Ruben Willems, Lieven Annemans, Werner Budts, Julie De Backer, Katya De Groote, Stéphane Moniotte, Liesbet Van Bulck, Ariane Marelli, Philip Moons
International journal of cardiology - 2020-01-01
Healthcare system inputs and patient-reported outcomes: a study in adults with congenital heart defect from 15
countries.

Liesbet Van Bulck, Eva Goossens, Koen Luyckx, Silke Apers, Erwin Oechslin, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Philip Moons
BMC health services research - 2020-01-01
Caring for Child with CVD: From Childhood to
Adolescence

Philip Moons
Scientific Sessions 2020 of the American Heart Association – The Virtual Experience. (invited lecture: 13 Nov) - 2020-01-01
Process outcomes and interventions in improving health care transition in youth with congenital health
disease

Philip Moons
21st Annual Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care (30 Oct 2020) - 2020-01-01
A state-of-the-art review of direct observation tools for assessing competency in person-centred
care.

Nina Ekman, Charles Taft, Philip Moons, Åsa Mäkitalo, Boström Eva, Andreas Fors
International Journal of Nursing Studies - 2020-01-01
Patient-Reported Outcomes in Adults with Congenital Heart Disease who are Recovering after
Hospitalization

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, Jou-Kou Wang, Jamie Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan Fernandes, Kamila White, Edward Callus, Shelby Kutty, Apers Silke, Adrienne Kovacs
30th International Symposium on Adult Congenital Heart Disease - Virtual, 5-9 Oct 2020. - 2020-01-01
APPROACH-IS
II

Philip Moons
30th International symposium on Adult Congenital Heart Disease. Cincinnati Children’s Hospital – Virtual - 2020-01-01
The ACHD
nurse

Philip Moons
30th International symposium on Adult Congenital Heart Disease. Cincinnati Children’s Hospital – Virtual - 2020-01-01
The 2020 guidelines in adult congenital heart disease (ACHD): What’s in them for nurses &
AHPs?

Philip Moons, Eva Goossens
ACNAP Webinar, organised by the European Society of Cardiology - 2020-01-01
One in five patients with rapidly and persistently controlled early rheumatoid arthritis report poor well-being after 1 year of
treatment.

Kristien Van der Elst, Patrick Verschueren, Diederik De Cock, An De Groef, Veerle Stouten, Sofia Pazmino, Johanna Vriezekolk, Johan Joly, Philip Moons, René Westhovens
RMD open - 2020-01-01
Illness intrusiveness in parents of youth with type 1 diabetes: A longitudinal
study.

Sofie Prikken, Koen Raymaekers, Leen Oris, Ilse Weets, Philip Moons, Koen Luyckx
Pediatric diabetes - 2020-01-01
Pulmonary Hemodynamics and Outcome in a Large Cohort of Patients with Sinus Venosus Septal
Defect

L. van Dessel, B. Santens, E. Troost, P. De Meester, L. Roggen, F. Rega, B. Meyns, B. Cools, M. Gewillig, Philip Moons, L. Meier, W. Budts, A. Van de Bruaene
Congenital Heart Disease - 2020-01-01
Quality-of-life research in the European Journal of Cardiovascular Nursing: A call for more conceptual
scrutiny.

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020-01-01
Physical activity in adults with congenital heart
disease

Philip Moons
European Society of Cardiology Congress 2020 – The digital experience - 2020-01-01
How to assess quality of life in cardiac patients to follow outcomes of
care

Philip Moons
European Society of Cardiology Congress 2020 – The digital experience - 2020-01-01
Impact of the COVID-19 pandemic on ongoing cardiovascular research projects: considerations and
adaptations.

Liesbet Van Bulck, Adrienne H Kovacs, Eva Goossens, Koen Luyckx, Tiny Jaarsma, Anna Strömberg, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020-01-01
Outpatient volumes and medical staffing resources as predictors for continuity of follow-up care during transfer of adolescents with congenital heart
disease.

Sandra Skogby, Philip Moons, Bengt Johansson, Jan Sunnegårdh, Christina Christersson, Edit Nagy, Per Winberg, Katarina Hanséus, Aleksandra Trzebiatowska-Krzynska, Shalan Fadl, Eva Fernlund, Kalliopi Kazamia, Annika Rydberg, Liesl Zühlke, Eva Goossens, Ewa-Lena Bratt
International journal of cardiology - 2020-01-01
Energy Balance-Related Behaviors and Body Mass Index in Asian School-Aged Children With Congenital Heart
Disease.

Fu-Ling Yang, Bih-Shya Gau, Hsiao-Ling Yang, Ming-Tai Lin, Philip Moons
The Journal of cardiovascular nursing - 2020-01-01
Health behaviours reported by adults with congenital heart disease across 15
countries.

Christina E Holbein, James Peugh, Gruschen R Veldtman, Silke Apers, Koen Luyckx, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Philip Moons
European journal of preventive cardiology - 2020-01-01
Randomised controlled trial of a person-centred transition programme for adolescents with type 1 diabetes (STEPSTONES-DIAB): a study
protocol

Anna Lena Brorsson, Ewa-Lena Bratt, Philip Moons, A. Ek, E. Jelleryd, T. Torbjornsdotter, Carina Sparud Lundin
BMJ Open - 2020-01-01
Implantable Cardioverter-Defibrillators and Patient-Reported Outcomes in Adults with Congenital Heart Disease: an International
Study.

Valérie Lévesque, Laurence Laplante, Azadeh Shohoudi, Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Chun-Wei Lu, Jamie L Jackson, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Judith Brouillette, Benjamin Casteigt, Philip Moons, Paul Khairy
Heart rhythm - 2020-01-01
Emergence of a butterfly: the life experiences of type 1 diabetes Taiwanese patients during the 16-25 years old transition
period.

Yueh-Tao Chiang, Hsing-Yi Yu, Fu-Sung Lo, Chi-Wen Chen, Tzu-Ting Huang, Chi-Wen Chang, Philip Moons
International journal of qualitative studies on health and well-being - 2020-01-01
Impact of telephone follow-up and 24/7 hotline on 30-day readmission rates following aortic valve replacement -A randomized controlled
trial.

Stein Ove Danielsen, Philip Moons, Leiv Sandvik, Marit Leegaard, Svein Solheim, Theis Tønnessen, Irene Lie
International journal of cardiology - 2020-01-01
Propensity weighting: how to minimise comparative bias in non-randomised
studies?

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020-01-01
A Person-Centered Perspective on the Role of Peer Support and Extreme Peer Orientation in Youth with Type 1 Diabetes: A Longitudinal
Study.

Koen Raymaekers, Sofie Prikken, Leen Oris, Janne Vanhalst, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
Annals of behavioral medicine : a publication of the Society of Behavioral Medicine - 2020-01-01
Outcome of the Glenn procedure as definitive palliation in single ventricle
patients.

Astrid Vermaut, Pieter De Meester, Els Troost, Leen Roggen, Eva Goossens, Philip Moons, Filip Rega, Bart Meyns, Marc Gewillig, Werner Budts, Alexander Van De Bruaene
International journal of cardiology - 2020-01-01
The challenge of non-adherence to early rehabilitation after coronary artery bypass surgery: Secondary results from the SheppHeartCABG
trial.

Ida E Højskov, Lau C Thygesen, Philip Moons, Ingrid Egerod, Peter S Olsen, Selina K Berg
European journal of cardiovascular nursing - 2020-01-01
Facilitators of and barriers to reducing thirty-day readmissions and improving patient-reported outcomes after surgical aortic valve replacement: a process evaluation of the AVRre
trial.

Stein Ove Danielsen, Philip Moons, Marit Leegaard, Svein Solheim, Theis Tønnessen, Irene Lie
BMC health services research - 2020-01-01
Newly Developed Adult Congenital Heart Disease Anatomic and Physiological Classification: First Predictive Validity
Evaluation.

Fouke Ombelet, Eva Goossens, Alexander Van De Bruaene, Werner Budts, Philip Moons
Journal of the American Heart Association - 2020-01-01
Chronic illness as a 'family disease': The need for appropriate scientific methods for dyadic
research.

Philip Moons, Sofie Prikken, Koen Luyckx
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2020-01-01
The Social Context and Illness Identity in Youth with Type 1 Diabetes: A Three-Wave Longitudinal
Study.

Koen Raymaekers, Sofie Prikken, Janne Vanhalst, Philip Moons, Eva Goossens, Leen Oris, Ilse Weets, Koen Luyckx
Journal of youth and adolescence - 2020-01-01
Eating Disorder Symptomatology in Adolescent Boys and Girls: Identifying Distinct Developmental Trajectory
Classes.

Margaux Verschueren, Laurence Claes, Nina Palmeroni, Annabel Bogaerts, Amarendra Gandhi, Philip Moons, Koen Luyckx
Journal of youth and adolescence - 2020-01-01
Empowering young persons with congenital heart disease: Using intervention mapping to develop a transition program - the STEPSTONES
project.

Mariela Acuña Mora, Markus Saarijärvi, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Journal of pediatric nursing - 2020-01-01
Processutvärdering av ett personcentrerat övergångsprogram för ungdomar med medfödda hjärtfel i övergång till vuxenlivet –
STEPSTONES-projektet

Markus Saarijärvi, Lars Wallin, Hanna Gyllensten, Philip Moons, Ewa-Lena Bratt
Centrum för personcentrerad vård (GPCC) 10-årsjubileumskonferens 6-7 feb 2020, Konferenscentrum Wallenberg vid Sahlgrenska akademin i Göteborg - 2020-01-01
Transposition of the great arteries. Most importantly, how are adults with an arterial switch
doing?

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 23 May) - 2019-01-01
Patient wellness – assessing and maximizing quality of life for those we
serve

Philip Moons
The 29th annual international symposium on congenital heart disease in the adult. Stevenson WA, USA (invited lecture: 30 May) - 2019-01-01
Sport participation associated with fewer anxiety symptoms in adult congenital heart
disease.

Jong Ko, Adrienne H Kovacs, Kirsten Tecson, Junko Enomoto, Philip Moons, Ari M Cedars
Circulation 2019; 139 (suppl 1): P313. - 2019-01-01
Functionally univentricular heart beyond childhood: Physical activity and quality of
life.

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 25 May) - 2019-01-01
Heropnames in het ziekenhuis na een chirurgische of transkathetervervanging van de
aortaklep

Philip Moons, Stein Danielsen, Irene Lie
Bloedvaten, Hart, Longen/Vaisseaux, Coeur, Poumons - 2019-01-01
Patient perspective on mobile health in congenital heart
disease

Philip Moons
Johns Hopkins Bloomberg School of Public Health. Baltimore, MD, USA - 2019-01-01
Perceived Health Mediates Effects of Physical Activity on Quality of Life in Patients With a Fontan
Circulation.

Christina E Holbein, Gruschen R Veldtman, Philip Moons, Adrienne H Kovacs, Koen Luyckx, Silke Apers, Shanti Chidambarathanu, Alexandra Soufi, Katrine Eriksen, Jamie L Jackson, Junko Enomoto, Susan M Fernandes, Bengt Johansson, Luis Alday, Mikael Dellborg, Malin Berghammer, Samuel Menahem, Maryanne Caruana, Shelby Kutty, Andrew S Mackie, Corina Thomet, Werner Budts, Kamila White, Maayke A Sluman, Edward Callus, Stephen C Cook, Paul Khairy, Ari Cedars
The American journal of cardiology - 2019-01-01
Identity formation in adolescents and emerging adults with type 1
diabetes.

Margaux Verschueren, Leen Oris, Laurence Claes, Philip Moons, Ilse Weets, Koen Luyckx
Psychology, health & medicine - 2019-01-01
Aangeboren hartafwijkingen bij
volwassenen

Philip Moons, Danielle Robbers-Visser, Folkert Meijboom
Aangeboren hartafwijkingen bij volwassenen. Mulder BJM, Pieper PG, Meijboom FJ, Bouma B, van Melle JP, Hamer JPM. (Eds) - 2019-01-01
Illness identity: Capturing the influence of illness on the person's sense of
self.

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Leen Oris, Philip Moons
European journal of cardiovascular nursing - 2019-01-01
Experiences of informal caregivers after cardiac surgery: a systematic integrated review of qualitative and quantitative
studies.

Ann Kristin Bjørnnes, Philip Moons, Monica Parry, Sigrun Halvorsen, Theis Tønnessen, Irene Lie
BMJ open - 2019-01-01
Prevalence and Effects of Cigarette Smoking, Cannabis Consumption, and Co-use in Adults From 15 Countries With Congenital Heart
Disease.

Philip Moons, Koen Luyckx, Adrienne H Kovacs, Christina E Holbein, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers
The Canadian journal of cardiology - 2019-01-01
Burden of itch in ichthyosis: a multicentre study in 94
patients.

A M De Palma, J Mazereeuw-Hautier, K Giehl, A Hernández, M Merlos, Philip Moons, M A Morren
Journal of the European Academy of Dermatology and Venereology : JEADV - 2019-01-01
International research in cardiovascular nursing: Getting insight in the role of system
factors.

Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2019-01-01
Patient reported outcome data from the Care in Early Rheumatoid Arthritis trial: Opportunities for broadening the scope of treating to
target.

Kristien Van der Elst, Patrick Verschueren, Veerle Stouten, Sofia Pazmino, An De Groef, Diederik De Cock, Johan Joly, Philip Moons, René Westhovens
Arthritis care & research - 2019-01-01
A systematic review of quality of life research in medicine and health
sciences.

K Haraldstad, A Wahl, R Andenæs, J R Andersen, M H Andersen, E Beisland, C R Borge, E Engebretsen, M Eisemann, L Halvorsrud, T A Hanssen, A Haugstvedt, T Haugland, V A Johansen, M H Larsen, L Løvereide, B Løyland, L G Kvarme, Philip Moons, T M Norekvål, L Ribu, G E Rohde, K H Urstad, S Helseth
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation - 2019-01-01
Preparing the young adult with complex congenital cardiac disease to transfer from paediatric to adult
care

Philip Moons
In Wernovsky G, Anderson RH, Kumar K, Mussatto K, Redington AR, Tweddell JS, Tretter JT. Anderson’s Pediatric Cardiology (4th Ed.) (pp1451-1454) - 2019-01-01
Physical functioning and quality of life in different congenital heart defects: Comparative analysis in 3,589 patients from 15
countries

Philip Moons, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, CW Lu, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Fouke Ombelet, Silke Apers, Adrienne H Kovacs
Circulation 2019; 140 suppl 1: A16534. - 2019-01-01
Illness identity and diabetes-specific functioning across adolescence and emerging adulthood: A four-wave longitudinal
study

Jessica Rassart, Leen Oris, Sofie Prikken, Koen Raymaekers, Ilse Weets, Philip Moons, Koen Luyckx, Evelyne Goethals
45th Annual Conference ISPAD, Oct 30 – Nov 2, 2019, Boston, USA - 2019-01-01
Transition program for adolescents with congenital heart disease in transition to adulthood: protocol for a mixed-method process evaluation study (the STEPSTONES
project).

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
BMJ open - 2019-01-01
The Scope of Research on Transfer and Transition in Young Persons With Chronic
Conditions

Mariela Acuña Mora, Markus Saarijärvi, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt, Eva Goossens
Journal of Adolescent Health - 2019-01-01
Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart
disease

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
Abstract book of the 99th Berzelius conference, 21-22 February 2019, Stockholm, Sweden, p29-30. - 2019-01-01
Unraveling the role of healthcare system factors for continuing care of adolescents with congenital or rheumatic heart disease: Rationale and methods of the international
Adole7C-project

Ewa-Lena Bratt, Sandra Skogby, Liesl Zühlke, Bongani Mayosi, Bengt Johansson, Mikael Dellborg, Christina Christersson, Edit Nagy, Per Winberg, Ulf Thilén, Katarina Hanseus, Aleksandra Krzynska, Shalan Fadi, Eva Fernlund, Kalliopi Kazamia, Annika Rydberg, Jan Sunnegårdh, Eva Goossens, Philip Moons
Abstract book of the 99th Berzelius conference, 21-22 February 2019, Stockholm, Sweden, p31-32. - 2019-01-01
The role of peers for general and diabetes-specific functioning throughout adolescence and emerging
adulthood.

Koen Raymaekers, Janne Vanhalst, Sofie Prikken, Leen Oris, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
European Health Psychology Society conference, 3-8 Sept 2019, Dubrovnik, Croatia. - 2019-01-01
One in five patients with rapidly and persistenly controlled early rheumatoid arthritis report poor wellbeing after one year of
treatment

Kristien Van der Elst, Patrick Verschueren, Diederik De Cock, An De Groef, Veerle Stouten, Sofia Pazmino, Joke Vriezekolk, Johan Joly, Philip Moons, Rene Westhovens
Annals of Rheumatic Diseases 2019; 78: 323-324. - 2019-01-01
Absence at work or school is associated with illness identity in adults with congenital heart
defects

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
Abstract book Care4 congress 2019, p76 - 2019-01-01
Standing on the shoulders of giants: The journey from infant survival to longevity in congenital heart
disease

Philip Moons
Canadian Cardiovascular Congress 2019, Montréal, Canada (invited lecture: 26 Oct) - 2019-01-01
European initiatives in transition to adult CHD
care

Philip Moons
Canadian Cardiovascular Congress 2019, Montréal, Canada (invited lecture: 25 Oct) - 2019-01-01
Research in transitional care: Many miles to
go.

Philip Moons
Event Milestone project, Kortenberg, Belgium (invited lecture: 26 September) - 2019-01-01
Propensity weighting: How to compare groups when groups are not
comparable?

Philip Moons
LivsForsk annual meeting, Stavanger, Norway (invited lecture: 17 Sept) - 2019-01-01
Challenges and opportunities in international collaboration in quality-of-life
research

Philip Moons
LivsForsk annual meeting, Stavanger, Norway (invited lecture: 17 Sept) - 2019-01-01
Patient perspective on mobile health in congenital heart disease: Focus on motivation and
lifestyle

Philip Moons
CSANZ2019 – 67th annual scientific meeting of the cardiac society of Australia and New Zealand, Adelaide, Australia - 2019-01-01
Tips and tricks for writing scientific papers and presenting your data for
conferences

Philip Moons
CSANZ2019 – 67th annual scientific meeting of the cardiac society of Australia and New Zealand, Adelaide, Australia - 2019-01-01
Attaining best function and quality of life in congenital heart
disease

Philip Moons
ACRA2019 - 29th annual scientific meeting of the Australian Cardiovascular Health and Rehabilitation Association, Sydney, Australia - 2019-01-01
Exercise and quality of life in congenital heart
disease

Philip Moons
ACRA2019 - 29th annual scientific meeting of the Australian Cardiovascular Health and Rehabilitation Association, Sydney, Australia - 2019-01-01
Transition in care: Evaluating complex interventions and translating the MRC framework for complex
interventions

Philip Moons
University of Technology Sydney, Sydney, Australia - 2019-01-01
Congenital heart disease: Emerging need for geriatric care and advance care
planning

Philip Moons
Swiss Society of Cardiology/Swiss Society of Cardiac Surgery Joint Annual Meeting 2019. Interlaken, Switzerland - 2019-01-01
Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their
Parents

A. Burstrom, Mariela Acuña Mora, M. Ojmyr-Joelsson, Carina Sparud Lundin, A. Rydberg, K. Hanseus, B. Frenckner, M. Nisell, Philip Moons, Ewa-Lena Bratt
Journal of Family Nursing - 2019-01-01
Patient-reported outcomes of adults with congenital heart disease from eight European countries: scrutinising the association with healthcare system
performance.

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Silke Apers, Adrienne H Kovacs, Corina Thomet, Werner Budts, Maayke A Sluman, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Maryanne Caruana, Alexandra Soufi, Edward Callus, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2019-01-01
Quality of life research in adult patients with congenital heart disease: current status and the way
forward.

Philip Moons, Koen Luyckx
Acta paediatrica - 2019-01-01
Differential impact of physical activity type on depression in adults with congenital heart disease: A multi-center international
study.

Jong Mi Ko, Kamila S White, Adrienne H Kovacs, Kristen M Tecson, Silke Apers, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Edward Callus, Shelby Kutty, Philip Moons, Ari M Cedars
Journal of psychosomatic research - 2019-01-01
Predicting 15-Year Mortality in Adults With Congenital Heart Disease Using Disease Severity and Functional
Indices.

Fouke Ombelet, Eva Goossens, Silke Apers, Werner Budts, Marc Gewillig, Philip Moons
The Canadian journal of cardiology - 2019-01-01
Religion and spirituality as predictors of patient-reported outcomes in adults with congenital heart disease around the
globe.

Philip Moons, Koen Luyckx, Jessie Dezutter, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Raghavan Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Silke Apers
International journal of cardiology - 2019-01-01
Updating EuroSCORE by including emotional, behavioural, social and functional factors to the risk assessment of patients undergoing cardiac surgery: a study
protocol.

Pernille Fevejle Cromhout, Selina Kikkenborg Berg, Philip Moons, Sune Damgaard, Samer Nashef, Lau Caspar Thygesen
BMJ open - 2019-01-01
Staffing, activities, and infrastructure in 96 specialised adult congenital heart disease clinics in
Europe.

Corina Thomet, Philip Moons, Werner Budts, Julie De Backer, Massimo Chessa, Gerhard Diller, Andreas Eicken, Harald Gabriel, Pastora Gallego, Alessandro Giamberti, Jolien Roos-Hesselink, Lorna Swan, Gary Webb, Markus Schwerzmann
International journal of cardiology - 2019-01-01
Patient empowerment and its correlates in young persons with congenital heart
disease

Mariela Acuña Mora, Carina Sparud Lundin, Åsa Burström, Katarina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Journal of Cardiovascular Nursing - 2019-01-01
Transition program for adolescents with congenital heart disease in transition to adulthood: protocol and rationale for a mixed-methods process evaluation study (the STEPSTONES
project)

Markus Saarijärvi, Lars Wallin, Philip Moons, Hanna Gyllensten, Ewa-Lena Bratt
Knowledge Utilization (KU) Colloquium 2019, 25-28 juni, Montebello, Quebec, Canada - 2019-01-01
Transition program to empower adolescents with chronic conditions in their transition to adulthood: methods and rationale for the STEPSTONES
project

Markus Saarijärvi, Mariela Acuña Mora, Carina Sparud Lundin, Lars Wallin, Hanna Gyllensten, Ewa-Lena Bratt, Philip Moons
Forte Talks, 26-27 mars 2019, Stockholm - 2019-01-01
Education as important predictor for successful employment in adults with congenital heart disease
worldwide.

Maayke A Sluman, Silke Apers, Judith K Sluiter, Karen Nieuwenhuijsen, Philip Moons, Koen Luyckx, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Raghavan Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Eva Mattsson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Kathy Gosney, Alexandra Soufi, Susan M Fernandes, Kamila S White, Edward Callus, Shelby Kutty, Berto J Bouma, Barbara J M Mulder
Congenital heart disease - 2019-01-01
A triadic perspective on control perceptions in youth with type 1 diabetes and their parents: Associations with treatment adherence and glycemic
control.

Sofie Prikken, Koen Raymaekers, Leen Oris, Jessica Rassart, Philip Moons, Koen Luyckx
Diabetes research and clinical practice - 2019-01-01
What of the Senning and Mustard patients? Quality of
life.

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 23 May) - 2019-01-01
Psychological sequelae after infective
endocarditis

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 24 May) - 2019-01-01
The Stepstones project: How to optimally transition adolescents to ACHD
care?

Philip Moons
Congenital Heart Campus. Ortigia-Siracuse, Sicily (invited lecture: 24 May) - 2019-01-01
Pre-transfer transition: what
works?

Philip Moons
The 29th annual international symposium on congenital heart disease in the adult. Stevenson WA, USA (invited lecture: 31 May) - 2019-01-01
An international perspective on issues in nursing
education

Philip Moons
Nursing Education Association and Stellenbosch University. Stellenbosch, South Africa - 2019-01-01
Serial pulmonary vascular resistance assessment in patients late after ventricular septal defect
repair.

Charlien Gabriels, Roselien Buys, Alexander Van de Bruaene, Pieter De Meester, Kaatje Goetschalckx, Frederik Helsen, Philip Moons, Eva Goossens, Filip Rega, Jens-Uwe Voigt, Marion Delcroix, Werner Budts
International journal of cardiology - 2019-01-01
Parental illness intrusiveness and youth glycaemic control in type 1 diabetes: intergenerational associations and
processes.

Sofie Prikken, Leen Oris, Jessica Rassart, Lies Christine Missotten, Ilse Weets, Philip Moons, Liesbet Goubert, Koen Luyckx
Psychology & health - 2019-01-01
Quality of life in adults with congenital heart disease: A global
view

Philip Moons
Cardiovascular Innovations and Outcomes Colloquium, Johns Hopkins Helen B. Taussig Heart Center. Baltimore, MD, USA - 2019-01-01
Quality of life in adults with congenital heart
disease

Philip Moons
99th Berzelius symposium. The cardiac patients from birth to adulthood. Stockholm, Sweden - 2019-01-01
Geographical variation and predictors of physical activity level in adults with congenital heart
disease.

Lena Larsson, Bengt Johansson, Camilla Sandberg, Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Gwen Rempel, Samuel Menahem, Maryanne Caruana, Martha Tomlin, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Philip Moons
International journal of cardiology. Heart & vasculature - 2019-01-01
Lack of Knowledge about Contraception and Pregnancy in Adolescent Girls with Congenital Heart Disease – There is Room for
Improvement.

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
53rd Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 15-18 May 2019, Seville, Spain. - 2019-01-01
Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart
disease

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
SAHM Society of Adolescent and Health Medicine. 2019 Annual Meeting Psychological Well-being: International Transcultural Perspectives. March 6-9, 2019 Washington, USA. - 2019-01-01
Parental Uncertainty About Transferring Their Adolescent with Congenital Heart Disease to Adult
Care.

Åsa Burström, Mariela Acuña Mora, Maria Öjmyr-Joelsson, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Björn Frenckner, Margret Nisell, Philip Moons, Ewa-Lena Bratt
Journal of advanced nursing - 2019-01-01
Life-long cardiac surveillance of patients with severe congenital heart disease: Are we adhering to
guidelines?

Eva Goossens, Aihua Liu, Liming Guo, Sarah Cohen, Judith Therrien, Philip Moons, Ariane Marelli
Journal of Heart and Cardiovascular Medicine - 2019-01-01
Urgency for Clarification of Concepts and Definitions related to Discontinuation of Follow-Up Care for Young People with Complex Chronic
Conditions.

Sandra Skogby, Philip Moons, Ewa-Lena Bratt, Bengt Johansson, Eva Goossens
International Scientific Nursing and Midwifery Congress 2019, Leuven, Belgium 4-6 February 2019 - 2019-01-01
Early physical and psycho-educational rehabilitation in patients with coronary artery bypass grafting: A randomized controlled
trial.

Ida Elisabeth Højskov, Philip Moons, Ingrid Egerod, Peter Skov Olsen, Lau Caspar Thygesen, Niels Viggo Hansen, Søren La Cour, Krisitna Hindhede Bech, Britt Borregaard, Christian Gluud, Per Winkel, Jane Lindschou, Selina Kikkenborg Berg
Journal of Rehabilitation Medicine - 2019-01-01
Advanced care planning in adult congenital heart disease: Transitioning from repair to palliation and end-of-life
care.

Els Troost, Leen Roggen, Eva Goossens, Philip Moons, Pieter De Meester, Alexander Van De Bruaene, Werner Budts
International journal of cardiology - 2019-01-01
APPROACH-IS: Rationale, design and first
results

Philip Moons
Red Cross Hospital, Cape Town, South Africa - 2018-01-01
PREMs en PROMs: De stem van de patiënt in de
gezondheidszorg?

Philip Moons
Karakter - 2018-01-01
Piercing and tattoos: allowed or
threat?

Philip Moons
AEPC Working Group Neurodevelopment and Psychosocial Care from Fetus to Adult, 7-9 March 2018, Leicester, UK (invited lecture: 8 March) - 2018-01-01
Rapid and sustained remission contributes to improved psychosocial outcomes after 1 year of treatment in patients with early rheumatoid arthritis: Data from the Carera
trial

Kristien Van der Elst, Patrick Verschueren, Veerle Stouten, Sophia Pazmino, Diederik De Cock, J Joly, Philip Moons, Rene Westhovens
Annals of the Rheumatic Diseases. 77, suppl. 2, pp.557-558. - 2018-01-01
Current status in the care of grown-ups with congenital heart disease in
Europe

Corina Thomet, Philip Moons, Werner Budts, Julie De Backer, Massimo Chessa, Gerhard Diller, Andreas Eicken, Harald Gabriel, P Gallego, A Giamberti, Jolien Roos-Hesselink, Lorna Swan, Gary Webb, Markus Schwerzmann
European Heart Journal. Vol. 39, suppl 1, P5477 - 2018-01-01
Exploration of disagreement between the patient’s self-reported limitations and limitations assessed by caregivers in adults with congenital heart
disease

Malin Berghammer, Bengt Johansson, Eva Mattson, Philip Moons, Mikael Dellborg
European Heart Journal. Vol. 39, suppl 1. 2406 - 2018-01-01
Healthcare system characteristics and their relationship with patient-reported outcomes in adults with congenital heart disease of 14
countries

Liesbet Van Bulck, Eva Goossens, Koen Luyckx, Silke Apers, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke Sluman, Jamie L Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Philip Moons
Circulation. 138 (suppl 1): A14480 - 2018-01-01
Illness Identity and its Association with Absence at Work or School in Adults with Congenital Heart
Disease

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
Circulation, 138 (suppl 1), A15475 - 2018-01-01
Age and quality of life in adults with congenital heart disease worldwide: Evidence for a non-linear
relationship

Philip Moons, Silke Apers, Koen Luyckx, Adrienne H Kovacs, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen Cook, Shanti Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Eva Goossens
Circulation. 138 (suppl 1): A14623 - 2018-01-01
Physical Activity-Related Drivers of Perceived Health Status in Adults With Congenital Heart
Disease

J. M. Ko, K. S. White, A. H. Kovacs, K. M. Tecson, S. Apers, K. Luyckx, C. Thomet, W. Budts, J. Enomoto, M. A. Sluman, J. K. Wang, J. L. Jackson, P. Khairy, S. C. Cook, R. Subramanyan, L. Alday, K. Eriksen, Mikael Dellborg, Malin Berghammer, B. Johansson, A. S. Mackie, S. Menahem, M. Caruana, G. Veldtman, A. Soufi, S. M. Fernandes, E. Callus, S. Kutty, A. Gandhi, Philip Moons, A. M. Cedars
Am J Cardiol - 2018-01-01
Stepstones: The Swedish Transition Effects Project Supporting Teenagers with chrONic mEdical
conditionS

Philip Moons, Åsa Burström
Symposium Transition Medicine – from childhood to adulthood. Stockholm, Sweden. 23 oktober 2018 - 2018-01-01
Adolescents with congenital heart disease own beliefs about their illness: illness perception and potential
correlates

Mariela Acuña Mora, Åsa Burström, Carina Sparud Lundin, Katarina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Society of Cardiology Congress - 2018-01-01
Patient perspective on mobile health in congenital heart disease: focus on motivation and quality of
life

Philip Moons
European Society of Cardiology Congress 2018, 25-29 August 2018, Munich, Germany - 2018-01-01
How to present your data: from posters to
plenaries

Philip Moons
19th Annual SA Heart Congress 2018. Sun City, South Africa - 2018-01-01
A life-cycle perspective on congenital heart disease: What happens beyond your
clinic?

Philip Moons
19th Annual SA Heart Congress 2018. Sun City, South Africa - 2018-01-01
Personality Functioning in Adolescents and Emerging Adults With Type 1
Diabetes.

Jessica Rassart, Leen Oris, Sofie Prikken, Ilse Weets, Philip Moons, Koen Luyckx
The Journal of adolescent health : official publication of the Society for Adolescent Medicine - 2018-01-01
Transitional care: State of the art and the way
forward

Philip Moons
7th Conference of the German Society for Transition Medicine. Münster, Germany - 2018-01-01
Transition in ACHD – Swedish
experience

Philip Moons
7th Conference of the German Society for Transition Medicine. Münster, Germany - 2018-01-01
Transfer and transition of young persons with chronic disease: From eminence-based to evidence-based
practice

Philip Moons
Barnveckan, 23-26 April 2018, Västerås, Sweden - 2018-01-01
Why some people do well and others don't. The role of sense of coherence in disease
adaptation.

Philip Moons, Tone M Norekval
European journal of cardiovascular nursing - 2018-01-01
Time to expand risk evaluation systems for cardiac surgery? Looking beyond physiological
parameters.

Pernille F Cromhout, Philip Moons, Lau C Thygesen, Samer Nashef, Sune Damgaard, Selina Kikkenborg Berg
European Journal of Cardiovascular Nursing - 2018-01-01
Ready for the transfer to adult care—factors associated with transition readiness in adolescents with congenital heart
disease

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Maria Öjmyr Joelsson, Björn Frenckner, Margret Nisell, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
52nd Annual Meeting of the Association for European Paeditric and Congenital Cardiology. 9-12 May. Athens, Greece. - 2018-01-01
Practical challenges regarding in-hospital telemetry monitoring require the development of European practice
standards.

Nina Fålun, Philip Moons, Donna Fitzsimons, Paulus Kirchhof, Eva Swahn, Marco Tubaro, Tone M Norekvål
European heart journal. Acute cardiovascular care - 2018-01-01
Successful transfer to adult care: A nationwide study in patients with complex congenital heart lesions in
Sweden

Sandra Skogby, Philip Moons, Bengt Johansson, Christina Christersson, Mikael Dellborg, Shalan Fadl, Eva Fernlund, Katarina Hanseus, Kalliopi Kazamia, Aleksandra Krzynska, Edit Nagy, Annika Rydberg, Jan Sunnegårdh, Ulf Thilen, Per Winberg, Eva Goossens, Ewa-Lena Bratt
Association for European Paediatric and Congenital Cardiology - AEPC 2018, Aten - 2018-01-01
Illness Identity in Adults with a Chronic
Illness.

Leen Oris, Koen Luyckx, Jessica Rassart, Liesbet Goubert, Eva Goossens, Silke Apers, Seher Arat, Joris Vandenberghe, René Westhovens, Philip Moons
Journal of clinical psychology in medical settings - 2018-01-01
Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system
factors.

Philip Moons, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Raghavan Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila White, Edward Callus, Shelby Kutty, Liesbet Van Bulck, Silke Apers
International journal of cardiology - 2018-01-01
Illness identity in youth with type 1 diabetes: A person-centered
approach

Leen Oris, Philip Moons, Liesbeth Goubert, Ilse Weets, Koen Luyckx
European Pediatric Psychology Conference, 20-21 September 2018, Ghent, Belgium - 2018-01-01
Adjusting to type 1 diabetes in adolescence and emerging adulthood: The role of
personality

Jessica Rassart, Leen Oris, Sofie Prikken, Ilse Weets, Philip Moons, Koen Luyckx
European Pediatric Psychology Conference, 20-21 September 2018, Ghent, Belgium - 2018-01-01
Illness intrusiveness and well-being in mothers and fathers of youth with type 1
diabetes

Sofie Prikken, Leen Oris, Koen Raymaekers, Ilse Weets, Philip Moons, Koen Luyckx
European Pediatric Psychology Conference, 20-21 Sept 2018, Ghent, Belgium. - 2018-01-01
The relation between the social context and illness identity in adolescents and emerging adults with type 1 diabetes: A three wave longitudinal
study

Koen Raymaekers, Leen Oris, Sofie Prikken, Janne Vanhalst, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
European Pediatric Psychology Conference, 20-21 Sept 2018, Ghent, Belgium. - 2018-01-01
The relation between the social context and illness identity in adolescents and emerging adults with type 1 diabetes: A three wave longitudinal
study

Koen Raymaekers, Leen Oris, Sofie Prikken, Janne Vanhalst, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
European Association for Research on Adolescence 2018 Conference, 13-15 Sept 2018, Ghent, Belgium - 2018-01-01
Personality functioning in adolescents and emerging adults with type 1 diabetes: A longitudinal
approach

Jessica Rassart, Leen Oris, Sofie Prikken, Ilse Weets, Philip Moons, Koen Luyckx
32nd annual conference of the European Health Psychology, 23 August 2018, Galway, Ireland. - 2018-01-01
Illness intrusiveness and well-being in mothers and fathers of youth with type 1
diabetes

Sofie Prikken, Leen Oris, Koen Raymaekers, Ilse Weets, Philip Moons, Koen Luyckx
32nd annual conference of the European Health Psychology, 23 August 2018, Galway, Ireland - 2018-01-01
Self-efficacy as a predictor of patient-reported outcomes in adults with congenital heart
disease.

Corina Thomet, Philip Moons, Markus Schwerzmann, Silke Apers, Koen Luyckx, Erwin N Oechslin, Adrienne H Kovacs
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2018-01-01
A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan
circulation.

Christina E Holbein, Nicholas D Fogleman, Kevin Hommel, Silke Apers, Jessica Rassart, Philip Moons, Koen Luyckx, Maayke A Sluman, Junko Enomoto, Bengt Johansson, Hsiao-Ling Yang, Mikael Dellborg, Raghavan Subramanyan, Jamie L Jackson, Werner Budts, Adrienne H Kovacs, Stacey Morrison, Martha Tomlin, Kathy Gosney, Alexandra Soufi, Katrine Eriksen, Corina Thomet, Malin Berghammer, Luis Alday, Edward Callus, Susan M Fernandes, Maryanne Caruana, Samuel Menahem, Stephen C Cook, Gwen R Rempel, Kamila White, Paul Khairy, Shelby Kutty, Gruschen Veldtman
Congenital heart disease - 2018-01-01
Betydelsen av Empowerment hos unga med långvariga sjukdomstillstånd vid övergången till vuxenlivet och överföring till vuxensjukvården- ett
doktorandprojekt

Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Sjuksköterskedagarna - 2018-01-01
Thirty-day readmissions in surgical and transcatheter aortic valve replacement: A systematic review and
meta-analysis.

Stein Ove Danielsen, Philip Moons, Irene Sandven, Marit Leegaard, Svein Solheim, Theis Tønnessen, Irene Lie
International journal of cardiology - 2018-01-01
Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale
(GYPES).

Mariela Acuña Mora, Koen Luyckx, Carina Sparud Lundin, Mariëlle Peeters, AnneLoes van Staa, Jane Sattoe, Ewa-Lena Bratt, Philip Moons
PloS one - 2018-01-01
Unraveling the role of healthcare system factors for continuing care of adolescents with congenital or rheumatic heart disease: Rationale and methods of the international
Adole7C-project

Ewa-Lena Bratt, Liesl Zühlke, Bongani Mayosi, Sandra Skogby, Alexia Joachim, Samkelo Jiyana, Thabani Msomi, Lungile Pepeta, Philip Moons
19th Annual South African Heart Association Congress. 4-7 Okt 2018. Suncity, South Africa. - 2018-01-01
Illness Identity: A Novel Predictor for Healthcare Use in Adults With Congenital Heart
Disease.

Liesbet Van Bulck, Eva Goossens, Koen Luyckx, Leen Oris, Silke Apers, Philip Moons
Journal of the American Heart Association - 2018-01-01
SecurAstaP trial: securement with SecurAcath versus StatLock for peripherally inserted central catheters, a randomised open
trial.

Godelieve Alice Goossens, Niel Grumiaux, Christel Janssens, Martine Jérôme, Steffen Fieuws, Philip Moons, Marguerite Stas, Geert Maleux
BMJ open - 2018-01-01
Prospective associations between illness perceptions and health outcomes in patients with systemic lupus erythematosus and systemic sclerosis: a cross-lagged
analysis

Seher Arat, Jessica Rassart, Philip Moons, Joris Vandenberghe, Koen Luyckx, Rene Westhovens
Rheumatology Advances in Practice - 2018-01-01
Eating disorder symptomatology and identity formation in adolescence: A cross-lagged longitudinal
approach

Margaux Verschueren, Laurence Claes, Annabel Bogaerts, Nina Palmeroni, Amarendra Gandhi, Philip Moons, Koen Luyckx
Frontiers in Psychology - 2018-01-01
Borttappad i
vården

Sandra Skogby, Philip Moons, Ewa-Lena Bratt, Bengt Johansson, Eva Goossens
Nationella utbildningsdagar för vårdprofessioner inom kardiologi VIC - Medfödda hjärtfel "Vårdens framgångar ger nya möjligheter och utmaningar" - 2018-01-01
Modifiable correlates of illness perceptions in adults with chronic somatic conditions: A systematic
review.

Seher Arat, Diederik De Cock, Philip Moons, Joris Vandenberghe, René Westhovens
Research in nursing & health - 2018-01-01
Psychosocial issues in Adult Congenital Heart
Disease

Philip Moons, Koen Luyckx
Diagnosis and management of Adult Congenital Heart Disease (3rd ed). Michael Gatzoulis, Gary Webb, Piers Daubeney (red.) - 2018-01-01
Scoping the field of transfer and transition in young persons with cardiovascular
conditions

Markus Saarijärvi, Mariela Acuña Mora, Ewa-Lena Bratt, Carina Sparud Lundin, Philip Moons, Eva Goossens
EuroHeartCare 2018, Dublin - 2018-01-01
Advanced Practice Nursing and
Midwifery

Philip Moons
- 2018-01-01
Illness identity in young adults with refractory
epilepsy.

Koen Luyckx, Leen Oris, Koen Raymaekers, Jessica Rassart, Philip Moons, Ludo Verdyck, Teus Mijnster, Ruth E Mark
Epilepsy & behavior : E&B - 2018-01-01
Concepts and theory building in nursing and
midwifery

Philip Moons
- 2018-01-01
Mapping the field: scoping reviews as a method to identify gaps in nursing
research

Mariela Acuña Mora, Markus Saarijärvi, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons, Eva Goossens
Nordic Conference of Nursing Research 2018 - 2018-01-01
The STEPSTONES project-Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to
adulthood

Ewa-Lena Bratt, Carina Sparud Lundin, Mariela Acuña Mora, Philip Moons
ISTAR Konferens - 2017-01-01
Quality of life in Maltese adults with congenital heart disease: a second look – An APPROACH-IS
substudy

Maryanne Caruana, Philip Moons, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Maayke Sluman, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Alexandra Soufi, Edward Callus, Victor Grech, Silke Apers
International Cardiovascular Forum Journal - 2017-01-01
Attitudes of nurses towards family involvement in the care for patients with cardiovascular
diseases.

Mla Luttik, E Goossens, S Ågren, T Jaarsma, J Mårtensson, D R Thompson, Philip Moons, A Strömberg
European Journal of Cardiovascular Nursing - 2017-01-01
Comparison of participants and non-participants in patient-reported outcome surveys: the case of Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International
Study.

Malin Berghammer, Eva Mattsson, Bengt Johansson, Philip Moons, Mikael Dellborg
Cardiology in the young - 2017-01-01
Patient-reported outcomes are associated with physical activity level in adults with congenital heart
disease

Annika Bay, Mikael Dellborg, Malin Berghammer, Camila Sandberg, Eva Mattson, G Engström, Philip Moons, Bengt Johansson
Swedish Cardiovascular Spring Meeting – Vårmöte 2017, Malmö, Sweden (26-28 April 2017) - 2017-01-01
Ensuring high quality life-long care: Holding providers
responsible

Philip Moons
27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA (invited lecture: 15 September 2017) - 2017-01-01
Illness identity as predictor of healthcare use in adults with congenital heart
disease

Liesbet Van Bulck, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
European Heart Journal. 38 (Suppl. 1), ehx502.P1525 - 2017-01-01
Missed appointments for outpatient visits as predictors for care gaps in adults with congenital heart
disease

Eva Goossens, Kristien Van Deyk, Werner Budts, Philip Moons
European Heart Journal. 38 (Suppl. 1), ehx502.P2104 - 2017-01-01
Education is the main predictor for successful employment in adults with congenital heart disease
worldwide

Maayke A Sluman, Silke Apers, JK Sluiter, Philip Moons, Koen Luyckx, Adrienne H Kovacs, Berto J Bouma, Barbara JM Mulder
European Heart Journal. 38 (Suppl. 1), ehx493.P6313 - 2017-01-01
Prediction of 10-y mortality in adults with congenital heart disease using disease severity and functional
indices

Fouke Ombelet, Eva Goossens, Silke Apers, Werner Budts, Marc Gewillig, Philip Moons
European Heart Journal. 38 (Suppl.1), ehx493.P6316 - 2017-01-01
The influence of peers on diabetes management in adolescents and emerging adults: A longitudinal
study

Koen Raymaekers, Leen Oris, Sofie Prikken, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
31st Conference of the European Health Psychology Society, 29 August-2 September, Padua, Italy - 2017-01-01
Illness perceptions in adult congenital heart disease: a multi-center international
study

Jessica Rassart, Silke Apers, Adrienne H Kovacs, Philip Moons, Koen Luyckx
31st Conference of the European Health Psychology Society, 29 August-2 September, Padua, Italy - 2017-01-01
Differences in Patient-Reported Outcomes are partly explained by religion in adults with congenital heart disease: An APPROACH-IS
substudy

Philip Moons, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Hsiao-Ling Yang, Jamie L Jackson, Paul Khairy, Stephen C Cook, R Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Andrew Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Susan M Fernandes, Kamilla White, Edward Callus, Shelby Kutty, Silke Apers
27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA - 2017-01-01
Illness perceptions and health behaviors in patients with Fontan
circulation

Christina E Holbein, Kevin Hommel, Silke Apers, Philip Moons, Gruschen Veldtman
27th International Symposium on Adult Congenital Heart Disease, 14-16 September 2017, Cincinnati (OH), USA - 2017-01-01
Level of empowerment and its correlates in young persons with congenital heart
disease

Mariela Acuña Mora, Carina Sparud Lundin, Åsa Burström, Katerina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Heart Journal. 38 (Suppl.1), ehx502.P1517 - 2017-01-01
Artsen hebben uiteenlopende percepties over patiënten met systeemlupus en
systeemsclerose

Seher Arat, Philip Moons, Joris Vandenberghe, JL Lenaerts, Kurt de Vlam, Rene Westhovens
Nederlands Tijdschrift voor Reumatologie - 2017-01-01
24/7 telephone support after discharge for surgical aortic valve replacement as a potential lifesaving intervention -a clinical case from the AVRre
study

Stein O Danielsen, Philip Moons, T Tonnessen, S Solheim, Marit Leegaard, Irene Lie
European Journal of Cardiovascular Nursing. Vol 16, Issue 1_suppl. - 2017-01-01
Empowerment in congenital heart disease: psychometric properties of the Gothenburg Young Persons Empowerment Scale
(GYPES)

Mariela Acuña Mora, Carina Sparud Lundin, Koen Luyckx, Ewa-Lena Bratt, Philip Moons
European Journal of Cardiovascular Nursing. Vol 16, Issue 1_suppl. - 2017-01-01
Advanced Practice Nursing and
Midwifery

Philip Moons
- 2017-01-01
Concepten en theorievorming in de verpleeg- en
vroedkunde

Philip Moons
- 2017-01-01
Landmark lecture in nursing: a life-cycle perspective on CHD: What happens beyond your
clinic?

Philip Moons
Cardiology in the young - 2017-01-01
The Role of Peers for Diabetes Management in Adolescents and Emerging Adults With Type 1 Diabetes: A Longitudinal
Study.

Koen Raymaekers, Leen Oris, Sofie Prikken, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
Diabetes care - 2017-01-01
Illness representations of systemic lupus erythematosus and systemic sclerosis: a comparison of patients, their rheumatologists and their general
practitioners.

Seher Arat, Jan L Lenaerts, Ellen De Langhe, Patrick Verschueren, Philip Moons, Joris Vandenberghe, Veerle Taelman, Rene Westhovens
Lupus science & medicine - 2017-01-01
Regional variation in quality of life in patients with a Fontan circulation: A multinational
perspective

Nicholas D. Fogleman, Silke Apers, Philip Moons, Stacey Morrison, Samuel G. Wittekind, Martha Tomlin, Kathy Gosney, Maayke A. Sluman, Bengt Johansson, Junko Enomoto, Mikael Dellborg, Chun Wei Lu, Raghavan Subramanyan, Koen Luyckx, Werner Budts, Jamie Jackson, Adrienne Kovacs, Alexandra Soufi, Katrine Eriksen, Corina Thomet, Malin Berghammer, Edward Callus, Susan M. Fernandes, Maryanne Caruana, Stephen C. Cook, Andrew S. Mackie, Kamila S. White, Paul Khairy, Shelby Kutty, Gruschen Veldtman
American Heart Journal - 2017-01-01
Diabetes in de adolescentie en de jongvolwassenheid: Een familiaal perspectief met aandacht voor het functioneren van
ouders

Sofie Prikken, Leen Oris, Lies Missotten, Jessica Rassart, Ilse Weets, Philip Moons, Liesbeth Goubert, Koen Luyckx
Event Diabetes Liga 75 Jaar, Antwerp, Belgium (7 October) - 2017-01-01
De rol van vrienden in de omgang met type 1
diabetes

Koen Raymaekers, Leen Oris, Sofie Prikken, Philip Moons, Eva Goossens, Ilse Weets, Koen Luyckx
Event Diabetes Liga 75 Jaar, Antwerp, Belgium (7 October) - 2017-01-01
Person-centered care and cardiac
rehabilitation

Philip Moons
Copenheart closing event, Copenhagen, Denmark (invited lecture: 3 November) - 2017-01-01
Health care providers' attitudes towards transfer and transition in young persons with long term illness- a web-based
survey.

Carina Sparud Lundin, Malin Berghammer, Philip Moons, Ewa-Lena Bratt
BMC health services research - 2017-01-01
Quality of life in pediatric and congenital
cardiology

Philip Moons
Congrès Médico-chirurgical de la FCPC, 27-29 September 2017, Montpellier, France (invited lecture: 28 September 2017) - 2017-01-01
Illness perceptions in adult congenital heart disease: A multi-center international
study.

Jessica Rassart, Silke Apers, Adrienne H Kovacs, Philip Moons, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Raghavan Subramanyan, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Gwen R Rempel, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Susan M Fernandes, Kamila S White, Edward Callus, Shelby Kutty, Koen Luyckx
International journal of cardiology - 2017-01-01
Readiness for transfer in adolescents with congenital heart
disease

Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Katarina Hanseus, Annika Rydberg, M Ojmyr-Joelsson, M Nisell, B Frenckner, Philip Moons, Ewa-Lena Bratt
Abstract Book of World Congress on Pediatric Cardiology and Cardiac Surgery 2017, p 806 - 2017-01-01
Global ACHD quality of life
study

Philip Moons
7th World Congress on Pediatric Cardiology and Cardiac Surgery. Barcelona, Spain (16-21 July, 2017) - 2017-01-01
Location matters: pediatric versus adult
hospitals

Philip Moons
7th World Congress on Pediatric Cardiology and Cardiac Surgery. Barcelona, Spain (16-21 July, 2017) - 2017-01-01
Bundles and pathways: What is the
evidence?

Philip Moons
7th World Congress on Pediatric Cardiology and Cardiac Surgery. Barcelona, Spain (16-21 July, 2017) - 2017-01-01
Landmark lecture: A life-cycle perspective on congenital heart disease: What happens beyond your
clinic?

Philip Moons
7th World Congress on Pediatric Cardiology and Cardiac Surgery. Barcelona, Spain (16-21 July, 2017) - 2017-01-01
Determining the impact of 24/7 phone support on hospital readmissions after aortic valve replacement surgery (the AVRre study): study protocol for a randomised controlled
trial.

Irene Lie, Stein Ove Danielsen, Theis Tønnessen, Svein Solheim, Marit Leegaard, Leiv Sandvik, Torbjørn Wisløff, Jonny Vangen, Tor Henning Røsstad, Philip Moons
Trials - 2017-01-01
Patient reported outcomes are associated with physical activity level in adults with congenital heart
disease.

Annika Bay, Mikael Dellborg, Malin Berghammer, Camilla Sandberg, Gunnar Engström, Philip Moons, Bengt Johansson
International journal of cardiology - 2017-01-01
Using intervention mapping in developing complex nursing interventions- the STEPSTONES transition program for adolescents with chronic
conditions

Mariela Acuña Mora, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt
The Future Direction of European Nursing nd Nursing Research - 2017-01-01
High readmission rates and mental distress after infective endocarditis - Results from the national population-based CopenHeart IE
survey.

Trine Bernholdt Rasmussen, Ann-Dorthe Zwisler, Lau Caspar Thygesen, Henning Bundgaard, Philip Moons, Selina Kikkenborg Berg
International journal of cardiology - 2017-01-01
Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES
project)

Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
BMJ Open - 2017-01-01
Identity Processes and Statuses in Patients with and without Eating
Disorders.

Margaux Verschueren, Koen Luyckx, Erin A Kaufman, Maarten Vansteenkiste, Philip Moons, Ellen Sleuwaegen, Ann Berens, Katrien Schoevaerts, Laurence Claes
European eating disorders review : the journal of the Eating Disorders Association - 2017-01-01
Identity Statuses throughout Adolescence and Emerging Adulthood: A Large-Scale Study into Gender, Age, and Contextual
Differences

Margaux Verschueren, Jessica Rassart, Laurence Claes, Philip Moons, Koen Luyckx
Psychologica belgica - 2017-01-01
Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS
Substudy.

Maryanne Caruana, Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Maayke Sluman, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Bengt Johansson, Alexandra Soufi, Edward Callus, Philip Moons, Victor Grech
Pediatric cardiology - 2017-01-01
Diverging illness perceptions between physicians about patients with systemic lupus erythematosus and systemic sclerosis: a vignette-based
study.

Seher Arat, Philip Moons, Joris Vandenberghe, Jan L Lenaerts, Kurt de Vlam, René Westhovens
Rheumatology international - 2017-01-01
Methods and obstacles in planning international research. The case of
APPROACH-IS

Philip Moons
8th National Conference Adult Congenital Heart Association. 2-3 June 2017. Orlando FL, USA - 2017-01-01
What is evidence-based practice? (And what is it
not?)

Philip Moons
EuroHeartCare 2017. Jonköping, Sweden (invited lecture: 20 May 2017) - 2017-01-01
Research on transitional care: State of an art in
transition

Philip Moons
29th European Academy of Childhood Disability preconference. Amsterdam, the Netherlands (invited lecture: 17 May 2017) - 2017-01-01
Identity processes and statuses in patients with eating
disorders.

Margaux Verschueren, Koen Luyckx, E Kaufman, M Vansteenkiste, Philip Moons, E Sleuwaegen, A Berens, K Schoevaerts, Laurence Claes
24th International Society for Research on Identity, 18-21 May 2017 Groningen, the Netherlands - 2017-01-01
Illness identity in adolescents and emerging adults with type 1
diabetes.

Leen Oris, Philip Moons, Liesbeth Goubert, Ilse Weets, Koen Luyckx
24th International Society for Research on Identity, 18-21 May 2017 Groningen, the Netherlands. - 2017-01-01
The patients’ view compared with the caregivers assessment – alternative
truths?

Malin Berghammer, Bengt Johansson, Eva Mattson, Philip Moons, Mikael Dellborg
Swedish Cardiovascular Spring Meeting – Vårmöte 2017, Malmö, Sweden (26-28 April 2017) - 2017-01-01
Contraceptive Practices of Women With Complex Congenital Heart
Disease.

Pamela D Miner, Mary M Canobbio, Dorothy D Pearson, Mary Schlater, Yvonne Balon, Kathryn J Junge, Ami Bhatt, Deena Barber, Michelle J Nickolaus, Adrienne H Kovacs, Philip Moons, Kate Shaw, Susan M Fernandes
The American journal of cardiology - 2017-01-01
Piercing and tattoos: A threat for our
patients?

Philip Moons
EuroGUCH 2017. Lausanne Switzerland - 2017-01-01
Hopelessness among adults with congenital heart disease: Cause for despair or
hope?

Bahareh Eslami, Adrienne H Kovacs, Philip Moons, Kyomars Abbasi, Jamie L Jackson
International journal of cardiology - 2017-01-01
Validity, reliability and responsiveness of the Body Image Quality of Life Inventory in patients treated for infective
endocarditis.

Trine Bernholdt Rasmussen, Hanne Konradsen, Jane Dixon, Philip Moons, Ann-Dorthe Zwisler, Selina Kikkenborg Berg
Scandinavian journal of caring sciences - 2017-01-01
Healthcare needs of adolescents with congenital heart disease transitioning into adulthood: a Delphi survey of patients, parents, and healthcare
providers.

Chi-Wen Chen, Wen-Jen Su, Yueh-Tao Chiang, Ying-Mei Shu, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2017-01-01
Body modification: Are tattoos and piercings safe for patients with
CHD?

Philip Moons
51st AEPC Annual Meeting. Lyon, France (29 March - 1 April) - 2017-01-01
Transfer and transition of young persons with chronic disease: What is it, and what’s the
problem?

Philip Moons
Forskningsdagen Sahlgrenska Akademin och Sahlgrenska Universitetssjukhuset, Gothenburg, Sweden (invited lecture: 2 March) - 2017-01-01
What type of research methods knowledge is needed in relation to complex intervention
research?

Philip Moons
Institute of Health and Care Sciences, University of Gothenburg, Gothenburg, Sweden (invited lecture: 1 March) - 2017-01-01
SheppHeartCABG trial-comprehensive early rehabilitation after coronary artery bypass grafting: a protocol for a randomised clinical
trial.

Ida Elisabeth Højskov, Philip Moons, Niels Viggo Hansen, Søren La Cour, Peter Skov Olsen, Christian Gluud, Per Winkel, Jane Lindschou, Lau Caspar Thygesen, Ingrid Egerod, Selina Kikkenborg Berg
BMJ open - 2017-01-01
Illness intrusiveness in parents and glycaemic control in youth with type 1 diabetes: Intergenerational
processes

Sofie Prikken, Leen Oris, Jessica Rassart, Lies Missotten, Ilse Weets, Philip Moons, Koen Luyckx
Abstract book of the European Health Psychology Society and British Psychology Society Division of Health Psychology Conference 2016 – Aberdeen, Scotland: 854 - 2016-01-01
Long-term cardiac follow-up with severe congenital heart disease: Are care gaps associated with an increased probability of
mortality

Eva Goossens, A Liu, L Guo, Sarah Cohen, Judith Therrien, Philip Moons, Ariane J Marelli
Circulation - 2016-01-01
Patient-reported health and its correlates in adults with congenital heart disease from 15
countries

Philip Moons, Adrienne Kovacs, Koen Luyckx, Silke Apers
Circulation - 2016-01-01
Illness identity in youth type 1 diabetes: A person-centered approach
(P333)

Leen Oris, Philip Moons, Liesbeth Goubert, Ilse Weets, Koen Luyckx
Pediatric Diabetes - 2016-01-01
Identity formation in youth with type 1 diabetes
(P197)

Margaux Verschueren, Leen Oris, Laurence Claes, Philip Moons, Ilse Weets, Koen Luyckx
Pediatric Diabetes - 2016-01-01
Illness intrusiveness in parents and glycemic control in youth with type 1 diabetes: Intergenerational processes
(P051)

Sofie Prikken, Leen Oris, Ilse Weets, Philip Moons, Koen Luyckx
Pediatric Diabetes - 2016-01-01
A triadic approach towards illness perceptions in youth with type 1 diabetes and their parents: Associations with patient and parent functioning
(P166)

Sofie Prikken, Leen Oris, Ilse Weets, Philip Moons, Koen Luyckx
Pediatric Diabetes - 2016-01-01
Hybrid experimental design: A suitable design to tackle contamination of control
groups

Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
Nordic Conference in Nursing Research: Methods and Networks for the Future, June 15-17, Stockholm - 2016-01-01
Exploring physicians’ perceptions of illness in patients with systemic lupus erythematosus and systemic sclerosis: A vignette-based
study

Seher Arat, Philip Moons, Joris Vandenberghe, Jan Lenaerts, Kurt De Vlam, Rene Westhovens
Annals of the Rheumatic Diseases - 2016-01-01
Patients with early theumatoid arthritis treated with remission induction treat-to-target regimens report important early and lasting health improvement: Results from the CareRA
trial

Kristien Vander Elst, Diederik De Cock, V Stouten, J Joly, Philip Moons, Patrick Verschueren, Rene Westhovens
Annals of the Rheumatic Diseases - 2016-01-01
The Science Committee of the Council of Cardiovascular Nursing and Allied Professions: Moving
forward.

Barbro Kjellström, Geraldine Lee, Rani Khatib, Romy Mahrer-Imhof, Philip Moons, Samar Noureddine, Sharon O'Donnell, Anna Strömberg, Margrét H Svavarsdóttir, Tiny Jaarsma
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2016-01-01
Sense of coherence does not moderate the relationship between the perceived impact of stress on health and self-rated health in adults with congenital heart
disease.

Silke Apers, Lien Sevenants, Werner Budts, Koen Luyckx, Philip Moons
European Journal of Cardiovascular Nursing - 2016-01-01
Patients with early rheumatoid arthritis treated with remission induction treat-to-target regimens report important early and lasting health improvement: results from the CareRA
trial

Kristien Van der Elst, De Cock Diederik, J Joly, v Stouten, Philip Moons, Patrick Verschueren, Rene Westhovens
Proceedings of the 20th Belgian Congress on Rheumatology 2016. 28 – 30 September 2016, Gosselies. - 2016-01-01
Instrument translation and initial psychometric evaluation of the Danish Body Image Quality of Life
Inventory.

Trine Bernholdt Rasmussen, Selina Kikkenborg Berg, Jane Dixon, Philip Moons, Hanne Konradsen
Scandinavian journal of caring sciences - 2016-01-01
Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood: Rationale and methods of the STEPSTONES-CHD
project

Philip Moons, Carina Sparud Lundin, Mariela Acuña Mora, Ewa-Lena Bratt
46th Nordic Meeting in Paediatric Cardiology, 21-23 September 2016. Båstad, Sweden - 2016-01-01
Systemic lupus erythematosus and systemic sclerosis: Differences in perceptions between patients, their rheumatologists and their general
practitioners

Seher Arat, Jan Lenaerts, Ellen De Langhe, Patrick Verschueren, V Taelman, Joris Vandenberghe, Philip Moons, Rene Westhovens
Proceedings of the 20th Belgian Congress on Rheumatology 2016 - 2016-01-01
Exploring physicians’ perceptions of illness in patients with systemic lupus erythematosus and systemic sclerosis: A vignette-based
study

Seher Arat, Philip Moons, Joris Vandenberghe, Jan Lenaerts, Kurt De Vlam, Rene Westhovens
Proceedings of the 20th Belgian Congress on Rheumatology 2016 - 2016-01-01
Exploring physicians’ perceptions of illness in patients with systemic lupus erythematosus and systemic sclerosis: A vignette-based
study

Seher Arat, Philip Moons, Joris Vandenberghe, Jan Lenaerts, Kurt De Vlam, Rene Westhovens
Abstract Book Fifth ARPH (Association for researchers in psychology and health) conference 2016: Maastricht, Netherlands - 2016-01-01
Cigarettes, alcohol, diet and exercise: Lifestyle choices and outcomes in congenital heart disease
patients

Philip Moons
Scientific Sessions of the American Heart Association. New Orleans LA, USA, 11-15 November - 2016-01-01
Transfer and transition: From eminence-based to evidence-based
practice

Philip Moons
Pentalfa: Interactive Postgraduate Course, Leuven Belgium - 8 December 2016 - 2016-01-01
Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping
review

Mariela Acuña Mora, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt, Eva Goossens
Systematic Reviews - 2016-01-01
Congenital heart disease and
adolescence

Markus Schwerzmann, Corina Thomet, Philip Moons
- 2016-01-01
Recall of patients discharged from follow-up after repair of isolated congenital shunt
lesions.

Charlien Gabriels, Alexander Van De Bruaene, Frederik Helsen, Philip Moons, Kristien Van Deyk, Els Troost, Bart Meyns, Marc Gewillig, Werner Budts
International journal of cardiology - 2016-01-01
Unraveling patient-preferred health and treatment outcomes in early rheumatoid arthritis: A longitudinal qualitative
study.

Kristien Van der Elst, Sabrina Meyfroidt, Diederik De Cock, An De Groef, Els Binnard, Philip Moons, Patrick Verschueren, René Westhovens
Arthritis care & research - 2016-01-01
Patients' Perceptions of their Rheumatic Condition: Why Does it Matter and How Can Healthcare Professionals Influence or Deal with these
Perceptions?

Seher Arat, Joris Vandenberghe, Philip Moons, René Westhovens
Musculoskeletal care - 2016-01-01
Transfer and transition: Where to go from
here?

Philip Moons
Summer course on children and adolescents with chronic illness. 30 August - 2 Sept 2016. Lausanne, Switzerland - 2016-01-01
A Big Five Personality Typology in Adolescents with Congenital Heart Disease: Prospective Associations with Psychosocial Functioning and Perceived
Health.

Jessica Rassart, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
International journal of behavioral medicine - 2016-01-01
Health Care Assistants in Home Nursing: The Holy Grail or the Emperor’s New Clothes? A Qualitative
Study

K. De Vliegher, A. Declercq, B. Aertgeerts, Philip Moons
Home Health Care Management & Practice - 2016-01-01
Coping with type 1 diabetes through emerging adulthood: Longitudinal associations with perceived control and haemoglobin
A1c.

Jessica Rassart, Koen Luyckx, Leen Oris, Eveline Goethals, Philip Moons, Ilse Weets
Psychology & health - 2016-01-01
Development and persistence of depressive symptoms in adolescents with
CHD.

Koen Luyckx, Jessica Rassart, Eva Goossens, Silke Apers, Leen Oris, Philip Moons
Cardiology in the young - 2016-01-01
Evolution of advanced practice roles around the
world

Philip Moons
EuroHeartCare 2016. 16 April 2016, Athens, Greece - 2016-01-01
Exploring the relationship between disease-related knowledge and health risk behaviours in young people with congenital heart
disease.

Astrid Janssens, Eva Goossens, Koen Luyckx, Werner Budts, Marc Gewillig, Philip Moons
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2016-01-01
Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood: Rationale and methods of the STEPSTONES-ConHD
project

Philip Moons, Carina Sparud Lundin, Mariela Acuña Mora, Ewa-Lena Bratt
Cardiology in the Young. 50th Annual Meeting of the Association for European Paediatric and Congenital Cardiology, Rome, Italy, June 1–4, 2016. - 2016-01-01
Big Five personality types in adolescents with congenital heart disease: Prospective associations with psychosocial functioning and perceived
health

Jessica Rassart, Koen Luyckx, Eva Goossens, Leen Oris, Silke Apers, Philip Moons
AEPC Psychosocial Meeting. 16-18 March 2016, Rotterdam, the Netherlands - 2016-01-01
Monocentric prospective study of patients dismissed from follow-up after closure of isolated congenital shunt
lesions

C. Gabriels, A. Van De Bruaene, F. Helsen, Philip Moons, K. Van Deyk, E. Troost, W. Budts
Acta Cardiologica - 2016-01-01
Predictors of Care Gaps in Adolescents With Complex Chronic Condition Transitioning to
Adulthood.

Eva Goossens, Lore Bovijn, Marc Gewillig, Werner Budts, Philip Moons
Pediatrics - 2016-01-01
Parenting styles and perceived health in adolescents with congenital heart
disease

Philip Moons, Koen Luyckx
50th AEPC Annual Meeting. June 1 - June 4. Rome, Italy - 2016-01-01
Development and preliminary evaluation of the validity and reliability of a revised illness perception questionnaire for healthcare
professionals.

Seher Arat, Anke Van den Zegel, Maity Van Rillaer, Philip Moons, Joris Vandenberghe, Ellen De Langhe, René Westhovens
BMC nursing - 2016-01-01
Quality of Life of Adults With Congenital Heart Disease in 15 Countries: Evaluating Country-Specific
Characteristics.

Silke Apers, Adrienne H Kovacs, Koen Luyckx, Corina Thomet, Werner Budts, Junko Enomoto, Maayke A Sluman, Jou-Kou Wang, Jamie L Jackson, Paul Khairy, Stephen C Cook, Shanthi Chidambarathanu, Luis Alday, Katrine Eriksen, Mikael Dellborg, Malin Berghammer, Eva Mattsson, Andrew S Mackie, Samuel Menahem, Maryanne Caruana, Gruschen Veldtman, Alexandra Soufi, Anitra W Romfh, Kamila White, Edward Callus, Shelby Kutty, Steffen Fieuws, Philip Moons
Journal of the American College of Cardiology - 2016-01-01
Serious Games for improving knowledge and self-management in young people with chronic conditions: A systematic review and
meta-analysis.

Nathalie Charlier, Nele Zupancic, Steffen Fieuws, Kris Denhaerynck, Bieke Zaman, Philip Moons
Journal of the American Medical Informatics Association : JAMIA - 2016-01-01
Illness Identity in Adolescents and Emerging Adults With Type 1 Diabetes: Introducing the Illness Identity
Questionnaire.

Leen Oris, Jessica Rassart, Sofie Prikken, Margaux Verschueren, Liesbet Goubert, Philip Moons, Cynthia A Berg, Ilse Weets, Koen Luyckx
Diabetes care - 2016-01-01
Are illness perception and coping style associated with the delay between symptom onset and the first general practitioner consultation in early rheumatoid arthritis management? An exploratory study within the CareRA
trial.

K Van der Elst, D De Cock, E Vecoven, S Arat, S Meyfroidt, J Joly, Philip Moons, P Verschueren, R Westhovens
Scandinavian journal of rheumatology - 2016-01-01
Bringing Antonovsky's salutogenic theory to life: A qualitative inquiry into the experiences of young people with congenital heart
disease.

Silke Apers, Jessica Rassart, Koen Luyckx, Leen Oris, Eva Goossens, Werner Budts, Philip Moons
International journal of qualitative studies on health and well-being - 2016-01-01
Effecten van Verpleegkundig Specialisten: Wat werkt voor wie? [Effects of Nurse Specialists: What works for
whom?]

Philip Moons
Symposium Verpleegkundig Specialisten: Durven investeren. 18 April 2016, Brussels, Belgium - 2016-01-01
Grant applications: What works? What
doesn’t?

Philip Moons
EuroHeartCare 2016 preconference Masterclass, 14 April 2016, Athens, Greece - 2016-01-01
Parental and peer support in adolescents with a chronic condition: a typological approach and developmental
implications.

Leen Oris, Inge Seiffge-Krenke, Philip Moons, Liesbet Goubert, Jessica Rassart, Eva Goossens, Koen Luyckx
Journal of behavioral medicine - 2016-01-01
Change and stability in depressive symptoms in young adults with type 1
diabetes.

Leen Oris, Koen Luyckx, Jessica Rassart, Eveline Goethals, Patricia Bijttebier, Liesbet Goubert, Philip Moons, Ilse Weets
Diabetes research and clinical practice - 2016-01-01
Transfer and transition: State of an art in
progress

Philip Moons
Danish Organisation of Adolescent Health. 4 March 2016. Copenhagen, Denmark - 2016-01-01
Diagnostic accuracy of the Catheter Injection and Aspiration (CINAS) classification for assessing the function of totally implantable venous access
devices.

G A Goossens, Y De Waele, M Jérôme, S Fieuws, C Janssens, M Stas, Philip Moons
Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer - 2016-01-01
The clinical impact of a brief transition programme for young people with juvenile idiopathic arthritis: results of the DON'T RETARD
project.

Deborah Hilderson, Philip Moons, Kristien Van der Elst, Koen Luyckx, Carine Wouters, René Westhovens
Rheumatology (Oxford, England) - 2016-01-01
Illness identity in individuals with a chronic
illness

L Oris, Philip Moons, L Goubert, J Rassart, E Goossens, S Apers, S Prikken, M Verschueren, I Weets, K Luyckx
Annual Meeting and Scientific Sessions of the Society of Behavioral Medicine. 30 March-2 April 2016, Washington, DC, USA. - 2016-01-01
Prioritized outcomes to evaluate the effectiveness of atrial fibrillation disease management: A systematic review and Delphi
study.

Dana Berti, Xavier Van Vlasselaer, Philip Moons, Hein Heidbuchel
International journal of cardiology - 2016-01-01
“The catheter is occluded?” The Catheter Injection and Aspiration (CINAS) Classification answers your question
accurately!

Godelieve A Goossens, Yannick De Waele, Martine Jérôme, Steffen Fieuws, Christel Janssens, Marguerite Stas, Philip Moons
The Journal of the Association for Vascular Access. 20(4), 238–239 - 2015-01-01
Early physical training and psycho-educational intervention for patients undergoing coronary artery bypass grafting. The SheppHeart randomized 2 × 2 factorial clinical pilot
trial.

Ida E Højskov, Philip Moons, Niels V Hansen, Helle Greve, Dorte Bæk Olsen, Søren La Cour, Christian Glud, Per Winkel, Jane Lindschou, Ingrid Egerod, Anne Vinggaard Christensen, Selina Kikkenborg Berg
European journal of cardiovascular nursing : journal of the Working Group on Cardiovascular Nursing of the European Society of Cardiology - 2015-01-01
Determinants of illness perceptions in adults with acute or chronic somatic diseases: a systematic
review

S Arat, D De Cock, Philip Moons, J Vandenberghe, R Westhovens
Association for Researchers in Psychology and Health. 5-6 February 2015. Ghent, Belgium. - 2015-01-01
Quality of life in adults with congenital heart disease worldwide: A multilevel study in 15
countries

Silke Apers, AH Kovacs, Koen Luyckx, Philip Moons
Circulation - 2015-01-01
Caring for homecare: A mixed methods analysis of the current and future role of home
nurses

Kristel De Vliegher, Anja Declercq, Bert Aertgeerts, Philip Moons
Archives of Public Health - 2015-01-01
Uncertainties in insurances for adults with congenital heart
disease

MA Sluman, Silke Apers, BJ Bouma, Joost van Melle, CH Peels, MC Post, WM Waskowsky, Philip Moons, BJM Mulder
European Heart Journal - 2015-01-01
Adjusting to congenital heart disease in adolescence: The role of patients’ personality and
self

Jessica Rassart, Koen Luyckx, Philip Moons
Clinical psychology and congenital heart disease. Edward Callus; Emilia Quadri (eds.) - 2015-01-01
Health care needs in adolescents into young adults with congenital heart disease: A Delphi survey of patients, parents and healthcare
providers

Chi-Wen Chen, WJ Su, YT Chiang, YM Shu, Philip Moons
European Heart Journal - 2015-01-01
Impact of SMS reminder system on missed appointments in an outpatient clinic for adults with congenital heart
disease

Kristien Van Deyk, Eva Goossens, Sanne Strijbos, Werner Budts, Philip Moons
Abstract book 25th International Symposium on Adult Congenital Heart Disease ‘Transforming ACHD Care’. 3-6 June 2015, Toronto, Canada. - 2015-01-01
Patient-Reported Health in Young People With Congenital Heart Disease Transitioning to
Adulthood

Ewa-Lena Bratt, Koen Luyckx, Eva Goossens, Werner Budts, Philip Moons
Journal of Adolescent Health - 2015-01-01
Is Illness Perception and Coping Associated with the Patient-related Treatment Delay in Early Rheumatoid Arthritis? An Explorative Study within the CareRA
trial.

K Van der Elst, D De Cock, E Vecoven, S Arat, S Meyfroidt, J Joly, Philip Moons, P Verschueren, R Westhovens
European Congress of Rheumatology EULAR. 10-13 June 2015. Rome, Italy. - 2015-01-01
Adjusting to congenital heart disease in adolescence: The role of patients’ personality and
self

J Rassart, K Luyckx, Philip Moons
Association for Researchers in Psychology and Health. 5-6 February 2015. Ghent, Belgium. - 2015-01-01
Parental and Peer Support in Adolescents With a Chronic Illness: a typological approach and developmental
implications

L Oris, K Luyckx, I Seiffge-Krenke, J Rassart, E Goethals, E Goossens, Philip Moons
Association for Researchers in Psychology and Health. 5-6 February 2015. Ghent, Belgium. - 2015-01-01
Preliminary validation of an illness perception questionnaire for healthcare
professionals

S Arat, A Van den Zegel, Philip Moons, J Vandenberghe, R Westhovens
British Society for Rheumatology Conference. 28-30 April 2015. Manchester, United Kingdom. - 2015-01-01
Ziekte-identiteit bij adolescenten en opkomende volwassenen met een chronische ziekte [Illness identity in adolescents and emerging adults with chronic
illness].

L Oris, I Weets, Philip Moons, K Luyckx
Vlaams Congres Kinder- en Jeugdpsychiatrie en –psychotherapie. 17-18 september 2015, Brussels, Belgium. - 2015-01-01
The 24-h recall instrument for home nursing to measure the activity profile of home nurses: development and psychometric
testing.

Kristel De Vliegher, Bert Aertgeerts, Anja Declercq, Christiane Gosset, Isabelle Heyden, Michel Van Geert, Philip Moons
Primary health care research & development - 2015-01-01
Exploring the activity profile of health care assistants and nurses in home
nursing.

Kristel De Vliegher, Bert Aertgeerts, Anja Declercq, Philip Moons
British journal of community nursing - 2015-01-01
Clinical
Assessment

Philip Moons, Marc Sabbe, Werner Budts, Lieven Dupont, Martin Hiele, Erik Van Limbergen, Marie-Anne Morren, Frank Luyten, Maarten Schrooten, Guido Van Driel, Werner Spileers, Greet Hens
- 2015-01-01
The impact of new technologies on quality of life for the adult with tetralogy of
Fallot

Philip Moons
Scientific Sessions of the American Heart Association. Orlando FL, USA (8 Nov, 2015). - 2015-01-01
Quality of life in adults with congenital heart
disease

Silke Apers, Koen Luyckx, Philip Moons
Clinical psychology and congenital heart disease - 2015-01-01
Psychosocial Functioning and Glycemic Control in Emerging Adults With Type 1 Diabetes: A 5-Year Follow-Up
Study.

Jessica Rassart, Koen Luyckx, Cynthia A Berg, Patricia Bijttebier, Philip Moons, Ilse Weets
Health psychology : official journal of the Division of Health Psychology, American Psychological Association - 2015-01-01
Management and treatment of congenital heart disease in the 21st
century

Eva Goossens, Philip Moons, Werner Budts
EuroHeartCare 2015. Dubrovnik, Croatia (invited lecture: 15 June 2015). - 2015-01-01
Implementation of the American College of Cardiology/American Heart Association 2008 Guidelines for the Management of Adults With Congenital Heart
Disease.

Eva Goossens, Susan M Fernandes, Michael J Landzberg, Philip Moons
American Journal of Cardiology - 2015-01-01
Quality of life in congenital heart
disease

Philip Moons
National Foundation for Research in Pediatric Cardiology. Leuven, Belgium. 17 October 2015 - 2015-01-01
Closing the gap: The role of research in professional
education

Philip Moons
Research days, University College Metropole, Copenhagen, Denmark (23 Sept 2015) - 2015-01-01
Forty Years of Quality-of-Life Research in Congenital Heart Disease: Temporal Trends in Conceptual and Methodological
Rigor

Ewa-Lena Bratt, Philip Moons
International Journal of Cardiology - 2015-01-01
Quality of life in adult congenital heart disease: From research to
practice

Philip Moons
25th International Symposium on Adult Congenital Heart Disease. June 3 – 6, 2015. Toronto, Canada - 2015-01-01
Conceptual and Methodological Rigor in Quality of Life Research in Congenital Heart
Disease

Ewa-Lena Bratt, Philip Moons