Mariela Acuna Mora
Om Mariela Acuna Mora
Mariela Acuna Mora är biträdande forskare på Institutionen för vårdvetenskap och hälsa. Hon är född och uppvuxen i Costa Rica. Hon har en sjuksköterskeexamen från Costa Rica och masterexamen i Folkhälsavetenskap och hälsoekonomi från Göteborgs Universitet. Hon disputerade januari 2021 och hennes doktorandtjänst var den första "double degree" vid Sahlgrenska Akademin. Hon fick en dubbel doktorsexamen, vid både SA och KU Leuven i Belgien.
Forskning
Mariela forskar inom övergången från barnsjukvård till vuxenvård hos ungdomar med medfödda hjärtfel.
Nyckelord
Personcentrerad vård, övergången, överföring, kroniska eller medfödda sjukdomar.
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Gothenburg Empowerment Scale (GES): psychometric properties and measurement invariance in adults with congenital heart disease from Belgium, Norway and South
Korea
Mariela Acuña Mora, K. Raymaekers, L. Van Bulck, E. Goossens, K. Luyckx, A. H. Kovacs, B. Andresen, J. R. Moon, A. Van De Bruaene, J. Rassart, Philip Moons
Health and Quality of Life Outcomes - 2022-01-01 -
Adolescents With Congenital Heart Disease: What Do They Know About Reproductive Health and
Risks?
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Journal of Cardiovascular Nursing - 2022-01-01 -
The STEPSTONES transition program for adolescents with congenital heart disease is effective in improving patient empowerment: a randomized controlled
trial
Ewa-Lena Bratt, Mariela Acuña Mora, Carina Sparud Lundin, Markus Saarijärvi, Åsa Burström, Sandra Skogby, Eva Fernlund, Shalan Fadl, Annika Rydberg, Katarina Hanseus, Kazamia Kalliopi, Philip Moons
ESC 2022 - 2022-01-01 -
Definitions, instruments and correlates of patient empowerment: A descriptive
review.
Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Patient education and counseling - 2022-01-01 -
Patient empowerment: a way to improve the communication between young persons and healthcare
providers
Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
European Heart Journal; 42 (Suppl 1): 3120 - 2021-01-01 -
Empowerment: a central outcome for transition of care of young
people
Mariela Acuña Mora
Association for European Paediatric and Congenital Cardiology Annual Conference - 2021-01-01 -
Patient empowerment during the transition to adulthood in young persons with chronic
conditions
Mariela Acuña Mora
- 2021-01-01 -
Empowering young persons during the transition to
adulthood
Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
Transition from Pediatric to Adult Healthcare Services for Young Adults with Long-Term Conditions: An International Perspective on Nurses Roles and Interventions - 2020-01-01 -
Patient empowerment and its correlates in young persons with congenital heart
disease.
Mariela Acuña Mora
European Journal of Cardiovascular Nursing Journal Club - 2020-01-01 -
Empowering young persons with congenital heart disease: Using intervention mapping to develop a transition program - the STEPSTONES
project.
Mariela Acuña Mora, Markus Saarijärvi, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Journal of pediatric nursing - 2020-01-01 -
Burden on parents of children with haemophilia: The impact of sociodemographic and child's medical
condition
Linda Myrin-Westesson, Carina Sparud Lundin, F. Baghaei, K. Khair, S. von Mackensen, Mariela Acuña Mora, Catarina Wallengren
Journal of Clinical Nursing - 2019-01-01 -
The Scope of Research on Transfer and Transition in Young Persons With Chronic
Conditions
Mariela Acuña Mora, Markus Saarijärvi, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt, Eva Goossens
Journal of Adolescent Health - 2019-01-01 -
Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart
disease
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
Abstract book of the 99th Berzelius conference, 21-22 February 2019, Stockholm, Sweden, p29-30. - 2019-01-01 -
Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their
Parents
A. Burstrom, Mariela Acuña Mora, M. Ojmyr-Joelsson, Carina Sparud Lundin, A. Rydberg, K. Hanseus, B. Frenckner, M. Nisell, Philip Moons, Ewa-Lena Bratt
Journal of Family Nursing - 2019-01-01 -
Patient empowerment and its correlates in young persons with congenital heart
disease
Mariela Acuña Mora, Carina Sparud Lundin, Åsa Burström, Katarina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Journal of Cardiovascular Nursing - 2019-01-01 -
Transition program to empower adolescents with chronic conditions in their transition to adulthood: methods and rationale for the STEPSTONES
project
Markus Saarijärvi, Mariela Acuña Mora, Carina Sparud Lundin, Lars Wallin, Hanna Gyllensten, Ewa-Lena Bratt, Philip Moons
Forte Talks, 26-27 mars 2019, Stockholm - 2019-01-01 -
Lack of Knowledge about Contraception and Pregnancy in Adolescent Girls with Congenital Heart Disease – There is Room for
Improvement.
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
53rd Annual Meeting of the Association for European Paediatric and Congenital Cardiology (AEPC) 15-18 May 2019, Seville, Spain. - 2019-01-01 -
Parents’ experience of uncertainty related to transfer from pediatrics to adult care in adolescents with congenital heart
disease
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Philip Moons, Ewa-Lena Bratt
SAHM Society of Adolescent and Health Medicine. 2019 Annual Meeting Psychological Well-being: International Transcultural Perspectives. March 6-9, 2019 Washington, USA. - 2019-01-01 -
Person-centered and Empowering Care for Adolescents with Chronic Conditions during Transition to
Adulthood
Ewa-Lena Bratt, Mariela Acuña Mora, Markus Saarijärvi, Sandra Skogby, Anna-Lena Brorsson, Carina Sparud Lundin
SAHM - Society of Adolescent and Health Medicine Annual meeting March 6-9 2019, Washington, US. - 2019-01-01 -
Parental Uncertainty About Transferring Their Adolescent with Congenital Heart Disease to Adult
Care.
Åsa Burström, Mariela Acuña Mora, Maria Öjmyr-Joelsson, Carina Sparud Lundin, Annika Rydberg, Katarina Hanseus, Björn Frenckner, Margret Nisell, Philip Moons, Ewa-Lena Bratt
Journal of advanced nursing - 2019-01-01 -
Theoretical and clinical challenges when developing and evaluating complex interventions in
health
Mariela Acuña Mora
EuroHeart Care - 2018-01-01 -
Adolescents with congenital heart disease own beliefs about their illness: illness perception and potential
correlates
Mariela Acuña Mora, Åsa Burström, Carina Sparud Lundin, Katarina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Society of Cardiology Congress - 2018-01-01 -
Ready for the transfer to adult care—factors associated with transition readiness in adolescents with congenital heart
disease
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Maria Öjmyr Joelsson, Björn Frenckner, Margret Nisell, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
52nd Annual Meeting of the Association for European Paeditric and Congenital Cardiology. 9-12 May. Athens, Greece. - 2018-01-01 -
Betydelsen av Empowerment hos unga med långvariga sjukdomstillstånd vid
övergången till vuxenlivet och överföring till vuxensjukvården- ett
doktorandprojekt
Mariela Acuña Mora, Carina Sparud Lundin, Philip Moons, Ewa-Lena Bratt
Sjuksköterskedagarna - 2018-01-01 -
Patient empowerment in young persons with chronic conditions: Psychometric properties of the Gothenburg Young Persons Empowerment Scale
(GYPES).
Mariela Acuña Mora, Koen Luyckx, Carina Sparud Lundin, Mariëlle Peeters, AnneLoes van Staa, Jane Sattoe, Ewa-Lena Bratt, Philip Moons
PloS one - 2018-01-01 -
Empowering the patients in their own care - one step at a
time
Mariela Acuña Mora
European Journal of Cardiovascular Nursing - 2018-01-01 -
Scoping the field of transfer and transition in young persons with cardiovascular
conditions
Markus Saarijärvi, Mariela Acuña Mora, Ewa-Lena Bratt, Carina Sparud Lundin, Philip Moons, Eva Goossens
EuroHeartCare 2018, Dublin - 2018-01-01 -
STEPSTONES - pågående studie för att förbättra övergången till vuxenlivet för ungdomar med medfödda
hjärtfel
Mariela Acuña Mora, Markus Saarijärvi, Ewa-Lena Bratt
Hjärtebarnet - 2018-01-01 -
Mapping the field: scoping reviews as a method to identify gaps in nursing
research
Mariela Acuña Mora, Markus Saarijärvi, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons, Eva Goossens
Nordic Conference of Nursing Research 2018 - 2018-01-01 -
STEPSTONES
forskningsprojekt
Mariela Acuña Mora
Forskningsdagen Sahlgrenska Akademin - 2017-01-01 -
The STEPSTONES project-Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to
adulthood
Ewa-Lena Bratt, Carina Sparud Lundin, Mariela Acuña Mora, Philip Moons
ISTAR Konferens - 2017-01-01 -
Level of empowerment and its correlates in young persons with congenital heart
disease
Mariela Acuña Mora, Carina Sparud Lundin, Åsa Burström, Katerina Hanseus, Annika Rydberg, Philip Moons, Ewa-Lena Bratt
European Heart Journal. 38 (Suppl.1), ehx502.P1517 - 2017-01-01 -
Empowerment in congenital heart disease: psychometric properties of the Gothenburg Young Persons Empowerment Scale
(GYPES)
Mariela Acuña Mora, Carina Sparud Lundin, Koen Luyckx, Ewa-Lena Bratt, Philip Moons
European Journal of Cardiovascular Nursing. Vol 16, Issue 1_suppl. - 2017-01-01 -
Readiness for transfer in adolescents with congenital heart
disease
Åsa Burström, Mariela Acuña Mora, Carina Sparud Lundin, Katarina Hanseus, Annika Rydberg, M Ojmyr-Joelsson, M Nisell, B Frenckner, Philip Moons, Ewa-Lena Bratt
Abstract Book of World Congress on Pediatric Cardiology and Cardiac Surgery 2017, p 806 - 2017-01-01 -
Using intervention mapping in developing complex nursing interventions- the STEPSTONES transition program for adolescents with chronic
conditions
Mariela Acuña Mora, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt
The Future Direction of European Nursing nd Nursing Research - 2017-01-01 -
Person-centred transition programme to empower adolescents with congenital heart disease in the transition to adulthood: a study protocol for a hybrid randomised controlled trial (STEPSTONES
project)
Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
BMJ Open - 2017-01-01 -
Hybrid experimental design: A suitable design to tackle contamination of control
groups
Mariela Acuña Mora, Carina Sparud Lundin, Ewa-Lena Bratt, Philip Moons
Nordic Conference in Nursing Research: Methods and Networks for the Future, June 15-17, Stockholm - 2016-01-01 -
Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood: Rationale and methods of the STEPSTONES-CHD
project
Philip Moons, Carina Sparud Lundin, Mariela Acuña Mora, Ewa-Lena Bratt
46th Nordic Meeting in Paediatric Cardiology, 21-23 September 2016. Båstad, Sweden - 2016-01-01 -
Assessing the level of evidence on transfer and transition in young people with chronic conditions: protocol of a scoping
review
Mariela Acuña Mora, Philip Moons, Carina Sparud Lundin, Ewa-Lena Bratt, Eva Goossens
Systematic Reviews - 2016-01-01 -
Effectiveness of a transition program to empower adolescents with congenital heart disease in the transition to adulthood: Rationale and methods of the STEPSTONES-ConHD
project
Philip Moons, Carina Sparud Lundin, Mariela Acuña Mora, Ewa-Lena Bratt
Cardiology in the Young. 50th Annual Meeting of the Association for European Paediatric and Congenital Cardiology, Rome, Italy, June 1–4, 2016. - 2016-01-01