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Cultural adaptation and validation of the Norwegian version of the swallowing quality of life questionnaire (SWAL-QOL)

Artikel i vetenskaplig tidskrift
Författare Maribeth Caya Rivelsrud
M. Kirmess
Lena Hartelius
Publicerad i Health and Quality of Life Outcomes
Volym 17
Nummer/häfte 1
Sidor 11
ISSN 1477-7525
Publiceringsår 2019
Publicerad vid Institutionen för neurovetenskap och fysiologi, sektionen för hälsa och rehabilitering
Institutionen för neurovetenskap och fysiologi
Sidor 11
Språk en
Länkar dx.doi.org/10.1186/s12955-019-1248-...
Ämnesord Deglutition disorders, Oropharyngeal dysphagia, Health-related quality, of life, SWAL-QOL, Translation, Psychometric, Assessment, Treatment, health-related quality, functional oral intake, oropharyngeal dysphagia, outcomes tool, psychometric properties, dutch version, reliability, stroke, adults, prevalence, Health Care Sciences & Services
Ämneskategorier Omvårdnad

Sammanfattning

Introduction Oropharyngeal dysphagia (OD) is a disorder that can have devastating and long lasting effects on a person's medical, mental and psychosocial well-being, thus negatively impacting quality of life. There is currently no validated dysphagia-specific quality of life instrument in Norway. This project aims to evaluate the psychometric properties of the culturally adapted Norwegian version of SWAL-QOL (Nor-SWAL-QOL). Methods The original SWAL-QOL was translated into Norwegian according the international translation guidelines. A group of 102 persons with OD and a group of 123 healthy controls were recruited to assess the validity and reliability of the Nor-SWAL-QOL. Correlation analysis of the Nor-SWAL-QOL and the Short Form 36 (SF-36) and correlation analysis of OD group and control group Nor-SWAL-QOL subscale scores were computed to determine convergent, discriminant, and known-groups validity which help comprise construct validity. Internal consistency, test-retest reliability and intraclass correlation coefficient (ICC) were computed for reliability. Results Convergent and discriminant validity was demonstrated between Nor-SWAL-QOL subscales and SF-36 domains, and distinguished between persons with and those without oropharyngeal dysphagia on all subscales and on the symptom frequency battery (p < 0.001). Additionally, the Nor-SWAL-QOL differentiated between symptom severity levels within the OD group; those requiring food and liquid modifications and those who are tube fed and not tube fed. Nor-SWAL-QOL showed good reliability with adequate internal consistency (Cronbach's alpha >= 0.70), test-retest reliability (Spearman's rho values 0.68-0.90) and ICC values (0.67-0.89) for all subscales and for the symptom frequency battery. Conclusion Access to valid and reliable dysphagia-specific QoL outcome measures for health care practitioners, dysphagia clinicians and researchers is necessary for comprehensive assessment and treatment outcome measures. The Nor-SWAL-QOL exhibits sufficient psychometric properties for implementation in the Norwegian population.

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