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Siblings' Lived Experiences of Having a Brother or Sister With Home Mechanical Ventilation: A Phenomenological Hermeneutical Study

Artikel i vetenskaplig tidskrift
Författare A. Israelsson-Skogsberg
A. Markstrom
Katja Laakso
L. Heden
B. Lindahl
Publicerad i Journal of Family Nursing
ISSN 1074-8407
Publiceringsår 2019
Publicerad vid Institutionen för neurovetenskap och fysiologi
Språk en
Länkar dx.doi.org/10.1177/1074840719863916
Ämnesord child, family, home mechanical ventilation, sibling relationships, family nursing, long-term ventilation, quality-of-life, childhood chronic conditions, chronic illness, family management, care needs, children, perspectives, patterns, Family Studies, Nursing
Ämneskategorier Omvårdnad

Sammanfattning

Over the past few decades, there has been an increase in the number of children receiving home mechanical ventilation (HMV), and in many ways, families have taken responsibility for the required advanced homecare, which has placed considerable time demands on the family unit. Little is known about the life situation of the siblings of HMV-assisted children; their own voices and an insider perspective are missing. The aim of this study was to illuminate the everyday life experiences of siblings of HMV-assisted children. Data were obtained via interviews with 10 siblings with a median age of 9 years. Data were analyzed using a phenomenological hermeneutical method inspired by the French philosopher Ricoeur. Four themes emerged, all of which suggest that a complex and profound intertwined sibling bond develops that links the past, present, and future. The findings of this study provide valuable information from an insider's perspective about the meaning of having an HMV-assisted sibling. Family-focused care with particular attention and support for siblings of HMV-assisted children can encourage the development of internal strengths, self-confidence, and resilience.

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