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Parents’ experience of support in Sweden: Its availability, accessibility, and quality

Artikel i vetenskaplig tidskrift
Författare Herawati I. Nowak
Malin Broberg
Mikaela Starke
Publicerad i Journal of Intellectual Disabilities
Volym 17
Nummer/häfte 2
Sidor 134-144
ISSN 1744-6295
Publiceringsår 2013
Publicerad vid Psykologiska institutionen
Institutionen för socialt arbete
Sidor 134-144
Språk en
Länkar dx.doi.org/10.1177/1744629513486229
Ämneskategorier Tillämpad psykologi

Sammanfattning

Semi-structured interviews were conducted with six parents of children with intellectual disabilities, in the Western region of Sweden. The aim of the study was to explore and to gain a deeper understanding of parents’ experiences of received support for them and their children with intellectual disabilities. We focused particularly on their experiences of the availability, accessibility, and the quality of services. Parents in this study were unsure about what the diagnosis meant specifically for their child as well as for their whole family. Moreover, the parents experienced great difficulty in obtaining information about available services, which resulted in feelings of helplessness to some. Parents also reported that although services are available, they were not easily accessible. Lastly, parents felt that the quality of care and support were to some extent inadequate, as no attention was paid by professionals to their actual needs or wishes.

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