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Patient-reported outcomes in the Swedish Hip Arthroplasty Register: results of a nationwide prospective observational study.

Artikel i vetenskaplig tidskrift
Författare Ola Rolfson
Johan Kärrholm
L E Dahlberg
Göran Garellick
Publicerad i The Journal of bone and joint surgery. British volume
Volym 93
Nummer/häfte 7
Sidor 867-75
ISSN 0301-620X
Publiceringsår 2011
Publicerad vid Institutionen för kliniska vetenskaper, Avdelningen för ortopedi
Sidor 867-75
Språk en
Länkar dx.doi.org/10.1302/0301-620X.93B7.2...
Ämneskategorier Ortopedi

Sammanfattning

We present the development and results of a nationwide, prospective, observational follow-up programme including patient-reported outcome measures (PROMs) for the Swedish Hip Arthroplasty Register. The programme started in 2002 and has gradually expanded to include all units performing total hip replacement in Sweden. The self-administered PROMs protocol comprises the EQ-5D instrument, the Charnley class categorisation and visual analogue scales for pain and satisfaction. These current analyses include 34 960 total hip replacements with complete pre- and one-year post-operative questionnaires. Patients eligible for total hip replacement generally report low health-related quality of life and suffer from pain. One year post-operatively the mean EQ-5D index increased to above the level of an age- and gender-matched population, with a considerable reduction of pain (p < 0.001). Females, younger patients and those with Charnley category C reported a lower EQ-5D index pre-operatively than males, older patients and Charnley category A or B, respectively (all p < 0.001). In a multivariable regression analysis Charnley category C, male gender and higher age were associated with less improvement in health-related quality of life (p < 0.001). Nationwide implementation of a PROMs programme requires a structured organisation and effective data capture. Patients' response rates to the Registry are good. The continuous collection of PROMs permits local and national improvement work and allows for further health-economic evaluation.

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