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Pain management for children with cerebral palsy in school settings in two cultures: action and reaction approaches

Forskningsöversiktsartikel
Författare Margareta Adolfsson
Ensa Johnson
Stefan Nilsson
Publicerad i Disability and Rehabilitation
Volym 40
Nummer/häfte 18
Sidor 2152-2162
ISSN 0963-8288
Publiceringsår 2018
Publicerad vid Institutionen för vårdvetenskap och hälsa
Sidor 2152-2162
Språk en
Länkar https://doi.org/10.1080/09638288.20...
Ämnesord Intervention, involvement, participation, prevention, strategy
Ämneskategorier Omvårdnad, Reproduktiv och perinatal omvårdnad

Sammanfattning

© 2017 Informa UK Limited, trading as Taylor & Francis Group Background: Children with cerebral palsy (CP) face particular challenges, e.g. daily pain that threaten their participation in school activities. This study focuses on how teachers, personal assistants, and clinicians in two countries with different cultural prerequisites, Sweden and South Africa, manage the pain of children in school settings. Method: Participants’ statements collected in focus groups were analysed using a directed qualitative content analysis framed by a Frequency of attendance-Intensity of involvement model, which was modified into a Knowing-Doing model. Results: Findings indicated that pain management focused more on children’s attendance in the classroom than on their involvement, and a difference between countries in terms of action-versus-reaction approaches. Swedish participants reported action strategies to prevent pain whereas South African participants primarily discussed interventions when observing a child in pain. Conclusion: Differences might be due to school- and healthcare systems. To provide effective support when children with CP are in pain in school settings, an action-and-reaction approach would be optimal and the use of alternative and augmentative communication strategies would help to communicate children’s pain. As prevention of pain is desired, structured surveillance and treatment programs are recommended along with trustful collaboration with parents and access to “hands-on” pain management when needed.Implications for rehabilitation• When providing support, hands-on interventions should be supplemented by structured preventive programs and routines for parent collaboration (action-and-reaction approach).• When regulating support, Sweden and South Africa can learn from each other;○ In Sweden, the implementation of a prevention program has been successful.○ In South Africa, the possibilities giving support directly when pain in children is observed have been beneficial.

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