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Well-being in patients with amyotrophic lateral sclerosis and their next of kin over time.

Artikel i vetenskaplig tidskrift
Författare Anneli G Olsson
Inga Markhede
Susann Strang
Lennart I. Persson
Publicerad i Acta neurologica Scandinavica
Volym 121
Nummer/häfte 4
Sidor 244-50
ISSN 1600-0404
Publiceringsår 2010
Publicerad vid Institutionen för neurovetenskap och fysiologi, sektionen för klinisk neurovetenskap och rehabilitering
Sidor 244-50
Språk en
Länkar dx.doi.org/10.1111/j.1600-0404.2009...
Ämneskategorier Medicin och Hälsovetenskap

Sammanfattning

Objectives - The well-being and physical function among patients with ALS and their next of kin was studied over time. Materials and methods - Thirty-five patients with ALS and their next of kin were studied with respect to physical, general and psychological well-being by the visual analogue scale (VAS) every 4-6 months. Physical function in patients was rated by the ALSFRS-R and the Norris scale. Patients and next of kin rated the well-being of themselves and their counterpart. Results - The well-being was stable and there was a relation between the well-being of patients and next of kin throughout the time studied. Next of kin rated the well-being of the patients worse than patients rated themselves, while patients rated the well-being of their next of kin at the same level as their counterpart. Conclusions - The basic state of well-being as well as the interaction between patient and next of kin seem to be factors that influence the well-being of both patients and their next of kin.

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