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Understanding User Involvement in Research in Aging and Health

Journal article
Authors S. Iwarsson
A. K. Edberg
Synneve Dahlin-Ivanoff
E. Hanson
H. Jonson
S. Schmidt
Published in Gerontology and Geriatric Medicine
Volume 5
Pages 10
Publication year 2019
Published at Centre for Ageing and Health (Agecap)
Pages 10
Language en
Links dx.doi.org/10.1177/2333721419897781
Keywords community, public and patient involvement, disability, gerontology, nursing, public health, public policy, rehabilitation, social work, volunteering, frail older adults, public involvement, patient, care, accessibility, people, impact, Geriatrics & Gerontology
Subject categories Geriatrics

Abstract

User involvement in research is advocated as an avenue for efficient societal developments. In this article, we identify potentials, problems, and challenges related to research on aging and health, and identify and illustrate research priorities using an evolving research program as an example. Involving user representatives in the development phase, the UserAge program engages researchers at four universities in Sweden. The program builds upon previous and ongoing research with user involvement. The goals are to maximize the impact of user involvement, enhance the execution of high-quality research, increase the knowledge about what difference user involvement can make, and evaluate the impact of research about and with user involvement. Taken together and communicated in the international scientific community as well as in a wide range of public arenas, the empirical results, capacity-building, and modeling efforts of UserAge will have an impact not only on the present situation but also on the future.

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