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Psychometric evaluation of the anticipatory grief scale in a sample of family caregivers in the context of palliative care.

Journal article
Authors M. Holm
A. Alvariza
C. J. Fürst
Joakim Öhlen
K. Årestedt
Published in Health and Quality of Life Outcomes
Volume 17
Issue 1
Pages 42
ISSN 1477-7525
Publication year 2019
Published at University of Gothenburg Centre for person-centred care (GPCC)
Institute of Health and Care Sciences
Pages 42
Language en
Links dx.doi.org/10.1186/s12955-019-1110-...
www.ncbi.nlm.nih.gov/entrez/query.f...
Keywords Caregivers, psychology, Cross-Sectional Studies, Family, psychology, Female, Grief, Humans, Male, Middle Aged, Palliative Care, psychology, Psychometrics, Quality of Life, psychology, Surveys and Questionnaires, standards
Subject categories Palliative medicine, Nursing

Abstract

In palliative care, family caregivers are often faced with experiences of grief in anticipation of the loss of a close person. An instrument designed to measure this form of grief is the Anticipatory Grief Scale, which includes 27 items and has been used in several studies in various contexts. However, the instrument has not been validated.The aim was to evaluate the psychometric properties, focusing on the factor structure, of the Anticipatory Grief Scale in a sample of family caregivers in palliative care.The study had a cross-sectional design. Data were collected from an intervention study in palliative home care that took place between 2013 and 2014. In total, 270 family caregivers in palliative care completed a baseline questionnaire, including the Anticipatory Grief Scale. The factor structure of the scale was evaluated using exploratory factor analysis.The initial factor analysis suggested a four-factor solution, but, due to weak communalities, extensive crossloadings, and item inconsistencies, the model was problematic. Further analysis supported that the scale should be reduced to 13 items and two factors. The two subscales captured the behavioral and emotional reactions of grief in family caregivers in palliative care and were named Behavioral reactions and Emotional reactions. This modified version will hereafter be named AGS-13.This validation study of the Anticipatory Grief Scale resulted in a revised two-factor model, AGS-13, that appears to be promising for use in palliative care but needs to be tested further.

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