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Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world.

Journal article
Authors SN Roger
A Alvear
A Anesi
E Babin
A Balik
M Batstone
P Brockmeyer
CC Carrasco
CY Chien
M Chirila
KP Dholam
JG Doss
Caterina Finizia
WMN Ghani
SV Gurav
K Kadir
M Kolator
R Lima
YT Lin
S Nhongo
M Ozdemir-Karatas
K Peker
Z Pesic
P Ransy
I Santos
H Schliephake
K Shah
F Souza
G Sunil
K Thankappan
YT Ehrsson
C Tiple
Lisa Tuomi
S Valerini
PV Lara
T Zatonski
D Lowe
Published in Head and Neck
Volume 42
Issue 3
Pages 498-512
ISSN 1043-3074
Publication year 2020
Published at Institute of Clinical Sciences, Department of Otorhinolaryngology
Pages 498-512
Language en
Subject categories Otorhinolaryngology


Abstract Background The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow‐up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). Methods Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. Results There were 2136 patients with a median total number of PCI items selected of 5 (2‐10). “Fear of the cancer returning” (39%) and “dry mouth” (37%) were most common. Twenty‐five percent (524) reported less than good QOL. Conclusion There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case‐mix variables. There was a strong progressive association between the number of PCI items and QOL.

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