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Agreement between self-reports, proxy-reports and the National Patient Register regarding diagnoses of cardiovascular disorders and diabetes mellitus in a population-based sample of 80-year-olds

Journal article
Authors Lina Rydén
Robert Sigström
Johan Nilsson
Valter Sundh
Hanna Falk
Silke Kern
Margda Waern
Svante Östling
Katarina Wilhelmson
Ingmar Skoog
Published in Age and Ageing
Volume 48
Issue 4
Pages 513–518
ISSN 0002-0729
Publication year 2019
Published at Institute of Neuroscience and Physiology
Centre for Ageing and Health (Agecap)
Pages 513–518
Language en
Keywords Dementia, Proxy-informants, Cardiovascular disease, Ageing, Agreement, Older people
Subject categories Epidemiology, Gerontology, specializing in Medical and Health Sciences


Abstract Background: cognitive impairment is common among older adults, necessitating the use of collateral sources in epidemiological studies involving this age group. The objective of this study was to evaluate agreement between self- and proxyreports of cardiovascular disorders and diabetes mellitus in a population-based sample of 80-year-olds. Further, both self and proxy-reports were compared with hospital register data. Methods: data were obtained from the Gothenburg H70 Birth Cohort Studies in Sweden. The study had a cross-sectional design and information was collected through semi-structured interviews in 2009–2012 from participants born in 1930 (N = 419) and their proxy informants. The National Patient Register provided diagnoses registered during hospital stays. Agreement was measured with Kappa values (K). Results: agreement between self- and proxy-reports was substantial for diabetes mellitus (K = 0.79), atrial fibrillation (K = 0.61), myocardial infarction (K = 0.75), angina pectoris (K = 0.73) and hypertension (K = 0.62), and fair for intermittent claudication (K = 0.38) and heart failure (K = 0.40). Compared to the National Patient Register, a large proportion of those with a hospital discharge diagnosis were also self- and proxy-reported. Conclusions: proxy informants can be an important source of information, at least for well-defined conditions such as myocardial infarction, angina pectoris and diabetes mellitus.

Page Manager: Webmaster|Last update: 9/11/2012

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