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Ethics of allocation in translational genomic medicine

Conference contribution
Authors Christian Munthe
Published in Resource Allocation in Personalised Medicine: Evaluation, Translation & Ethics. University of Oxford, May 19, 2018
Publication year 2018
Published at Department of Philosophy, Linguistics and Theory of Science
Language en
Links https://gup.ub.gu.se/file/207487
Keywords Genomics, bioethics, translational research, research ethics, research allocation, health economics, priority setting, health policy
Subject categories Technology and social change, Research policy, Medical Ethics, Health Care Service and Management, Health Policy and Services and Health Economy, Ethics, Practical philosophy

Abstract

Translational medical models brings experimental and basic research practices into the midst of clincial healthcare operations, and there is much hope that this move will enhance the quality, in many areas, not least ones where genomic strategies are advancing. But translational and genomic shifts usually bring with them considerable costs, while standard notions of ethically justifying the allocation of healthcare resources is that cost increases must be justified by sufficient proven quality increases in terms of bona fide health gains for patients, in comparisons to other patient groups that could have made use of the same amoutnt of resources. However, in different ways, the translational genomic model presents troubles in demonstrating such justification. Similarly, research resource allocation needs to be justified by scientific advances, not usefulness in clinical healthcare. I will use two contrasting ways in which a translational genomic model may be set upp, and discuss their respective challanges in justifying expenditure, as well as different models for producing arguments in favor of such a justification.

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