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Health-related quality of life experiences among children and adolescents born with esophageal atresia: Development of a condition-specific questionnaire for pediatric patients.

Journal article
Authors Michaela Dellenmark-Blom
John Chaplin
Vladimir Gatzinsky
Linus Jönsson
Helena Wigert
Jeanette Apell
Ulla Sillén
Kate Abrahamsson
Published in Journal of pediatric surgery
Volume 51
Issue 4
Pages 563–569
ISSN 1531-5037
Publication year 2016
Published at Institute of Clinical Sciences, Department of Pediatrics
Pages 563–569
Language en
Links dx.doi.org/10.1016/j.jpedsurg.2015....
https://gup.ub.gu.se/file/185997
Keywords Esophageal atresia; Congenital malformation; Quality of life; DISABKIDS; Focus group; Child
Subject categories Pediatrics

Abstract

The aims were to present the framework for the development a condition-specific health-related quality-of-life (HRQOL) questionnaire for children with esophageal atresia (EA) and to describe HRQOL experiences reported by children and by their parents.

Page Manager: Webmaster|Last update: 9/11/2012
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