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Parental perception of health-related quality of life in children and adolescents with short stature: literature review and introduction of the parent-reported QoLISSY instrument.

Journal article
Authors Julia Quitmann
Anja Rohenkohl
Monika Bullinger
John Chaplin
Michael Herdman
Dolores Sanz
Emmanuelle Mimoun
Eva Feigerlova
Kendra Debusk
Michael Power
Hartmut Wollmann
Andreas Pleil
Published in Pediatric endocrinology reviews : PER
Volume 11
Issue 2
Pages 147-60
ISSN 1565-4753
Publication year 2013
Published at Institute of Clinical Sciences, Department of Pediatrics
Pages 147-60
Language en
Links www.ncbi.nlm.nih.gov/entrez/query.f...
Keywords Adolescent, Body Height, physiology, Child, Child, Preschool, Dwarfism, psychology, Growth Disorders, psychology, Health Status, Humans, Parent-Child Relations, Parents, psychology, Perception, Psychometrics, methods, Quality of Life, Questionnaires
Subject categories Pediatrics

Abstract

Health-related quality of life (HrQoL) of the child diagnosed with short stature is an important outcome to be assessed both from the patient as well as from the parental perspective. The objective of this study was to review the literature on parent-reported HrQoL and to subsequently develop and psychometrically test the parent-reported version of the Quality of Life in Short Stature Youth (QoLISSY) instrument for use in clinical and epidemiologic research.

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