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Empowering young persons with congenital heart disease: Using intervention mapping to develop a transition program - the STEPSTONES project.

Journal article
Authors Mariela Acuña Mora
Markus Saarijärvi
Carina Sparud Lundin
Philip Moons
Ewa-Lena Bratt
Published in Journal of pediatric nursing
Volume 50
Pages e8-e17
ISSN 1532-8449
Publication year 2020
Published at Institute of Health and Care Sciences
Pages e8-e17
Language en
Subject categories Theory of science regarding care and nursing, Nursing


Describe the implementation of intervention mapping in the development of a transition program that aims to empower adolescents with congenital heart disease.To gain a better understanding of the problem, we conducted a literature review, focus group and individual interviews, and a cross-sectional survey. This information helped us decide on the scope of the intervention, relevant theories, determinants, formulate performance and change objectives and identify adequate evidence-based change methods. Once the transition program had been designed, effectiveness and process evaluation studies were planned.Young persons with congenital heart disease have insufficient disease-related knowledge, self-management skills and high parental involvement. The transition program involves three meetings with a trained transition coordinator over a two-and-a-half-year period and targets young persons with congenital heart disease and their parents. The transition coordinators use change techniques such as goal-setting, modeling and active learning in order to target three personal determinants (knowledge, self-efficacy and self-management).The use of intervention mapping may lead to designing interventions tailored to the needs of the targeted population. The transition program described in this paper is currently being evaluated in a hybrid experimental design with simultaneous undertaking of the process evaluation.This transition program can lead to the empowerment of young persons with congenital heart disease and help them in the process of becoming more responsible for their care. If proven effective, it can be implemented for other chronic conditions.

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