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Development of a programme for web-based support for children – a participatory design in children and families with urinary tract disorders.

Journal article
Authors Margaretha Jenholt Nolbris
Agneta Simeonsdotter Svensson
Gundela Holmdahl
Anna-Lena Hellström
Published in JSM Health Education and Primary Health Care
Volume 1
Issue 1
Pages 1001
Publication year 2016
Published at University of Gothenburg Centre for person-centred care (GPCC)
Department of Education, Communication and Learning
Institute of Health and Care Sciences
Pages 1001
Language en
Links https://www.jscimedcentral.com/Heal...
Subject categories Health Sciences

Abstract

Children with urinary tract and bowel malformation often realize that they do not have the same body and genital appearance as their schoolmates. This sensitive matter affects their integrity, a private problem that not is discussed in public. It is a lack of prevention program, particularly developed in cooperation with the children. The goal with the present project was to get tools for support in daily live. The aim of the study was together with the children, family, hospital staff and researcher; develop a web-based support program to be used in home setting. The study was conducted between 2011and2015. A participatory design was employed following the approach in person centred care with a partnership between 22 children 3-7 years old, their families and the research group of 8 persons. The program was built on stories about two children, their actions in different situations and with images to support the stories. Open conversations were used for the data collection and data were analysed using qualitative content analysis. Steps of 8 themes were formed from the developing of the web-based program, which offered a user-friendly support in daily life for the children with long-term illnesses and family.

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