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A person-centred approach in nursing: Validity and reliability of the Carer Support Needs Assessment Tool

Journal article
Authors A. Alvariza
M. Holm
Inger Benkel
M. Norinder
G. Ewing
G. Grande
Cecilia Håkansson
Joakim Öhlén
K. Årestedt
Published in European Journal of Oncology Nursing
Volume 35
Pages 1-8
ISSN 1462-3889
Publication year 2018
Published at University of Gothenburg Centre for person-centred care (GPCC)
Institute of Medicine, Department of Public Health and Community Medicine
Institute of Health and Care Sciences
Institute of Medicine, Department of Internal Medicine and Clinical Nutrition
Pages 1-8
Language en
Keywords Family caregivers, Instrument development, Nursing, Palliative care, Reliability, Validity, adult, article, caregiver burden, city, construct validity, female, home care, human, human experiment, interview, male, needs assessment, nurse, palliative therapy, quality of life, sound, Swedish citizen, test retest reliability, validation study
Subject categories Palliative medicine, Cancer and Oncology, Nursing


Purpose: The Carer Support Needs Assessment Tool (CSNAT) was developed for use among family caregivers in palliative care for assessment of their support needs. The purpose of this study was to translate and evaluate the validity and reliability of the CSNAT in a sample of Swedish family caregivers and nurses in a palliative care context. Methods: Data for this validation study was collected during 2016 in the context of palliative home care in two larger Swedish cities. The study was conducted in three stages to reach conceptual, semantic, operational and measurement equivalence between the original UK version and the Swedish version. Stage I consisted of translation to Swedish. In Stage II, cognitive interviews were performed with 8 family caregivers and 10 nurses. Data were analyzed based on relevance, clarity and sensitivity. In Stage III, the CSNAT and related self-rating measures (caregiver burden, preparedness for caregiving and quality of life) were completed by 118 family caregivers. Data quality, construct validity and test-retest reliability were evaluated. Results: The CSNAT items were considered relevant and useful to identify areas of support needs. The Swedish CSNAT showed sound psychometric properties with satisfactory data quality and few problems with missing data across items (1.8%-6.1%). All items except one correlated as expected (rho>0.3) with caregiver burden, supporting construct validity. All items had satisfactory test-retest reliability (κw=0.45-0.75). Conclusions: This study further adds to the validity of the CSNAT and shows in addition that it is reliable and stable for use among family caregivers in palliative care. © 2018 Elsevier Ltd

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