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Self-Perceived Participation and Autonomy at 1-Year Post Stroke: A Part of the Stroke Arm Longitudinal Study at the University of Gothenburg (SALGOT Study)

Journal article
Authors Karin Törnbom
Kristin Hadartz
Katharina S Sunnerhagen
Published in Journal of Stroke & Cerebrovascular Diseases
Volume 27
Issue 4
Pages 1115-1122
ISSN 1052-3057
Publication year 2018
Published at Institute of Neuroscience and Physiology, Department of Health and Rehabilitation
University of Gothenburg Centre for person-centred care (GPCC)
Pages 1115-1122
Language en
Keywords autonomy, functional dependency, neurological outcome, participation, rehabilitation, Stroke, aged, Article, cerebrovascular accident, cross-sectional study, family relation, female, follow up, human, Impact on Participation and Autonomy, longitudinal study, major clinical study, male, patient autonomy, patient participation, priority journal, questionnaire, self concept, social interaction, stroke patient
Subject categories Physiotherapy, Neurology


Background: Identifying factors predicting the long-term outcome of participation and autonomy after stroke is essential for developing individualized rehabilitation interventions. The aim was to describe self-assessed participation and autonomy and to explore factors associated with the same at 1 year post stroke. Methods: Participants consisted of 79 persons (mean age = 67) with a first-time stroke at the 1-year follow-up. To investigate perceived participation and autonomy at 1 year, a self-assessment questionnaire, the Impact on Participation and Autonomy—English version (IPA-E) was used. Multivariate logistic regression models were performed using age, gender, stroke severity, and functional dependency at discharge as potential contributors to the perceived level of participation and autonomy. Results: A high percentage (70%-88%) evaluated their functions as fair to very good within all domains of the IPA-E at 1 year post stroke. However, around a fifth experienced their Family role as poor to very poor. Participants' functional dependency at discharge significantly influenced the outcome for the domains of Family role (odds ratio [OR] = 5.66, P <.01), Social relations (OR = 3.23, P <.03), and Autonomy indoors (OR = 3.44, P <.04) at 1 year post stroke. Conclusion and Implications: Aspects of the Family role domain deserve further attention in interventions aimed at improving participation and autonomy at 1 year post stroke. The results also indicate that supporting indoor autonomy and social relations of persons with stroke during the acute rehabilitation is important to enhance participation and autonomy at 1 year post stroke.

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