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Need of support in people with chronic obstructive pulmonary disease

Journal article
Authors Lilas Ali
Andreas Fors
Inger Ekman
Published in Journal of clinical nursing
Volume 27
Issue 5-6
Pages e1089-e1096
ISSN 0962-1067
Publication year 2018
Published at University of Gothenburg Centre for person-centred care (GPCC)
Institute of Health and Care Sciences
Pages e1089-e1096
Language en
Links https://doi.org/10.1111/jocn.14170
Subject categories Nursing, Clinical Medicine

Abstract

OBJECTIVE: The aim of this study was to describe peoples' experiences and expectations of support when living with chronic obstructive pulmonary disease (COPD). METHOD: We conducted and analysed face-to-face or telephone interviews with 17 individuals (aged 44-77 years) diagnosed with COPD. The interviewer asked open-ended questions aimed at encouraging further narration, and we analysed the participants' narratives using a phenomenological hermeneutical approach. This report adheres to the COREQ guidelines. RESULTS: The overall theme suggests that people with COPD describe support as shared knowledge and experiences, based on the following subthemes; similar experiences, the need of genuine professional knowledge, self-reliance versus self-blame, and the Internet - feeling safe but uncertain. CONCLUSION: People with COPD find their strength through shared knowledge and dialogical support with others who have similar experiences and with professionals. A person-centred eHealth approach may be suitable for this group as it offers both collaboration and support. PRACTICE IMPLICATIONS: There is a demand for access to genuine professional knowledge as additional support to patients' own capabilities and needs. Patient associations were assessed as reliable sources of information and to some extent also support, but the importance of access to professional sources was also stressed. This article is protected by copyright. All rights reserved.

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