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Patient, user and citizen involvement in research

Information and workshop material which will help you work with Patient, user and citizen involvement in research (PPI), as well as links to other useful sites, further reading etc.

Here is a package with information and tools to get you started with and working with Patient, user and citizen involvement in research (PPI).

It was created by Professor Nicky Britten and Dr. Kath Maguire from the University of Exeter and PenCLAHRC. Nicky Britten is also a Visiting Professor at the Institute for Health and Care Sciences and  The Centre for Person-centred Care at the University of Gothenburg GPCC. PenCLAHRC stands for The National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care (CLAHRC) South West Peninsula. Read more about PenCLARHC here.

Professor Britten and Dr Maguire shared these documents after a workshop held at Sahlgrenska Academy in 2014. They can be used to get started with and facilitate patient, user or citizen involvement in all types of research.

From this page you can download the following files:

  • PPI Tips
  • PPI Involvement consequences
  • PPI Mapping Involvement
  • PPI Presentation October 2014. Britten and Maguire
  • PPI Resources

BMJ Editorial by Professor Britten et al. from 2018 Clarifying the roles of patients in research

Public involvement in health research: what does ‘good’ look like in practice? K. Liabo et al. 2020.

Other web sites in English:

INVOLVE

Patient Experience Research Centre (PERC) at Imperial College London