Navigating the Personal Attributes that Lead to Independent Travel
This keynote is not about the knowledge and skills of orientation, mobility, or way finding, that are essential components for moving about the environment. Rather, this presentation is about the personal attributes that can challenge or strengthen one’s ability to confidently and efficiently take control of one’s transportation needs. This presentation is about social relationships, emotions, and experiences of those who are non drivers and those who are able to pursue a low vision driver’s license using a bioptic telescopic system.
Professionals with typical vision, and especially those who drive, may not have had similar personal experiences as those with low vision or blindness in seeking transportation. When and how should you ask for a ride? How do you deal with the frustrations of non driving? and Do you want to pursue low vision driving? These are just a few of the questions that will be addressed.
The purpose of this presentation is to encourage participants to attend to the psychological and social skills one needs to master for independent travel as well as for looking at options that are available within a transportation budget. While the person who is highly skilled in mastering orientation, mobility, and way finding will be more mobile, the acquisition of these skills and the use of these skills are tied to one’s sense of self and one’s relationships with others involved in the journey to becoming an independent traveler.
Anne Corn is professor emerita from the Departments of Special Education, Ophthalmology and Visual Sciences at Vanderbilt University. Currently, in retirement, she is a (volunteer) Research Professor in the Department of Ophthalmology at The University of Cincinnati. In addition to preparing teachers of students with visual impairments, she has enjoyed working with future orientation and mobility (O&M) specialists and sponsoring dissertations that address O&M.
Professor Corn has numerous publications and research articles, and is the senior editor of Foundations of Low Vision: Clinical and Functional Perspectives. She has held offices including, but not limited to: Chair of the Personnel Preparation Division of the Association for the Education and Rehabilitation of the Blind and Visually Impaired, a member of the Governing Board of the Texas School for the Blind and Visually Impaired, and Chair of the Committee that established the National Agenda for the Education of Students with Visual Impairments, Including those with Multiple Disabilities. Today, Dr. Corn consults with families of children regarding education services, and she enjoys writing and volunteering for the National Organization for Albinism and Hypopigmentation.
Professor Corn is very pleased to return to Sweden for her third visit. She has given presentations at the Tomteboda Resource Center for the Visually Impaired, as a visiting professor at the University of Lund, and also as a “opponent” for a doctoral defense at the Karolinska Medical School.
Orientation and mobility has always been an interest for Professor Corn along with social skills and the functional use of low vision. She is the senior author of the soon-to-be published curriculum book, Finding Wheels: Building Strategies for Building Independent Travel Skills, second edition. In recent years Professor Corn has also been interested in furthering possibilities for people with low vision to pursue a drivers license with bioptic telescopic systems.
Regenerative Vision - Retinal chip implants and gene therapy
The theory of how sight is provided and the development of an orientation and mobilityprogram to improve the use of this new vision.
The commercial availability of retinal prostheses and gene therapy treatments for blindness is now a reality. As we move from research subjects to working with consumers they have expectations of what they will be able to see and do with an implant. Orientation and Mobility rehabilitation is one aspect of a comprehensive delivery system that will provide each consumer with the opportunity to maximize their ability with the implant. This presentation is an overview of the basic theory of how these new technologies restore vision. This presentation will also describe the functional challenges and opportunities with restored vision and the importance of OM instruction to maximize the user’s potential.
The goals of this presentation are:
- Provide the OM instructor with increased knowledge about the different approaches to vision restoration, with emphasis on gene therapy and prosthetic devices.
- Describe the opportunities and challenges of providing rehabilitation.
- Highlight the importance of OM instruction as the user adapts to visual restoration.
- Provide an understanding of realistic expectations with the current technologies.
Duane R. Geruschat, Ph.D is a research associate in Ophthalmology at the Wilmer Eye Institute of the School of Medicine at Johns Hopkins University. He is a certified orientation and mobility specialist and low vision therapist with over 40 years of experience in both practice and research. He served as the Editor in Chief of The Journal of Visual Impairment and Blindness from 2005 - 2012.
His early research involved ambulation and low vision, including studies on how low vision pedestrians use their remaining vision to navigate street crossings and complex intersections. Since 2004 he has worked as a member of a research team at Johns Hopkins University studying various types of prosthetic vision including the Optobionics Artificial Silicon Retina (ASR) and the Argus II from Second Sight Medical Products. He was also a member of the study team at the University of Pennsylvania/Spark Therapeutics and their RPE65 gene therapy treatment designed to improve the vision of patients with lebers congenital amaurosis. Both of these products have been approved for commercial distribution. Currently he is a member of the research team of Astellas Pharmaceutical, a Japanese company developing a clinical trial using gene therapy.
President of the Swedish Association of the Visually Impaired
Dr. Kamel Lamichhane
Can we overcome obstacles to the path of inclusion and economic independence?
Social inclusion and economic independence are some of the major issues individuals with disabilities face. Based on my research on the importance of education and labor market participation to achieve inclusive society, this keynote highlights the challenges faced by individuals with vision impairments in the path of independence. Several factors create obstacle towards the path of independent living and economic empowerment of these people including disabling environment, resulting from the misconceptions about their ability to live quality of life. Despite the significance of independent living skills, particularly orientation and mobility (O&M), in most parts of the low and middle income countries, they are deprived of such basic skills. One of the reasons is that still many children have no access to quality education and adult have no place to learn it within their community. Therefore, it is recommended that programs targeted to equip these people with skills be effectively implemented not only to achieve sustainable development goals but also to create a society with social justice, equality, fairness and greater sense of inclusivity.
Dr. Kamal Lamichhane is associate professor at the division of disability sciences, faculty of human sciences in the University of Tsukuba in Japan. He is also an affiliated researcher at the University of Tokyo. His fields of research are: Disability Studies, Economics of Education and Inclusive Education.
Besides focusing on human capital formation and disability-inclusive development, Dr. Lamichhane also studies the association of disability and poverty with the particular focus on low and middle income countries. His book entitled “Disability, Education and Employment in Developing Countries: from Charity to Investment”, published from Cambridge University press in 2015 received the Japan society for International Development (JASID) incentive award 2016. In 2019, he published his memoir in Nepali called “antardrishti”, advocating for dignity, self-esteem and fairness with rights, justice and equality of opportunity for persons with disabilities. He is chosen as ten outstanding young persons of the world (TOYP) for 2018 in the category of academic leadership and accomplishment by junior chamber international (JCI).
Dr. Lamichhane has written several peer reviewed articles on the relationships between disability, education and labor markets and are published in the journals such as international journal of educational development, oxford development studies, economics of education review, international journal of inclusive education, disability and society, scandinavian journal of disability research etc.
Dr. Lamichhane earned his Ph.D. from the University of Tokyo. He is the first person with visual impairments in his home country Nepal to receive the doctrate. Due to his visual impairments, Dr. Lamichhane could not receive education until he turned 12.